Transcript Delivering independent intelligence for health and wellbeing

Delivering independent
intelligence
for health
and wellbeing
Delivering
independent
intelligence
for health
and wellbeing
National Drug (and Alcohol) Treatment Monitoring System
NDTMS ~ Consent
Jill Smith
Public Health Liaison Manager
North East Public Health Observatory
Delivering independent intelligence for health and wellbeing
Protecting Confidentiality – What do we know?
Information in submitted file is deemed to be
patient-identifiable as it is not fully
anonymous, however:• Full names are reduced to initials
• Postcodes truncated in national dataset
(NB: NE regional dataset holds full postcodes if provided but
are not available to national dataset. This allows for
geographical analysis within region)
Delivering independent intelligence for health and wellbeing
Protecting Confidentiality – Consent to Share
• Client is informed what data NDTMS shares, with
whom/why and what safeguards are in place
• Client gives explicit informed consent to share their
data with NDTMS orally or (ideally) in writing.
• If a client refuses consent, the extract will contain the
record but without information
• YP may or may not be competent to give consent.
This is for the clinician to determine, and if
appropriate seek parental/guardian consent. Record
in casefile.
Delivering independent intelligence for health and wellbeing
NDTMS – Confidentiality & Consent
Various documents supporting YP services
All services should have clear policies
a) Confidentiality and information sharing
• Agreed by Local Safeguarding Children’s Boards
b) Consent to treatment, and
c) Child protection
Delivering independent intelligence for health and wellbeing
Protecting Confidentiality – Consent to Share
If a client has previously given consent but then asks
to withdraw consent:• The current, open episode can be changed to reflect this
• Future monthly submissions will not contain the data
• Archived/Backup data files may still contain the data
If a client has previously refused consent but then
agrees:• The current, open episode can be changed to reflect this
• Future monthly submissions will contain all the data
• Archived/Backup data files will not contain the data
Delivering independent intelligence for health and wellbeing
Protecting Confidentiality – Data Transmission
If a client has refused consent
• NDTMS will not know anything about the client
•
•
•
•
•
•
Drug/Alcohol?
Young Person/Adult?
New Presentation/Previously Treated/Duplicate Client?
Interventions?
Waiting Times?
Outcomes?
• Such clients will not count towards any indicators
Delivering independent intelligence for health and wellbeing
Protecting Confidentiality – Data Transmission
Transmission Methods:
• Provider to DAMS: secure web-based system
• Provider to NDTMS team: secure, drop-box with agencylevel, encrypted data
• NDTMS team to Provider: secure, drop-box with agencylevel, encrypted data
NEVER
BY CD OR PHYSICAL MEDIA OR UNENCRYPTED EMAIL
Delivering independent intelligence for health and wellbeing
Protecting Confidentiality – Confidentiality Toolkit
Toolkit available to assist Service Managers,
Keyworkers and Clients in understanding
NDTMS and consent:
Confidentiality Toolkit August 2009 NEPHO.pdf