Transcript Document
Role Regional Care Development Advisor (RCDA) • Introduction – Anna Conlan Motor Neurone Disease • • • • Terminal disease Incidence: 2 per 100,000 Bradford and Airedale 28 cases Prevalence: 5000 people in UK Motor Neurone Disease • Onset and progression is variable – can progress swiftly • 90%-95% of people have the sporadic form • Adult illness Motor Neurone Disease • Amyotrophic Lateral Sclerosis (ALS) – Most common 65% • Progressive Bulbar Palsy (PBP) – Affects 25% • Progressive Muscular Atrophy (PMA) – Affects 10% Symptoms & Management • Muscle wasting & weakness • Fasciculation (muscle twitching) • Cramps • Spasticity • Pain • Physio & OT • Complimentary therapies • Medication • MND-Riluzole • Antispasmodics Quinine / Baclofen / Zanaflex / Diazepam • (Restless leg-Ropinerole / Cabaser) Symptoms & Management • Speech & swallowing • Speech & language therapy • Saliva & mucus problems • Dietician • Weight Loss • Physio & OT • PEG/RIG • Medication • Saliva control Amitriptyline / Hyoscine / Buscopan / Robinul / Low dose beta blockers / Mucodyne Symptoms & Management • Fatigue • Emotional problems • • • • Counselling Alternative therapies Medication Anxiety Benzodiazepines ie Diazepam / Lorazepam / Midazolam • Antidepressants including amytriptyline / nortriptyline Clues to Respiratory Muscle Involvement in MND • • • • • Breathlessness Poor sleep Daytime Headaches Nocturnal Sweating • • • • Observation Physiotherapy Respiratory assessment Overnight pulse oximetrey • Referral to respiratory consultant Rarely Affected • • • • • • Senses Bowel & bladder function Sexual function Eye muscles Heart muscles Intellect Cognitive Impairment • Manifestations • Management issues • Dementia Diagnosis • Tests may include blood tests, MRI, LP, EMG/NCS, myelogram, muscle biopsy Choking • • • • • Explain cause and management Refer to advice of S< Physiotherapy Management of secretion Review use of equipment Breathing Space Kit Causes of MND? Multidisciplinary Approach Care Development What the Association Contributes Standards of Care • Quality of life for people living with MND • Anna Conlan, telephone: 0845 3751841 • Website – www.mndassociation.org • MND Connect 08457 626262 (lo-call rate) for all. • [email protected] • Leeds care centre 01133926078. Thank you for listening Together We Make A Difference