Transcript CIDR presentationx

Camden Integrated Digital Record (CIDR)
CIDR
Camden Integrated Digital Record (CIDR)
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Camden CCG has developed an online record that links health and social care data
together, working in partnership with health and social care providers in Camden. This is
called the Camden Integrated Digital Record (CIDR) system.
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A joined up digital record allows health and social care professionals to view vital
information about you at the right time, and place, to provide you with the best possible
care.
What is an integrated digital record?
The CIDR system currently includes health and social care data from these different sources:
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Camden GPs
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University College London Hospitals (UCLH)
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Royal Free Hospital NHS Foundation Trust (RFH)
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Central and North West London NHS Foundation Trust (CNWL)
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Camden and Islington Foundation Trust (C&I)
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Coordinate My Care (CMC) (part of the Royal Marsden NHS Foundation Trust)
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London Borough of Camden (LBC)
Benefits
What are the benefits of having an integrated digital record?
There are a number of benefits to linking up health and social care information into an integrated
digital record. These include:

Health and social care professionals being able to access the information required to provide
optimal care for you.

Potential safety benefits - as health and social care professionals will be more aware of important
information such as what prescription medications you are taking etc.

You will not have to repeat information about yourself to multiple different professionals improving your care experience.
CIDR Case Study
CIDR
View
Ethel’s test
results
University College London
Hospital (UCLH)
Ethel’s Camden GP
CIDR
View
Warfarin and bad
reaction to morphine
Royal Free Hospital A&E
Medications, allergies
and adverse reactions to
medications from Ethel’s
GP Record
CIDR
View
Hospital Discharge Team
Royal Free
Hospital
Contact details for
Ethel’s care team
Adult Social Care
Ethel’s Home
Ethel’s Camden GP
Adult Social Care
View
Occupational
Therapist details
Ethel receives the
care she needs to be
safe at home
View
Ethel’s Occupational
Therapist
Ethel's’ community
care information
Community
Care
Confidentiality and Security

The CIDR system is designed to provide a high level of both confidentiality and security to the
information that it holds. This includes the transfer, viewing and storage of all information in a secure
environment.

Access to the system and records within this are only provided to approved and authorised users which
are validated by their respective organisations. Access is based on their role and responsibility within
their respective organisation.

Access is limited to only users who have an approved N3 connection.

Access and use of the CIDR system is auditable in regards to access and usage of the system. The
internal audit functions have been developed line with the NHS Care Record Guarantee
Confidentiality and Security
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Only authorised health and social care professionals are permitted to use the CIDR system. There is a
robust process for professionals to be authorised by their organisation before their access is approved.

Staff with permission to use CIDR can only view your record once you have given consent for the
approved organisation to do so.

When a care professional views your record they will only be able to see information available to support
delivering care to you at that time.

All access is strictly monitored to ensure it is appropriate and legitimate.
In emergency cases, where time is limited and pre-defined justifications are met, a care professional may
view a record without explicit consent from the individual (e.g. there is clinical urgency and the individual is
unconscious).
Can I choose not to have an integrated record?
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Yes you can.
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The CIDR system is designed to support your individual wishes in relation to both the creation
of a record and the level of information available.
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You can opt out entirely or you can reduce specific information that can be viewed in the
system.
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If you want to opt out, at any time you can discuss this with you GP practice.
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Alternatively, you can speak to your local NHS Trust (e.g. UCLH, RFH, CNWL and C&I) or the
Camden Council, to stop specific information from being included.
Questions ?
Communications
• Posters and leaflets in practice, pharmacies, libraries
• Slide show and a version of the poster for your practice TV screen
• Communications pack for all practices including FAQ’s
• CCG website contains information and FAQs for the public.
• Patient survey underway
• Patient leaflet (currently being tested with patients)
Resident feedback
• Commissioned community researchers to survey 270 residents across
Camden
• Asked a series of questions to gather awareness of CIDR, views and
opinions on consent and the benefits to integrating records.
• Tested the patient leaflet (to be sent to all Camden residents registered
with a GP) and have incorporated feedback
• In six months will re-survey Camden residents to gauge feedback from
public awareness campaign
• Following slides snapshot of feedback
Q3) Are you aware of the Camden Integrated Digital Record?
Not sure No reply
4%
1%
Yes
25%
No
70%
Base: All respondents (263)
Q4) Based on this information, do you think you would give consent for a health professional to view your CIDR record in
your presence?
Not sure
12%
No, I would not give consent
16%
Yes, I would give consent
72%
Q7) Having now read the leaflet, do you think you would give consent for a health professional to view your CIDR record
in your presence?
Not sure
17%
No reply
1%
No, I would not give consent
13%
Yes, I would give consent
69%
Ethel’s Camden GP
Adult Social Care
View
Occupational
Therapist details
Ethel receives the
care she needs to be
safe at home
View
Ethel’s Occupational
Therapist
Ethel's’ community
care information
Community
Care
Where can I go for further information?
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There is a CIDR website you can visit for more information: cidrportal.camdenccg.nhs.uk
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Camden CCG will publish information about any changes and developments to the CIDR system on the
website.
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If you can’t find the information you need on the CIDR website, you can use the ‘Feedback’ form on the
website to contact the CIDR team at Camden CCG. Or, you can email the team directly:
[email protected]
Questions ?