Transcript Young Adult Worker - British Renal Society

The Importance of the Young
Adult Worker
Royal Free Hospital
The Young Adult Worker role
• Trained Youth Worker
• 3 days a week, 2 years funded by BKPA, now full
time
• Social, emotional and practical support
• Sessions in hospital, home visits and/or informal
meetings
The clinics
Young adult nephrology clinic
• Once a month
• Adult and paediatric nephrologist
• Patients with nephrotic syndrome and other forms
of chronic kidney disease (CKD)
Renal transplant clinic
• Twice a week
• Part of adult transplant clinic
Patient pathways
Young adult nephrology clinic
• Most referrals from GOSH/ South East England
• 30 min clinic slots for new patients
Renal transplant clinic
• Most referrals from GOSH – quarterly transition
clinic
• Informal visit at Royal Free
Patient engagement
• Ready Steady Go!
• National events: Annual residential in Derbyshire
• Local events: Bowling
• Home visits
• Mobile phone
Ready Steady Go results
Total n=79
Number of questionnaires
70
60
50
76%
71%
71%
62%
40
30
20
10
13%
13%
0
Support with
education
Help in
managing your
understanding medications
your condition independently
both now and in
of your
the future
parent/carer
Applying for
benefits and
housing
Dietry
requirements
Sexual health
and
relationships
London bowling trip
Ravenstor
2016
Gender
Total number of patients seen: 151
65 % Male
35 % Female
Ethnicity
Patient number
30
25
20
Male
Female
15
10
5
0
Asian
Black
White
Other
DNA rates
30
25
20
nephrology transition
Transplant
15
10
5
0
2013
2014
2015
2016
Key Positive Outcomes
• Smoother transition journey addressing young
people’s needs
• Improved communication between patients and
hospital
• Decreased DNA (did not attend) rates overall
• Support for young people in social issues as well
as health enabling them to take better care of
themselves
Patient Feedback
• Patients report feeling more confident when able to meet
their peers at social gatherings
‘I’ve got more independence and confidence being here. I was put out of my
comfort zone but that was good. I’ve learnt how to communicate with others’
Improvements for the future
• Patients would like a ‘one stop shop’ service
• Clinic times to be moved outside of education hours
• Young people only clinics
Key influences for future funding
• Decreased DNA (did not attend) rates overall
• Invested team
• Business case focused on previous research and
financial savings
• Added value of role (phlebotomy)
Acknowledgments and thanks
Team at the Royal Free London
• Dr Trompeter
• Dr Papakrivopoulou
• Dr John Connelly
• Dr Jeff Cove
Financial support
• Kids Kidney Research
• Garfield Weston Foundation
• British Kidney Patient Association