iriss-lr-2011-04-20-brigid
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Scottish Child Care and Protection Network
Seminar Series
Supported by the Scottish Universities Insight
Institute
Brigid Daniel
University of Stirling
SCCPN
The Scottish Child Care and Protection Network
fosters connections, collaboration and the
coordination of activities that will promote access
to and use of evidence in practice.
http://www.sccpn.stir.ac.uk/about.php
SCCPN Research Working Group - collaboration of
academics from the Universities of Dundee,
Edinburgh, Strathclyde and Stirling
Seminar series structure
Seminar 1: March 9/10/11 Data linkage and
mining: vision, possibilities and practicalities
2: April 20/21st Design and
methodology in longitudinal research: scope,
approach and practicalities
Seminar
Seminar 3: June 21st Consolidating collaborative
partnerships: sharing and applying knowledge
First seminar (9/10/11 March)
1. What needs to be in place to ensure
that data that is routinely collected
about children and families on a
national and local basis can be
collated, cross-referenced and used:
to improve operational decision-making
and planning
as the basis for longitudinal research
into outcomes for children?
This seminar (20/21 April)
2. What are the core constituents of a
robust longitudinal design that would
be fit for the evaluation of the efficacy
of everyday professional intervention
aimed at improving the lives of
vulnerable children?
Final seminar
st
(21
June)
Presentation, consolidation and
strategic planning.
A few key points from the first
seminar
The discussion focused around:
developing a structured data-mapping and linkage
model that will facilitate the maximum use of routinely
collected data on children and families to gauge
outcomes of intervention
facilitating data-linkage on a national and local basis
that will form the bed rock for strategic planning and to
support research and evaluation
developing an ethical framework acceptable to all
disciplines, professions and service users.
A wealth of data is already collected that could be used
far more creatively – it is collected locally in different
ways by different agencies for different purposes.
Data linkage is possible and there are many examples
of successful linkage projects – often as academic and
operational partnerships.
In Scotland the Scottish Health Informatics
Programme (SHIP) has developed a model for linking
health datasets that preserves confidentiality.
The looked after children data in Scotland can now be
linked with education data and potentially with child
protection data returns.
The GIRFEC pathfinder illustrated ways in which
routine data can be used as direct and proxy
indications of well-being.
At all levels of the system there needs to be
commitment to, and understanding of the benefit of –
accurate data collection and recording.
There is a strong argument that it is an ethical
imperative to use data effectively to improve the
effectiveness of our services.
It would be feasible in Scotland to agree a minimum
data-set and a national strategy for data collection,
linkage and use.
Aims of these two days:
the distillation of learning from previous longitudinal
studies to create the foundations of a robust design,
the collation of information about the most
appropriate measures to capture everyday intervention
and child well-being,
the development of a robust analytical package for a
longitudinal study.
Issues to consider
Key design and analytic issues;
data collection and outcomes measures
practicalities in setting up and sustaining longitudinal
research with vulnerable populations
methods for capturing the nature and intensity of
routine multi-professional practice.
Today focusing especially on design e.g. depth versus
breadth, sampling, studying ‘vulnerable’ populations,
ethics, analytical considerations.