Transcript Children’s Hospital of WI Guardianship Clinic

Transitioning Pediatric Transplant
Patients to Adult Care
Stacy Boyce, MSW
Pediatric Care Vs. Adult Care
Pediatric Care
 child/family centered
 parental involvement/ensure
compliance
 multidisciplinary
Adult Care
 patient centered
 autonomy/independence
 physician directed (referrals to
other specialists)
Transition Planning
Process
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Transition planning begins at age 14 but can
occur sooner
All team members play an important role
Checklists
Benefits
 Patient becomes more knowledgeable
about medical condition and learns new
skills
 Patient becomes more independent,
confident, and self-sufficient
 Adult providers have expertise in caring
for adults
Knowledge of Medical
Condition
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Describe Chronic Illness
Implications of Illness
CKD Surveys
Where to obtain more information
 Medical Team
 Internet
 Transplant Facebook Page
Managing Health Care Needs
Symptom management
 Daily care
 Learning names and dosages of
medications
 Medication refills
 Scheduling own medical
appointments
 Meeting with health care providers
independently
 Identifying adult providers (PMD)
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Knowledge of Health
Insurance
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Learning about insurance benefits
and length of coverage
Making calls with parent when there
is a question or concern
Applying for other insurance
programs (WCRDP)
Re-applying for Social Security
benefits
Carrying insurance card(s)
Educational/Vocational
Needs
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College
Living Situation (dorm life)
 Peer pressure (sex, drugs, rock &
roll)
 Student Health Centers
 Pharmacy
 Emergency Care/Providers
Work/DVR
 Schedules
 Medical Documentation (letters)
Advance Care Planning
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Advance Medical Directives
Discuss with patients age 18 and
who are decisional
 Purpose, importance, and benefits
 Provide copies to FMLH and other
providers
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Legal Guardianship
Pursue for patients age 18 and
who are non-decisional
 Provide legal documents to FMLH
and other providers
 Resources
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Questions?
Contact
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Social Worker, Stacy Boyce,
MSW can be reached at 414266-7677, [email protected]