Transcript Diapositive 1 - International League Against Epilepsy

Commission on European Affairs
Report - July 2007
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Congresses
Education
Care standards
Research and scientific activities
Communication
European Congress on Epileptology ECE
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Dublin
Warsaw
Florence
Madrid
Vienna
1996
1998
2000
2002
2004
• Helsinki
2006
Post Congress Satellite in St Petersburg
• Berlin
2008
Co-organisation Germany / Israel
• Rhodos
2010
• ????
2012
Selection process to be started Jan 2008
Call for expression of interest from Chapters
Commission on European Affairs
Report - July 2007
• European Congress outcome - Evaluations
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Registrations
Abstracts
Scientific programme
Sponsorship
Expanditures
– Surpluses
CEA budget
CEA and EAC activities
Commission on European Affairs
Report - July 2007
MADRID
2002
VIENNA
2004
HELSINKI
2006
2725
3408
3509
655
842 accepted
Platform: 126
Poster: 703
Registrations
Abstracts
645
Commission on European Affairs
Report - July 2007
Registration fees
Sponsorship / Exhibition
Total income
Helsinki vs Vienna
+ 7%
- 22%
- 6%
Venue costs
Abstract (Book, CD)
……………….
Total expenditures
+ 25%
+ 150% (40 000 /104 000)
……………..
+ 17%
Surpluses
- 36%
Commission on European Affairs
Report - July 2007
• Significant changes in Sponsorship
– Several of the companies that had supported
the ECE for many years were not in a position
to do so for the congress in Helsinki
– In some cases, the sponsors scaled down their
total sponsorship contribution
– At the same time, some companies new to the
field of epilepsy showed an interest in
supporting the congress.
Commission on European Affairs
Report - July 2007
• New modalities of collaboration
– New Drug Symposium
• Schwarz Pharma and Valeant Pharmaceuticals
jointly hosted a satellite symposium
– Orphan Drug Symposium
• Biocodex, Eisai and UCB contributed speakers
and presentations to this Congress session.
Commission on European Affairs
Report - July 2007
• Educational activities
– Educational Courses
– EUREPA activities
– ILAE Commission on Education activities
• Developing guidelines for CEA support
– Miscellaneous contributions
Commission on European Affairs
Report - July 2007
Year
2006
2007
Residential
(pharmacol.)
Eilat
Sept 2-9
Migrating
Course
Serbia
May-June
Contribution to
other courses
S- Servolo
S- Servolo
Baltic Sea
EPODES (Surgery)
Geographical and
Thematic distribution
2008
2009
Eilat
Sept 6-13
Lithuania Czech Republic
S- Servolo
S- Servolo
Brno
19-23 March
New
Commission
Commission on European Affairs
Report - July 2007
• Care Standards - Drugs
– Generics
– Rare epileptic diseases
– Contribution to the colloquium on Status
Epilepticus (London, April 2007) and European
guidelines for the treatment of SE
– European Project on Development of Epilepsy
Surgery Programme (EPODES)
AEDs Developers
Pharma industry
Regulatory
guidelines
R C Trials
Study results
Scientific data
Evidence-based
Assessment / guideline
on AEDs
clinicians
AES
ILAE
Nice
Others
Commission on European Affairs
Report - July 2007
• Contact group with European Drug Agency (EMEA)
– CEA official correspondent of the EMEA
– Exchange of views on AEDs development and use
– Discussions on specific issues like Orphan drugs
– Revision of the EMEA guideline on AEDs in 2007-2008
– Efficacy working Party of the CHMP
– Rapporteurs
– Member state agencies
– Scientific community (Europe, Worldwide, FDA)
– CEA-ILAE through its contact group
EUREPEAN PROJECT ON DEVELOPMENT OF
EPILEPSY SURGERY PROGRAM (EPODES)
Ç.Özkara, W. Emde Boas, I. Rektor, P. Halasz, K. Malmgren,
H. Stefan, C. Baumgartner
A-) Courses: : 19-23 March 2008, Brno (I. Rektor)
Keynote speakers and case presentations by students and tutors
B-) Fellowships: Three months of visiting a center specialized in surgery
– 5 people/year
– Endorsment required for application (fellowship should be part of the
plan of development)
– Holding a position in a “center”
– Host centers prerequists should be identified
C-) Visiting professorships: 1 week
– 3 people / year
– Visit will be on request of the visited center from the host centers
Commission on European Affairs
Report - July 2007
• Research and scientific activities
– Financial support to the MORTIMUS
study
– Support to EURAP, FONDE projects
– Support to the EPICURE prg
– Zurich Update Meeting (2007)
– IGE Symposium,
Bridging basic and clinical sciences,
Antalya-Turkey (2007)
Commission on European Affairs
Report - July 2007
• Political action in favour of Epilepsy Research
– Promote and facilitate Epilepsy Research across the
EU grant procedures
– Defend the presence of Epilepsy-related topics in the
calls for EU grants (FrameWork Prg 7, 2006-2013)
– Need for defining and expressing our research
objectives
Epilepsy research priorities for the next
decade: A representative view of the European
Community
Commission on European Affairs
Report - July 2007
• Communication
– Website
– Global campaign (Thank you for filling the
questionnaire in your files)
– EUCARE
Commission on European Affairs
Report - July 2007
Milda Endziniene (Lithuania)
Alla Guekht, EAC Chair,(Russia)
Cigdem Ozkara, CEA Secretary, (Turkey)
Bettina Schmitz (Germany)
Michel Baulac, CEA Chair, (France)
Meir Bialer, CEA Treasurer, (Israel)
Peter Halasz (Hungary)
Svein Johannessen, EAC secretary, (Norway)
Frederico Vigevano (Italy)
ILAE Financial Office and ILAE Headquarters Office
Commission on European Affairs
Report - July 2007
Commission on European Affairs
Report - July 2007
• Budget
ILAE Financial Office
Commission on European Affairs
Report - July 2007
Commission on European Affairs
Report - July 2007
Commission on European Affairs
Report - July 2007
Miscellaneous
• Zurich Meeting (2007)
• Idiopathic generalised epilepsies
Symposium, Bridging basic and
clinical sciences, Antalya-Turkey
(2007)