Transcript Uniting and complementing efforts for civil society involvement in TB

Uniting and complementing efforts for civil society
involvement in TB response: a case of TBEC
August 23, 2016
Yuliya Chorna, Project Manager: TB Advocacy (TB-REP), ICF “Alliance for Public Health”
TB Emergency
• Tuberculosis (TB) is the world’s biggest infectious disease killer.
• Last year 1.5 million people died from TB and 9.6 million people fell ill.
• One-third of a million women, men and children falling ill every year as a
result of the disease in Europe.
• The European Region has the highest rates of drug-resistant TB in the world
and treatment success rates are some of the lowest in the world.
END TB Strategy Pillars and Civil Society Response
Roles of civil society in TB response
 Prevention: promoting healthy life style, awareness raising on symptoms for early
diagnosis, preventive treatment for HIV-positive patients etc.;
 Case-detection: finding patients, often through hard-to-reach groups, TB screening;
 Supporting patients through treatment: (social support, peer to peer, enhancing
social networks, promoting adherence to treatment);
 Servicing as a liason between healthcare staff and vulnerable populations;
 Decreasing stigma and discrimination;
 Engaging community leaders;
 Operational research to define system gaps and influence the decision-making to
address that gaps and to pilot and find evidence of the new models and approaches
 Advocacy.
TB Europe Coalition (TBEC) role and functions
 Informal network created in 2009, operates with the support of the Steering
Committee with informal Secretariats in Brussels, Kyiv and London;
 Civil society TB advocates: around 350 activists across 20+ countries today;
 Active across WHO Europe Region (Western and Eastern Europe and
Central Asia);
 Supported community mobilization efforts and the launch of the #TB people
network which unites TB patients across Eastern Europe and Central Asia;
 Actively involved in the Global TB Caucus Initiative;
 Supports civil society advocacy efforts under TB-REP with the coordinating
role granted to ICF “Alliance for Public Health”, Ukraine (official coimplementer of the National Targeted Social Program to Fight HIV/AIDS in
2014-2018);
:
TB-REP project aims to decrease the burden of TB and halt the spread of drug
resistance in 11 countries in Eastern Europe and central Asia (EECA).
TB advocacy by CSOs under TB-REP aims to:
 Ensuring political commitment for TB control;
 Supporting people-centered approach based on the individual needs of each
patient;
 Prioritizing revision of the existing TB delivery model by expanding
outpatient models of care;
 Advancing service delivery for TB patients at the Primary Health Care
settings;
 Engaging community leaders and empowering key populations to promote
social and structural changes in the fight against TB.
11 countries of the EECA within TB-REP:
1. Republic of Armenia
“Positive People Armenian Network”
2. Republic of Azerbaijan
“Saglamliga Khidmat”
3. Republic of Belarus
Republican Public Association
“Defeat TB together”
4. Georgia
“Georgia Family Medicine
Association”
5. Republic of Kazakhstan
“Kazakh Union of PLWHA”
6. Kyrgyz Republic
“The ANTI-AIDS Association
of legal entities”
7. Republic of Moldova
“ Moldova National Association of
TB Patients “SMIT”
8. Republic of Tajikistan
“Young generation of Tajikistan”
9. Republic of Turkmenistan
N/A
10. Ukraine
Public movement foundation
“Ukrainians against TB”
11. Republic of Uzbekistan
“Republican International & Education
Center “INTILISH””
 The Global TB Caucus is a global network of Parliamentarians founded in 2014;
 This unique international network unites over 1,400 Parliamentarians from 130
countries committed to end the tuberculosis epidemic;
 The goal of the Global TB Caucus is to scale up the response to the TB epidemic
at the national, regional, continental and global levels.
Calls for Action to the National TB Caucuses
 National TB Caucuses established to engage new parliamentarians, increase
collaboration and hold governments to account, to scrutinise spending and
to work more closely with civil society;
 Raise the issue of TB within other political audiences (such as regional selfgovernments) and ensure that it remains an urgent political priority;
 Promote TB as a cross-cutting public health issue to facilitate an integrated
response to the disease addressing clinical and social determinants.
 Promote and protect the human rights of those affected by TB and ensure
policies do not infringe the rights of patients.
 Call the relevant Ministers to report to parliament at least once a year on
progress against the TB epidemic!
Collaboration between networks
 Coordinating country efforts in working with local grantees and doing
advocacy trainings, capacity building trainings and budget advocacy;
 Strengthening efforts for building national civil society coalitions;
 Doing health advocacy together;
 Focusing on integration of the TB and HIV services at the community levels;
www.aph.org.ua
www.aph.org.ua
Thank you!
Acknowledgements: TBEC, APH
5 Dilova st., building 10A, 9th floor
03680 Kyiv, Ukraine
Tel.: (+380 44) 490-5485 Ext. 265
Fax: (+380 44) 490-5489
e-mail: [email protected]; [email protected]
http://aph.org.ua
www.aph.org.ua