Transcript Momcology & CCRF Brainstorming Session

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A partnership to meet the needs of families affected by childhood cancer
What is Momcology?
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An Official 501(c)(3) non-profit organization focused on the Primary caregiver Support
in the pediatric cancer journey
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Momcology is a Community
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Mother’s & primary caregivers of children with cancer
-Members must be legally responsible for child’s care
-This provides an important and necessary sense of trust, security and compassion that
families cannot currently find anywhere else.
- Momcology was created by moms, for moms.
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Connections
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Momcology has made over 5,600 connections between cancer families since founded in 2011
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Momcology coordinates connections by diagnosis, region and specialty interest/care groups.
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Support
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Utilizing the social networking platform has enables 24/7 instant streaming support for families in need.
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Information Sharing
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Members belong to over 150 pediatric cancer hospitals world-wide
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As a result, transparency and flow of information sharing is increasing between leading pediatric cancer
institutions though Momcology members themselves.
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Childhood Cancer Awareness
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Consistently producing unique high-quality gold awareness products that promote unity
MISSION
• Fill the gap of emotional support for mothers & primary
caregivers
• Empower patient families with knowledge
• Help to heal families both during and after treatment
• Spread Childhood Cancer Awareness through impactful
campaigns & Products
vision
• Expand on virtual support groups to include in-person
national momcology sponsored gatherings (retreats &
socials)
*currently underway
• Coordinating helpful services/products for momcology
members through strategic partnerships
• Become the leader in support for families affected by
childhood cancer.
“You need to join Momcology for YOU.”
-Every Pediatric Oncologist at diagnosis
values
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No mother/Primary caregiver should go through a childhood cancer
journey feeling alone.
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Provide safe, responsive, compassionate and healing virtual support
environments
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Identify recurring needs of our member community and make
connections and create services and products to address those needs.
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Act responsibly and in the best interest of each momcology member
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Always encourage members to take all questions and concerns to their
child’s trusted medical care team.
Why does Momcology work?
• No one wants to feel alone
 Childhood cancer is extremely isolating for the whole family
 It can be hard to find connections even within your own hospital due to
healthcare privacy laws. Momcology has broken down the HIPAA barrier.
• Traditional support groups run by hospitals have been
unsuccessful
 Families don’t want to spend more time at the hospital than needed.
 Momcology members can contribute as much or as little as they’d like and still
gain knowledge and support in our groups. No pressure to share.
 Home or Hospital, Momcology support is when and where you need it at all
times.
• Members learn from each other daily
 Mother’s are at the front lines of new information constantly. Momcology gives
them a forum to share with many instantaneously.
• Momcology is trusted
 Our members know we will always guide them in the best interest of their
family. No pressure from other organizations within Momcology, Pure support
from others who truly understand.
Relationship with
Children’s Cancer Research Fund
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Raising money for research is a top priority to Momcology members.
Supporting patient families is part of CCRF’s mission.
CCRF is a national organization that supports research through the
University of Minnesota which is part of the Children’s Oncology Group
Phase 1 & Pilot Consortium, comprised of 21 premier pediatric oncology
programs in the country.
U of M is also an-NCI designated Comprehensive Cancer Center, one of
about 40 in the country.
CCRF has identified that the work of Momcology is positively impacting
pediatric cancer families and wants to support growth.
CCRF is able to support Momcology through donating professional talent,
resources and experience to enhance our combined missions.
Through CCRF, Momcology is able to help educate pediatric cancer families
on new cutting-edge research and what it means to their families now and
in the future.
How Do I Learn More About
Momcology?
www.momcology.org
And connect with us on Facebook and
Twitter