Transcript World Wide Prostate cancer coalition

World Wide
Prostate cancer
coalition
Moving forward together:
The solution
T. Hudson
Geneva, 28.08.08
By working together we can build a stronger
force to get cancer on the agenda of governments
around the world.
This requires concerted action and we each have
an important role to play.
John R Seffrin, Pres UICC
Leaders in Cancer Patient Advocacy
have already set the standard!
The National Breast Cancer Coalition (1991)
‘Perhaps the worlds most influential medical consumer lobby group’
Lancet editorial, 2001
Europa Donna The European Breast Cancer Coalition
(1993)
We live in changing times!
With the internet bringing us quick and easy
access to information. Attitudes are changing
with the public now expecting a more realistic
and comprehensive service from the health
business.
Accurate information, access to a second
opinion, updates on new technology are now
considered the norm.
To meet the challenge.
Leading activists from the five continents who
had been exchanging signals for some time, were
facilitated by the UICC to meet in Washington
DC at the UICC World Conference in July 2006,
to discuss and consider the benefits, if any, of
collaboration.
WWPCC
World Wide Prostate Cancer Coalition
Who we are
• A coalition of prostate cancer interest groups
from around the world.
What we do
• We Share information, ideas, visions and dreams
to minimize the impact of prostate diseases,
especially prostate cancer, in the global
community.
• We serve interested organizations from around
the world to help fulfil their objectives.
Our Mission
To create or enhance an environment to empower
men to make informed decisions about
diagnosis and treatment for prostate cancer.
Membership
• Organisations with an interest in the field.
• Individuals with a demonstrated interest in our
objectives
Work in progress I
• Building relationships with National/regional
patient groups and other parallel organisations.
• Establishing and further developing good
relations with professional bodies.
• Sharing new information on patient support and
news of medical successes and failures.
• Saving funds by pooling information.
Work in progress II
• Recognising the developing role of the wider
‘prostate family’.
• Encourage the development of a well informed
public.
• Developing an easily accessed method of
communication.
• Seeking clarity in the ongoing early detection /
screening debate/debacle.
Work in progress III
• To ensure that racial and cultural differences are
recognised and catered for in all projects.
• Establish a strong international collaboration in
Prostate Cancer Advocacy.
Who’s involved?
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Austria
Belgium
Bulgaria
Cyprus
Czech Republic
Denmark
Finland
France
Germany
Ireland
Italy
Lithuania
Norway
Poland
Portugal
Romania
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Slovak Republic
Spain
Sweden
Switzerland
The Netherlands
United Kingdom
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Canada
United States of America
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Australia
New Zealand
Japan
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Israel
Republic of South Africa
What’s the current situation?
While WWPCC has been working to establish
guide lines for ‘Global Collaboration’, prostate
groups across the world have been busy with
many new initiatives, some of which could be of
benefit to similar groups elsewhere.