Transcript call: 1-800-diabetes - Tour de Cure

American Diabetes Association
Government Affairs and Advocacy
2016 Update and Priorities
Presenters name
1
www.diabetes.org/advocacy
1-800-DIABETES
4 General
Advocacy Goals
MISSION:
To Prevent and Cure Diabetes
and Improve the Lives of All
People Affected by Diabetes
1. Increase federal and state funding for
diabetes prevention, treatment and
research
2. Prevent diabetes
3. Improve the availability of accessible,
adequate and affordable health care
4. Eliminate discrimination against people
with diabetes
2
www.diabetes.org/advocacy
1-800-DIABETES
2015
Federal
Government
Affairs
Highlights
Increased federal funding for FY2016
diabetes research and prevention
programs:
• Added $68 million for diabetes research at the
National Institute of Health’s National
Institute of Diabetes, Digestive and Kidney
Diseases (NIDDK)
• Added $30 million at the Center for Disease
Control’s Division of Diabetes Translation
• Doubled the budget for the National Diabetes
Prevention Program to $20 million for FY2016
3
www.diabetes.org/advocacy
1-800-DIABETES
2015
Federal
Government
Affairs
Highlights
• Renewed the Special Diabetes Programs (SDP)
funding for two years
• Continued inclusion of diabetes among diseases
eligible for the Department of Defense’s
Congressionally Directed Medical Research Program
• Improved United States Preventive Services Task
Force recommendations will:
– identify millions more Americans with
undiagnosed diabetes and prediabetes
– make both testing for diabetes and behavior
counseling interventions available at no charge
to the patient through most insurance plans
4
www.diabetes.org/advocacy
1-800-DIABETES
2015
• Expert-backed recommendation to
Legal Advocacy
Federal Aviation Administration
Highlights
regarding medical evaluation of pilots
with insulin-treated diabetes
• Publication of a proposed new rule
governing commercial drivers with
insulin-treated diabetes
• Florida legislation establishing a
statewide training program on
diabetes for law enforcement
personnel
6
www.diabetes.org/advocacy
1-800-DIABETES
Diabetes
Disparities
Action
Council
7
• African American Diabetes Action Council
• American Indian/Alaskan Native Diabetes
Action Council
• Asian Pacific American Diabetes Action
Council
• Latino Diabetes Action Council
www.diabetes.org/advocacy
1-800-DIABETES
2015 Highlights
- Addressing
• Screen at 23 campaign - build awareness of
Health Disparities
the recommended Body Mass Index for
screening Asian Americans for diabetes
• Published “ A Call to Action: Eliminating
Diabetes Disparities in Native Communities”
in Clinical Diabetes
• Ten state-level legislative victories addressing
health disparities
• Engaged Telemundo to expand reach in Latino
communities
8
www.diabetes.org/advocacy
1-800-DIABETES
Goal for 2016:
Increase
number of
diabetes
advocates
by 20%
Help Recruit New Advocates
• Opportunities for people to sign up and to
take action at all events
• Identify community members with
relationships with elected officials & invite
them to be diabetes advocates
• Recruit health care professionals and
attorneys for legal advocacy networks
Recruitment cards
for Legal Advocacy
networks.
9
www.diabetes.org/advocacy
1-800-DIABETES
Raise your voice
Advocacy Action Center
• Sign up to receive advocacy updates and
alerts at:
– www.diabetes.org/TakeAction
• Timely information on federal and state
legislation:
• Suggested messages for elected
officials
• Email alerts so you can make your
voice heard on time-sensitive issues
10
www.diabetes.org/advocacy
1-800-DIABETES
American
Diabetes
Association
Advocacy
App
11
www.diabetes.org/advocacy
1-800-DIABETES
2016 Federal
Tier I
Priorities
In all areas, there is an ongoing commitment
to ending health disparities.
Federal Funding for Diabetes Research & Programs
• CDC: Division of Diabetes Translation
• NIH: National Institute of Diabetes and
Digestive and Kidney Diseases
• National Diabetes Prevention Program
• Special Diabetes Programs
• Seek innovative ways to increase overall
federal funding dedicated to diabetes research
and programs.
12
www.diabetes.org/advocacy
1-800-DIABETES
2016
Federal
Tier I
Priorities
13
In all areas, there is an ongoing commitment
to ending health disparities.
Health Insurance
• Ensure public and private health insurance
options, including those under the Affordable Care
Act, Medicare, Children’s Health Insurance
Program, and Medicaid, provide affordable access
to the services, medications, technology, and
education necessary to meet the needs of people
with diabetes and prediabetes.
• Advocate for improved delivery of care through
system reforms that lead to high quality,
affordable, effective, efficient, and collaborative
care for people with diabetes.
www.diabetes.org/advocacy
1-800-DIABETES
2016
Federal
Tier I
Priorities
14
In all areas, there is an ongoing commitment
to ending health disparities.
Prevention
• Prevention of type 2 diabetes for individuals with
prediabetes and in the general population,
including efforts to reduce obesity and improve
nutrition and physical activity.
• Promote regulatory pathway for discoveries that
could prevent type 1 diabetes.
Discrimination
• Ensure fair treatment of people with diabetes,
focusing on employment.
Health Disparities
• Specific initiatives to reduce the disparate impact
of diabetes in minority communities.
www.diabetes.org/advocacy
1-800-DIABETES
2016 State
Tier I Priorities
In all areas, there is an ongoing
commitment to ending health disparities.
Health Insurance Coverage/Protection:
• Public & private health insurance options:
– Affordable access to services, tools &
education needed to meet needs of people
with diabetes & prediabetes
 Includes Affordable Care Act & Medicaid
• Diabetes Cost Reduction Acts
– Oppose efforts to repeal or create loopholes
15
www.diabetes.org/advocacy
1-800-DIABETES
2016 State
Tier I Priorities
In all areas, there is an ongoing
commitment to ending health disparities.
Discrimination Issues:
• Safe at School Legislation
• Law Enforcement
• Private and Commercial Driver’s Licenses
Health Disparities
• Specific initiatives to reduce the disparate impact
of diabetes in minority communities.
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www.diabetes.org/advocacy
1-800-DIABETES
Fighting for
Fairness
Where:
– Schools & Day Care Centers
– Employment
– Prisons and Jails
– Public Places (restaurants, airports)
What:
Provide information, training and resources –
to prevent or stop discrimination:
– For people with diabetes and families
– For lawyers, health care professionals, and
advocates
– For schools, employers, and corrections
facilities
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www.diabetes.org/advocacy
1-800-DIABETES
GETTING HELP
1. VISIT: www.diabetes.org/discrimination
• Free resources for people with diabetes, families,
employers, schools, law enforcement, or public institutions
2. CALL: 1-800-DIABETES (342-2383)
ADA’s National Center for Information and Support
• Representative will send a specialized packet of information,
including a form to request help from a legal advocate
• If challenges persists, the discrimination information/
assistance form can be mailed, e-mailed, or faxed
1-800-DIABETES
18
www.diabetes.org/advocacy
• Individuals who feel they are currently experiencing
discrimination or who have questions about their legal rights
are routed to one of our Legal Advocates, who provide casespecific information and resources
1-800-DIABETES
2016 Legal Safe at School
Advocacy Priorities
• Student Safety
• Student Opportunity
Employment
• Worker diabetes management
• Worker opportunity
• Advocate for science & medicinebased rules & policies
Public Accommodations, Government
Programs and Services
• Diabetes management
• Equal access
• Licensing, airport security, police
custody & detention
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www.diabetes.org/advocacy
1-800-DIABETES
Advocates in Action
CLB
support
is
crucial
to
success
Calendar
• Identifies 8 broad, year-round goals:
• Specific “calls to action”
Local advocacy engagement tactics
• Specific training and support each
month:
For CLB advocacy chairs, other volunteer
leaders and local staff
• Online support library
www.diabetes.org/hometownadvocacy
2020
www.diabetes.org/advocacy
1-800-DIABETES
2016 For all CLB members:
• Recruit for & build advocacy committee & subcommittee
Advocates in
• Meet with elected officials - to learn how:
Action
• www.diabetes.org/congressathome
• Feb & June 2015 webinars
CLB Support
• Open Invitation: Any Advocates in Action Webinar
For CLB Event Chairs:
•
•
•
•
Use Easy Advocacy Checklist for your event
Include Advocacy early in event-planning process
Spread the news about our resources and efforts
Participate in February Webinar
For CLB Communications Chairs:
• Support getting out Advocacy messages
through traditional & social media
• Explore resources at: www.diabetes.org/hometownadvocacy
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www.diabetes.org/advocacy
1-800-DIABETES
Lisa Murdock
Veronica De La Garza
Gary Dougherty
Stephen Habbe
States
•California
• Nevada
• Utah
States
• Arizona
• Arkansas
• Kansas
• Louisiana
•Mississippi
• Missouri
• Nebraska
• New Mexico
• Oklahoma
•Texas
States
• Illinois
• Indiana
• Iowa
• Kentucky
• Michigan
• Minnesota
• Ohio
• West Virginia
• Wisconsin
States
• Connecticut
• Delaware
• Massachusetts
• Maine
• New Hampshire
• New Jersey
• New York
• Pennsylvania
• Rhode Island
• Vermont
Vice President
[email protected]
(800) 676-4065 x7415
Laura Keller
State Advocacy Director
[email protected]
(800) 676-4065 x7207
State Advocacy Director
[email protected]
(800) 676-4065 x6017
States
• Alaska
• Colorado
• Hawaii
• Idaho
• Montana
• North Dakota
• Oregon
• South Dakota
• Washington
• Wyoming
22
www.diabetes.org/advocacy
State Advocacy Director
[email protected]
(800) 676-4065 x4832
Vacant-Temporary Assignments
States
• Alabama-Lisa Murdock
• District of Columbia-Laura Keller
• Florida-Laura Keller
• Georgia-Laura Keller
• Maryland-Veronica De La Garza
• North Carolina-Stephen Habbe
• South Carolina-Stephen Habbe
• Tennessee-Gary
• Virginia-Gary
1-800-DIABETES
State Advocacy Director
[email protected]
617-482-4580 x3457
Questions?
Go to: www.diabetes.org/advocacy
Call: 1-800- DIABETES
Center for Information and Community Support
CONTACTS:
Advocacy Chair:
State Advocacy Director:
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www.diabetes.org/advocacy
1-800-DIABETES