Transcript Title – Arial regular 32 pt

Presentation of
European Family Set
Exploitation Seminar -20.09.2013, Budapest
Parents with Intellectual Disabilities EUROPEAN FAMILY SET
 What it is European Family Set (EFS)?
It is compendium, which aimed to collect in one publication all the most
important and the best available materials about parenthood of
people with intellectual or learning disabilities.
 To whom EFS it is addressed ?
Professionals and practitioners (psychologist, special pedagogues,
social worker, disability care worker, midwives etc) working with
parents with disabilities and working with people with intellectual
disabilities in general.
Volunteers who would like to accompany and assist parents with
disabilities.
This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP
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Parents with Intellectual Disabilities EUROPEAN FAMILY SET
Collection of good practices posted in the EFS is
based on the following criteria:
 Materials or educational activities have already been tested and
implemented to the target group with success
 Chosen materials come from the countries of partner
institutions; from English speaking countries (e.g. UK, USA,
Canada, Australia) or other countries where, descriptions could
be found in English
 Available for free ( in majority of cases)
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This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP
Parents with Intellectual Disabilities EUROPEAN FAMILY SET
 Structure of the EFS
 Introduction
 Supported Parenting
 Support programs for parents with intellectual disabilities
 Educational programs for family members, relatives, volunteers
and professionals
 Conclusion and Recommendations
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This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP
Parents with Intellectual Disabilities EUROPEAN FAMILY SET

Introduction

The European Project “Parents with Intellectual Disabilities”

Background

The aim of the EUROPEAN FAMILY SET

Target group of EUROPEAN FAMILY SET

Final beneficiaries - Parents with Intellectual Disabilities



Definition of parents with intellectual disabilities
Short real stories of the parents with intellectual disabilities ( 6 stories with
short recommendations)
Summary of the desk research report in the PID project
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This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP
Parents with Intellectual Disabilities EUROPEAN FAMILY SET

Supported Parenting

What is understood by “good” parenting in general?

Brief sate of art in the field of parenthood among people with
intellectual disabilities


A few word about situation of parents
A few word about situation of practitioners
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This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP
Parents with Intellectual Disabilities EUROPEAN FAMILY SET

Support programs for parents with intellectual disabilities

Sexual education (pre-pregnancy)
Good practices: training from Austria and UK

Antenatal education and development of the parental skills
Good practices: handbooks ( books or DVD), special actions, articles about special
projects

Parenting groups and peer education among parents with intellectual
disability
Good practices: only 2- form Austria and USA. The hardest part for good practises

Hints for Effective education for parents with intellectual disability

Housing and Residential Programs
Good practices: training from Austria, Hungary and Germany.

Advocacy
Good practices only from UK
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This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP
Parents with Intellectual Disabilities EUROPEAN FAMILY SET
 Educational programs for family members, relatives,
volunteers and professionals
 Explanation why support of the family member is so important
 General tips for family members of the people with intellectual
disabilities
 Good practices
 Family Buddies On-line training
 Samples of seminars, handbooks, guidebooks and short tailored
programmes
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This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP
Parents with Intellectual Disabilities EUROPEAN FAMILY SET

Educational Programs and Guidance for
professionals

Summary of the most effective hints how to work with parents
with learning disabilities

Some tips given by professionals working with parents with
learning disabilities

Good practices:



Complex guidelines about support for parents with intellectual disability (
publication, guidelines, trainings).
Guideline focused on sexual and pregnancy issues (handbooks and
guidelines)
Guideline focused on assessment parents with intellectual disability
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This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP
Parents with Intellectual Disabilities EUROPEAN FAMILY SET
 Conclusion and Recommendations
 Conclusion
 Recommended Bibliography ( in English and languages of all
partners’ languages)
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This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP
Parents with Intellectual Disabilities EUROPEAN FAMILY SET
 Evaluation of EFS by target groups
 Draft version of EFS was evaluated by the experts during
Naples meeting in November 2012. All recommendations given
by the experts were introduced to the second version
 Second version was evaluated during Focus Groups in each
partner country in February and March 2013 ( participants:
practitioners, parents, volunteers est.)
 Second version was evaluated also during pilot test in Austria,
Hungary, Spain and Italy in April and May 2013
 All requested comments and recommendations were
implemented to the final version
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This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP
Parents with Intellectual Disabilities EUROPEAN FAMILY SET
 Languages of EFS
English, German, Spanish, Hungarian, Italian, Polish, Romanian and Greek
 How to get EFS?
 Download from the project website: www.pid-project.eu
 Via contact with PID person in your country. She/He will send you a
file
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This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP
Parents with Intellectual Disabilities EUROPEAN FAMILY SET
 Thank you for your attention!!!
 Joanna Szczecińska
Społeczna Akademia Nauk in Lodz ( Poland)
Tel: + 48 42 664 22 78
e-mail: [email protected]
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This project has been funded with support from the European Commission. This publication (communication) reflects the views only
of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
518380-LLP-1-2011-1-AT-GRUNDTVIG-GMP