Transcript The UKRDC - an update - Dr Keith Simpson

UKRDC_UKRR_22052014n.ppx
UK Renal Data Collaboration
(UKRDC)
UKRR Birmingham
22 May 2014
Keith Simpson
medical advisor to the UK Renal Registry
[email protected]
UK Renal Data Collaboration(UKRDC)
UK Renal Registry UKRR
Scottish Renal Registry SRR
Renal Patient View RPV
Renal PatientView
UK Registry for Rare Kidney Diseases RaDaR
British Association for Paediatric Nephrology BAPN
NHS Blood & Transplant
Northern Ireland Nephrology Forum
Welsh Renal Clinical Network
UKRDC – draft structure
UKRDC
Website
Board
Members
Projects
IT
suppliers
Terminology
& coding
Infrastructure
UK Renal Data Collaboration
Supports its members to improve use of data to:
1) Care for patients
2) Research
3) Teach & learn
4) Run the services
5) Quality & safety improvement
Renal
Units
UK Renal Data
RPV
Labs
UKRR
SRR
RaDaR
NHSBT
BAPN
Other
National data
.
UK Renal Data Collaboration
Renal
Units
RPV
Labs
UKRR
Warehouse
SRR
RaDaR
10-20
gps
NHSBT
BAPN
Other
National data
.
UK Renal Data Collaboration
Regular meeting with the
UKRDC members
RPV
UKRR
Data sets collected
SRR
RaDaR
10-20
gps
BAPN
.
UKRDC Data Model – bigger picture
UK Renal Data Collaboration
Secure server within N3
InterSystems software
Warehouse
.
Fast
Powerful
Flexible
Expandable
Training
Supported
Translation engine – middle ware
Supports SQL
UK Renal Data Collaboration
Renal
Units
Presentations at
RA Meetings Bournemouth & Glasgow
BAPN annual Meeting – Birmingham
SRR Meeting Ayr
Clinical Directors Meeting – Manchester
Written to all CDs
articles on RA website and UKRR newsletters
Renal IT companies
Plenary session Bristol
Individual meetings at their offices
.
Communications:
What
2 way
Discussions with HSCIC – Leeds –
SNOMED CT for diagnoses & procedures
RCP Health Info Unit –
Clinical Document Architecture
Royal Col path – Lab results – NLMC
Will include ability to send free text
meta data
(when what how, ref range, assay used -possible
How
Encrypted
Logged
HL7 – possibly ‘FHIR’
Request for a new lab test
Send to Dr James Medcalf
JM – Data set group of
UK Renal Terminology Committee:
Check it is new, get NLMC code, confirm meta data, publish on
UKRDC website
Reply to request
Send to Dr Jamie Traynor
JT – Lead UKRDC Data group
Configure storage, reporting, use in derived results
Add to UKRDC database in collaboration with IT experts &
InterSystems
National Laboratory Medicine Catalogue
(cross referenced to SNOMED CT)
Request for a new Diagnosis or Procedure
Send to Dr Afzal Chaudhry
AC – Diagnosis & Procedures group
UK Renal Terminology Committee:
Check it is new, get SNOMED CT code, confirm semantic
relationships
Publish on UKRDC website
Reply to request
Send to Dr Jamie Traynor
JT – Lead UKRDC Data group
Configure storage, reporting, use in derived results
Add to UKRDC database in collaboration with IT experts &
InterSystems
UK Renal Data Collaboration
Renal
Units
RPV
Labs
UKRR
Warehouse
SRR
RaDaR
10-20
gps
NHSBT
BAPN
Other
National data
.
An early project
• D4D Grant
Enabling patients to initiate medicine
reconciliation via RPV
Summary
• A new collaboration for managing data in UK
Renal Medicine
• Using industry standard tools
• Enabling patients to see and contribute to their
medical record
• Enabling our 5 functions
• Support from Patients, Renal units, Renal IT
Industry, NHS, Colleges