Transcript Making NICE research nicer

Making NICE research nicer
Involving patients, carers and the
public
Marcia Kelson
NICE Patient Involvement Unit
Jeremy Wyatt
NICE Research and Development Programme
Vinod Kumar
NICE Research and Development Advisory Committee
What is NICE?
• The National Institute for Clinical
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Excellence (NICE) provides national
guidance on treatments and care in
the NHS in England and Wales
NICE guidance is for healthcare
professionals and patients to help
them make informed decisions about
treatment and healthcare
What types of guidance
does NICE produce?
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Technology appraisals (use of
discrete drugs or therapies)
Clinical Guidelines (cover wider
management and treatment of
patients with a specific condition)
Interventional procedures (advice
on safety of new procedures)
How does NICE involve
patients and carers?
 NICE stakeholder process
(consultation - all guidance products)
 Membership of NICE committees
and working groups (direct input)
 One-off projects (indirect input)
 Public versions (information)
Content of NICE guidance
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Evidence of clinical and cost
effectiveness: recommend use of a
treatment or intervention
Evidence of non-effectiveness:
recommend non usage
Inconclusive or lack of evidence:
suggest need for further research
Jeremy Wyatt
NICE Research and
Development Programme
Vinod Kumar
NICE Research and
Development Advisory
Committee
Research
NICE - gaps
Clinical Research
Department of Health
Health Service
Management
Stakeholders
Funders
MRC
Academic
Drug industry
Policy Research
Alternative/Complementary
Therapies
Public Health
Workshop discussions
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Can organisations like NICE work
with patients, carers and the public
to help move publicly funded
research in the direction of more
immediate benefit to patients and
the public?
How, and in which disease areas,
might we start to do this ?