Transcript User and carer involvement School of Nursing Midwifery

User and carer involvement
School of Nursing & Midwifery
14th April 2014
Dr Sue Ashby
User and Carer Lead
Email: [email protected]
Positioning user and carer group
SERVICE
USER
GROUP
User and carer involvement
DH/
Professional Drivers
Public reports
National and local patient
groups/resources
AD/CH/LD/MID/MH/
RESEARCH Sub grps
User and
carer group
Strategic and monitoring
Volunteers
• Aim to
increase
Guest
speakers
• Established
• ? New
Focus North
West
• Recent
purchase of
services
Everybody’s business - raising the profile of the service user/carer experience of health
care in relation to nurse education and research
Example - Consultation
Service User / Carer Workshops
(Representative all fields of nursing and midwifery)
Keele University
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Appearance - being well groomed was important
Effective communication skills
Getting the ‘right person’ at interview
Attitudes
Professionalism
Knowledge
Being involved (including carers)
‘bulging buttons, untidy hair’
‘good nurses treat service users as people not illnesses’
‘don’t just listen to patients hear what they are saying’
‘students need to know why as well as what and who!’
School of Nursing and Midwifery
love:keele
Shaping the Nurse of
the Future:
Getting it Right
Together
Example - Consultation
Recruitment
• Consultation workshop
– Values based MCQ
– Group scenario
• Service user involvement recruitment days
– Interacting with candidates
– Observing and marking group work
– Providing written evaluation of process
• Service user evaluation of involvement
– ' good understanding of involvement'
– 'felt listened to'
– 'enjoyed the experience very positive'
Example – Teaching
Team-working project
ES - TEAM (Team 16)
Working with Brighter Futures
Extract from students presentation
“Nurses and nursing staff provide and promote
care that puts people at the centre, involves
patients, service users, their families and their
carers in decisions, and helps them make
informed choices” (Manley et al, 2011)
Example – Adult/LD student learning
Extract from Service User presentation
RCN International Conference 2013
‘Reality – What is it like to be involved
in the education of student nurses?’
Reality
My initial fears
• At first anxiety – them and
us
• Stereotyping me to my
diagnosis?
• Too academic for me?
• Does my experience
matter?
My experience
• Eagerness to learn
• Non judgemental attitudes
• Acceptance of the person
• Enthusiasm to understand
• Willingness to see the
‘individual’
Reflections
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Looking forward with hope
Working together in partnership
Reassurance for the future
Recovery
Benefits for all
Benefits for all - student voices
“the ability to see/understand/feel the needs of a service user
presently and in the future”
“positive attitudes in care are key to gaining respect and
positive rapport with patient”
“especially helpful having a service user perspective and input
throughout”
“having a service user gave a good insight and makes you
understand someone's personal experiences of services
provided”
Research
Examples from
http://www.keele.ac.uk/nursingandmidwifery/r
esearch/
Examples recent publications
Ashby, S. (2013) From health crisis to home: an embedded multi-case study of the
experiences and perceptions of older people. Thesis. Keele University Staffordshire.
Green J, Jester R, McKinley R, Pooler A. 2013. Patient perspectives of their leg ulcer
journey. Journal of Wound Care, 58-66.
Read S, Nte S, Corcoran P, Stephens R. 2013. Using action research to design
bereavement software: engaging people with intellectual disabilities for effective
development. J Appl Res Intellect Disabil, vol. 26(3), 195-206.
Ryan S, Lillie K, Thwaites C, Adams J. 2013. 'What I want clinicians to know' experiences of people with arthritis. British Journal of Nursing, vol. 22(14), 808-812.
Questions?
http://www.keele.ac.uk/nursingandmidwifery/usercarer/