Transcript Taking Action In Your State - Ovarian Cancer National Alliance

Taking Action In Your State
Cara Tenenbaum, Esq.
Vice President for Policy and External Affairs
Ovarian Cancer National Alliance
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Why Take Action?
To make changes in
• Federal funding for research
• Awareness of risks and symptoms
• Health care coverage
• Access to therapies
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The Alliance’s Goals
• Expand advocacy
• Maintain/increase research funding
• Improve health care practices
• Raise public and provider awareness
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How the Alliance Takes Action
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Federal appropriations
Federal regulations
Federal agencies
Educational programs
Federal Regulations
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Food and Drug Administration
Social Security Administration
Centers for Medicare and Medicaid Services
Health Reform
Example: Health Reform
• Preventive Services Amendment included in
bill
• Submitted testimony to the Institute of
Medicine
• Met with relevant federal agencies
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Research Funding
Ovarian Cancer Research Funding
$11,857,760
$18,750,000
Non-Profit
OCRP (DoD)
$97,000,000
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NCI
Research Funding
Appropriations Process
• House Dear Colleague (out now)
• Senate Dear Colleague
• Testimony
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Ways to Take Action
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Political Advocate
Research Advocate
Partner Member Group
Survivors Teaching Students: Saving Women’s
Lives®
Advocacy Day on Capitol Hill
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Partner Member Efforts
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State legislation
Build congressional relationships
Awareness of risks and symptoms
Survivors Teaching Students: Saving Women’s
Lives®
Support
Educational programs
Research funding
Events
Attend Town Hall meetings
Panel
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Bev Epps, Ovarian Cancer Alliance of Ohio
Robin Jackson, Ovar’coming Together
Peggy Jennings, Minnesota Ovarian Cancer
Alliance
Michelle Shepherd, Michigan Ovarian Cancer
Alliance
Kelli Zembruski, Wisconsin Ovarian Cancer Alliance