Transcript Keynote speaker - Olive O Connor

Picture of Health…
…Perceptions of Health
What may seem simple, can
often be most complex.
The Proof For
‘1+1=2’ Is 300
Pages Long!
eHealth Ecosystem
Even Defining the Solution Can Be Complex!
eHealth
2005
51+
Definitions
Work with
everyone to
implement the
solution!
INTEGRATE
+
Ecosystem
=
Where
To Start ?
52,000,000
Search
Results
Work with the
people who
can solve the
problem!
VALIDATE
Start with the
people who
have the
problem!
INNOVATE
Calmness
Possibility
Trust
Hope
Safety
Security
Reassurance
Direction
Security
Gratefulness
Communication
Excitement
Lighthouse Recognised All Over the World
Extremely Important to Address the Needs of
Specific Communities…
Epilepsy
Bi-Polar Disorder
Haemophilia
Extremely Important to Ensure EHR’s Will Work in
Collaboration with
National Standardised Electronic Health Records
Just as Important That EHR’s built with PHR’s to Aid in Self
Management of Conditions; Increase Engagement with
Health Care Professionals; Are Easy to Implement and USE
and Most Importantly Address the Needs of All Patients
High Blood Pressure
Irrelevant
of diagnosis, every patient at
Heart Disease
some stage, will have to manage 4 basics:
Diabetes
• Medications/Therapies
• Cancer
Health Care Appointments
• Emotional/Physical/Social Impact
• Communication
Managing a chronic illness can cause huge
Depression
stress and risk to patients and carers.
So
Arthritis
can you imagine how hard it might be to
manage more
than one?
Stroke
Asthma
The MediStori is like a Filofax, but for health.
More disruptive than any technology…!
Is that…Paper???
In Today’s World?
That Will Never
Work!
APPS ARE
THE ONLY
WAY!
Really? Are you sure?
How many of you take notes on pen & paper today?
How many public hospital waiting rooms have Wi-Fi?
Did you ask me?
Who Am I?
#hellomynameisOlive. I am known as being…
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An Expert by Experience – DCU Literature Review PPI ; NCGP for PEWS; Maternity Strategy
Trained with Stanford University Self Management Facilitator Chronic Disease
Completing Fellowship with ISQua in Quality Improvement; Training in UX Design
Represented Ireland for the Clinton Global Initiative (Top 10 out of 10,000)
Showcased by Global Health Leader Maureen Bisognano, IHI in Qatar
Supported by Enterprise Ireland, IPU, IPA, Irish Carers Association
**Judges Choice Sccul Special Merit Award 2014
**JCI NATIONAL Award Winning Medical Innovation 2015
**Mumtrepreneur of the Year with Mums and Tots.ie 2015
Lectured in UCD; Keynote Speaker: Community / Youth Worker
Seen on RTÉ News, Prime Time, Today FM’s Sunday Business Show, UTV Ireland
Supported by An Taoiseach – “Save our Health Service Millions” …
I am Olive. And I am the Patient.
IBecause…and
am also
known
aswithout
Mum,
Sister,
Daughter (depending
on the mood!)
And
I am
known
as the
Founder
of egotistical…
the MediStori
sounding
But I’m not a doctor or a health professional!
So why did I see a need for such a thing?
My Problem…
When did I give
right medication?
So hard to get
diagnosed!
Trying to
remember
appointments!
Communication
Breakdown!
Someone who
understands!
Could it Help Others?
Medication Non-Adherence
WHO: “Approx. 50% do not take medications as prescribed…” -€30 million
There is an urgent need for a
Costs on Health Systems
universal, unified approach.
“…all medication-related hospital admissions in the US approx. $100 billion a year…”
Digital Divide
“the digital divide …..those in most need are left behind …”
Individualised
Health Plans
And it needs
to start
simple.
“…the ability to develop individualized treatment plans is of critical importance for effective care”
We focus on the individuals needs,
This
Was
the
Toolkit
That
Saved
My
Dad’s
Life.
not the individuals disease.
The
Water
Tablet!
The
Inhaler!
•
Transparency
for Patient,
Carers,
Paramedics
•
No Batteries
•
No Passwords
•
Suitable All
Ages
REALTIME DATA!
The Problems are Bigger than Paper or Technology!
Our Hospital Booklet
Vaccination
Asthma Packs
COPD Care Packages
Heart Passports
Unhealthy Competitive Cultures Existing in
HealthCare Impact on Patient Safety
P4 Medicine Institute – Proactive vs Reactive…
Personalized, Predictive, Preventive, Participatory
Solutions Need to Be Simple.
Cultures Need to Be Converted.
Charities Need to Be Collaborating.
Patients Need to Be Participating.
Professionals Need to Be Proactive.
Policy Needs to Be Practical.
Projects Need to Be Proven.
We Need to Work To Put Patient Safety Agenda Before
Profit, Pride, Positions or Power…Prove What Works
Step 2. Validate
Collaborative, Comparative Study…
• Research by NUIG – Dr Padraig MacNeela
• Funded by HSE QID and Acutes
Objectives
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Make Changes Based on Patient & Health Care Professional Needs
Who & Where is it Best to Recommend it to Patients
See Issues Patients and Carers were Having
Show Cost Savings
So What Did They Say?
95% Participants Not Taking Medications Correctly!
What else did we learn?
• 6% Recommend Charities to Patients- 85% Feel Charity Additional Health Service! LINK
• 34%, 24% and 22% respectively wanted to be part of the study because they wanted help
with medications, appointments and health information. SAME ISSUES AS HEALTH SERVICE
• 96% wrote down questions for HCP prior to visit – ACTIVATED PATIENTS/CARERS!
• 74% struggled to manage appointments – IRRELEVANT OF CONDITION
• 69% had a pre-existing condition and were awaiting another diagnosis - SYMPTOMS
• 50% answered had other loved ones in the house with a condition – FAMILY CENTRED CARE
• 57% thought that others couldn’t give medications correctly - CARERS
• 87% were not given a medical device in a hospital to help with medications - CRITICAL
• 89% found it difficult to recall health information for HCPs – IN HOME
• 69% kept a diary system at home – ALL HANDMADE SYSTEMS – EXCEL AND PAPER!
• 45% contacted GPs and PHNS to find out if vaccinated or not – HEALTHY POPULATION
• 87% did not receive PHR from health providers – RECOMMENDATION NEEDED
And what did they say about MediStori?
Loads of Changes to Be Made…But…
75% of participants
said the MediStori
had impacted on
how they
managed
medications
>90% said
<80% said
>90% said MediStori
they liked
they would
was a good idea
the size &
like to see an
and that it was well
colour of
electronic
demonstrated to
MediStori
version also.
them
>80% said it had
>90% said they felt it
impacted on how
could help them with
they communicated
their specific needs
>80% said it had
impacted on how
But
What Was
Their
Experience?
information to health
care professionals
>65% said it had
impacted in how they
they managed
managed their loved
appointments
ones condition
“It will make my life easier
“It’s brilliant!
Been telling
my friends
“Thanks for filling
a gap in my
care.”
having this, it has already
helped me keep track of
everything, I have so
many appointments at
about it.
the moment so it is great
to keep track of them.”
“I've pretty much said it all,
“The people behind
this are very obviously
extremely caring and
experienced people
with the patient’s best
interests at heart.”
Just,
Thank
You.
but I just want to once
again thank the team for
all of their hard work. They
have made a difficult
situation easier to deal
with.”
Are there Cost Savings?
Per Patient
Per
Annum
Hospital Bed x 1
night
A hospital bed costs €800 per night – it is proven that if patients are part of the decision making process and are
€800.00 trained in self-management they become more reassured, educated and informed & there is a high chance that
they will not be readmitted or kept in as long as a patient who is not.
Medication
Compliance
If a patient has a better understanding of their medications and has a simple tool-kit to help them keep track of
when they took them, there is a major chance of increasing medication adherence and compliance. This has a
€300.00 huge cost saving as it will stop re-ordering of drugs that are not needed; it will help reduce readmissions to
hospitals due to medication related illnesses and it can even help cure/treat the issue and prevent visits to the
GP.
A&E Re-Admission
There is significant evidence of people being admitted to hospital due because they are not reassured about
their illness, treatment or diagnosis. There is also a high increase in admissions to A&E at weekends and
€200.00 afterhours and evidence has shown this can be because after hour GP’s have no history on patients presenting
to them and they can feel vulnerable and/or not confident enough to treat/diagnose a patient as they do not
have enough information on the patient to make an accurate decision.
Inappropriate
Diagnostics
When health professionals are unsure as to whether the patient has had appropriate/previous tests done,
sometimes they re-test them "to be on the safe side". This has a huge burden of cost, risk and time on both
€300.00
stakeholders. This can be effectively reduced if a patient is able to tell a consultant when and where they last
had medical investigations done and this will save time and money on needless retesting.
As patients end up in A&E / being admitted the nurse needs a full up to date list of prescription or the patient.
This usually ends up with a phone call (or 3!) to a GP or pharmacy. If the patient has this information to hand
Phone Calls/No Link €100.00
they can reduce this wastage of time (costs of calls) etc. for both the nurse and the GP/pharmacy and can have
their medications written up on time for themselves.
Emergency
Situations
GP Visits/Calls
When people do not have accurate information to hand in emergency situations this can lead to a delay in
€100.00 diagnosis and/or treatments - it can mean the patient stays in hospital longer and may even lead to
misdiagnosis.
€100.00
If a mother doesn’t have to ring a GP regarding vaccination records, this will save their staff time in having to do
this. And reduces risks for the child.
Step 3 - Integrate...
…National Roll Out
Easy, Right?
Can this be done?
Policy
& Charters
Outpatients
&
Educate
Discharge
Self-Management
Charities &
Reassure
& Refer
Set the Standards
Evaluated
Rethink
&Courses
Retrain
Empower
Organisations
Champions
Promoters
Engagers
Collaboration
GP, PCCC &
Engage
Partners
& Pharmacists
National Advisory
Reinforce
& Relate
Boards
Emergency/Out
of
Practical
Toolkits
Enable
Hours
Standardised
Recall
& Reiterate
Nationally
The Patient is The Only Link
Conversations lead to collaborations…
People, not products, are the key to success…
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Dr Philip Crowley – National Director Quality Improvement & Patient Safety
June Boulger – National Lead Patient & Public Involvement in Acutes
Mayo General Hospital – Chief Pharmacist Blánaid O’Connell, Charlie Meehan
Temple Street Hospital – Grainne Dowdall, Child Health Information Co-ordinator
Dr Joseph Dalton – Digital Health Strategist
Deirdre Munro – CO-Design & Global Village Midwives Founder
RCPI – Dr John Fitzsimons & Dr Peter Lachman
Tim Delaney – Chief Pharmacist Tallaght Hospital
Dr. Peter Sloane –GP WHO GAMA Project – Clinical Programmes and Strategy –
Collaboratively working with the Irish Patients Association, Irish Pharmacy Union, Irish
Carers Association plus all/any other organisations as need arises…
Patient + Professional = Partnership
Benefits For Patient, Carer & Health Care Professional
Medication Management
Less Miscommunication
Joined Decision Making
Having Records of History
Family History
Self- Management
Feeling Listened
Informed Decisions
= Medication Adherence
= Less Errors
= More Confidence
= Less Re-Testing
= Accurate Diagnosis
= Less Re-Admissions
= More Reassurance
= Safer Standards
Less Stress - Less Risks Less Time - Less Fears - Less Costs
Going forward…
World Health
Innovation
Summit
10th & 11th
March UK
Slow and Steady Wins the Race
“The most exciting breakthroughs of the
21st century will not occur because of
technology but because of an expanding
concept of what it means to be human”
John Naisbitt,
Author & Futurist
Innovate. Validate. Integrate.
We are all here to either get better or to
help someone get better.
And one day, our role may be switched to
the other side…
Collaboration is KEY.
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We Need to Focus on the Now
and the Tomorrow Will Happen.
Thank You for Having Me!
#hellomynameisolive