Transcript Headway - NNA Northern Neurological Alliance

Headway – the brain injury association
MIND OF INFORMATION 3
St James Park, Newcastle – 29th Feb 2012
HEADWAY – the brain injury association
Aims to:promote understanding of all aspects of brain
injury
provide information, support and services to
people with brain injury, their families and carers.
FACTS & FIGURES
Every year, more than a million people attend hospital
A&E departments in the UK following a head injury.
In 2007, 88,835 people were admitted to hospital each
year as a consequence of traumatic brain injury.
Head injury is the foremost cause of death and disability
in young people.
Approximately 50% of deaths in people under 40 are
due to head injury.
Males are two or three times more likely to have a brain
injury than females. This increases to five times more
likely in the 15 - 29 age range.
NORTH EAST FACTS &
FIGURES
North East Population Figures 2006 - 2.577m
Incidence of admission to hospital for brain injury in
England for 2006 - 88,835
North East Admission Figures in 2006
4472!!
NORTH EAST FACTS &
FIGURES
HIGHEST INCIDENT - NORTH EAST PCT
CLUSTERS IN 2006
Co Durham - 876
Northumberland - 542
Sunderland - 491
Newcastle - 473
North Tyneside - 341
WHAT IS AFFECTED BY
BRAIN INJURY?
Executive Skills
Planning, Organising
Perception Memory
Concentration/Attention
Information Processing
Tolerance
Movement
Inhibition/Impulsivity
Co-ordination/Balance
Mood/Emotions
Stamina/Tiredness
Sensory Perception
Personality
Speaking
Relationships
Awareness/Insight
Motivation
Language Skills
Causes of Brain Injury….
Mainly traumatic
RTA – 40%
Falls/Domestic Accidents – 20%
Assaults – 10% Work/Sports Accidents – 5%
Non Trauma
- 25%
Stroke
Brain hemorrhage
Infection
Lack of oxygen
Drug and alcohol abuse
BRAIN INJURY IN THE UK
Over three quarters of people feel they
have a hidden disability
9 out of 10 people believe their injury has
changed them as a person
76%
78% have seen at least one relationship
break down
89%
68% believe they are discriminated against
78%
Statistics based on nationwide survey commissioned by Headway and University of Exeter
68%
Carer’s Role
Home Front
Chief Domestic
Main Provider
Education Link
Main decision maker
Information Gatherer
Partner/Parent/Friend
Risk Management
Personal & Medical Care
Peg Changing
Change of dressing
Physio exercises
Incontinence Management
Drug Management
Legal Aspects
Liaison with Personal Injury Solicitors
Liaison with Receivers
Attendance at hearings
Advocacy
Liaison Officer for Social Services
Physical Disabilities Section
Housing
Equipment Services
Adaptations
Welfare Benefits/Direct Payments/Individual
Budgets
Case Managers
Involved with goal setting
Implementation of care plans
Risk Management
Support Worker Recruitment
Liaison Officer for NHS
Clinical Psychologist
Speech & Language
Physiotherapist
GP
Neuro Rehab/Medicine Consultant
Occupational Therapist
Counsellors
HEADWAY UK
Headway is a charity set up to give help and support to people affected by
brain injury with a network of 110 local Groups and Branches throughout the
UK offering a wide range of services, including rehabilitation, carer support,
social re-integration, community outreach and respite care. The services
available vary, depending on local needs and resources.
Headway UK provides support to the local Groups and Branches and helps to
deliver high quality services through guidance on policies, procedures,
standards and training. Additionally:
We operate a UK Helpline
We produce a range of booklets containing information about aspects of
brain injury for those directly affected, plus professionals, employers and
members of the public.
We promote understanding of brain injury and its effects
We lobby for better support and resources to be made available by
statutory health and social care providers.
We campaign for measures that will reduce the number of brain injuries
HEADWAY IN THE NORTH EAST
Headway North Northumberland
Headway Central Northumberland
Headway Newcastle & North Tyneside
Headway Tynedale
Headway Gateshead & South Tyneside
Headway Wearside
Headway Durham & Chester Le Street
Headway Teesside
North East Developments….
Developing Headway Darlington & District
Funding the post of Community OT in the
Middlesbrough area
Brain Injury Co-ordinator post @ JCUH
Recruitment of Community Development Officer
for Headway Teesside
New Business Strategy for Headway GST
Look Ahead in the North 2012
Headway Gateshead & South
Tyneside
Community Development Officer
Appointed 19th April 2010 with the remit of developing
services for people affected by brain injury.
Increase in membership
Re-vamp of current website
Photography project
Raised monies of activities and transport
Community initiatives in place – volunteering/health
trainers/timebank (volunteering scheme)/community
allotment
Headway Gateshead & South
Tyneside
The Youth Group will:
provide much-needed social contact for young people
aged between seventeen to twenty-eight, including an
informal ‘buddy’ system
create a precedent in the North East region; a selfgoverning group of and for young adults with Acquired
Brain Injury
promote independence, focussing on skill-sets such as
travel, shopping, social interaction, and communication
increase self-confidence and esteem in members
through learning and consolidating new proficiencies as
well as the through the autonomous running of the group
Me, me, me, me, me!
Representation on various commitees
NABIF
Northern Neurological Alliance
Towards Inclusive Living Project
HITS Clinical Trial/STITCH Trial
Brain Injury Awareness Sessions delivered to local
community groups/care homes(!)
Advocacy (e.g. representation welfare benefits tribunals)
Educational Sessions for schools
Educational material for Police/Duty Solicitors
Look Ahead in the North (Residential Weekend 25-27th
Mar 2011 at The Calvert Trust - Kielder)
Look Ahead in the North
Specific Residential Weekend for people with
Brain injury and their Carers from the NE and
North Cumbria.
87 people in attendance
Calvert Trust Activities
Holistic Therapies
Brain injury workshops
Ceiledh Dance
Best thing was the chance to meet with others in
similar situations – peer support!
Thank You For Listening