Transcript Slide 1

Community Research Advisors Group
to the
Tuberculosis Trials Consortium
May 16, 2013
Atlanta, GA
Francis A, CRAG member, Site 39
Mike Frick, CRAG coordinator;
Treatment Action Group
Membership Update
CRAG Member
Site location (number)
Barbara Seaworth
San Antonio, USA (63)
Cynthia Lee
New York City, USA (24)
Debra Shelly
Houston, USA (62)
Dorothy Namutamba*
Kampala, Uganda (30)
Ezio Tavora
Rio de Janeiro, Brazil (29)
Francis Apina
Kisumu, Kenya (39)
Laia Ruiz Mingote*
Barcelona, Spain (31)
Carmen Contreras
Lima, Peru (38)
Natalie Skipper
Nashville, USA (70)
Nomampondo Barnabas
Soweto, South Africa (34)
Taharqa Elnour
Cape Town, South Africa (33)
*CRAG co-chair
CRAG Working Group Participation
• CRAG members continue to participate in many working
groups and protocol development teams:
AER
CSG
IQC
LTBI
MDR
PIG
P&P
Ph II
Ph III
Biomarkers
Steering
Committee
• Other working groups should contact CRAG at key
milestones in process for feedback
CRAG Member Achievements since
October 2012
• 2 new Community Advisory Boards (CABs) formed
• Uganda
• Peru
• Co-authored Lancet Infectious Diseases publication on
community engagement in TB research
• “Engaging communities in TB Research,” Lancet ID (2013)
• World TB Day activities and advocacy
• South Texas World TB Day walk / run
• Congressional meetings in Washington, D.C.
• Awareness raising through social media (diamundialtb.org)
CRAG Achievements: Media
“TB’s global resurgence amplifies US risk” Dec 18, 2012
“TB, a neglected disease in Uganda” May 15, 2013
CRAG Achievements: conference
submissions
1. CRAG submitted an
abstract on M&E for
community engagement
in TB research to the
2. Dorothy Namutamba also
submitted an abstracts to
the Union Conference
3. Barbara Seaworth will
present on abstract at the
NTCA annual meeting
Ongoing CRAG activities
• Finalizing an M&E framework for CRAG member activities
• Support from Lakshmy Menon, CDC Field Services and
Evaluation Branch
• Measures CRAG impact across multiple levels:
• TBTC
• Communities
• Trial sites
• Policymakers
• CRAG members
• Measures CRAG impact in multiple domains:
• knowledge
• attitudes
• practices
Ongoing CRAG Activities
1. Advocating for increased access to sutezolid and
rifapentine for TB programs and research consortia
2. Advocating for increased funding and political will for
TB research
- Translated Treatment Action Group TB R&D Funding
Report into Spanish
Upcoming CRAG Activities
1. Supporting Good Participatory Practice guidelines
adoption in TB drug trials
- Workshop on community engagement at Union conference
- NIH R21 Grant on GPP
2. Consulting on S29x informed consent evaluation survey
3. Increasing CRAG involvement in reviewing early drafts
of protocols
4. Increasing CRAG involvement in disseminating
research findings to study participants