Transcript Parkinson`s Disease-Final

Parkinson’s Disease
THE DISEASE AND A STORY OF AN INDIVIDUAL LIVING WITH
PARKINSON’S DISEASE
History of Parkinson’s Disease
• James Parkinson published an essay in 1817 called An Essay on
the Shaking Palsy.
• He also details out the many symptoms of the disease
• This essay helped to make the disease a recognizable
medical condition
• It wasn’t widely acknowledged at the time.
• Jean-Martin Charcot conducted further studies into this
disease from 1868 to 1881
• His studies helped in the understanding of Parkinson’s
Disease
• It was Charcot that helped named the disease after James
Parkinson
What is Parkinson’s Disease?
• Parkinson’s disease is a chronic and progressive deterioration
disorder that causes the neurons in the brain that control
body movement and motor function to breakdown and
eventually die.
• In the brain, a region called the substantia nigra produces a
chemical messenger called dopamine.
• Dopamine functions as a neurotransmitter—a chemical
released by nerve cells to send signals to other nerve cells.
• Without the proper levels of Dopamine, the neurons cannot
communicate properly with other neurons, causing abnormal
brain activity and the individual will start to lose control of
some of their movements.
• Currently, there is no cure for Parkinson’s disease, but there
are treatments available to help ease some of the symptoms
of the disease.
Symptoms
Keep in mind, symptoms can vary from person to person and depend on the disease
progression.
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Tremor: The shaking of a body part
Stiffness or aching of the muscles
Weakness of the muscles
Slow movements or the inability to move parts of
the body quickly
• Difficulty walking due to balance and posture
problems
Complications
Other complications of Parkinson’s disease include:
• Cognitive problems
• Depression and emotional changes
• Problems with swallowing
• Sleep problems and sleep disorders
• Constipation or Bladder problems
• Smell dysfunction
• Fatigue
• Pain
• Sexual dysfunction
Treatment - Medication
• Currently, there are 6 types of oral medications that
are used to reduce the symptoms of
Parkinson’s disease. The effectiveness of these
medications varies per person.
• Often, an individual can spend year trying figure out
what combination of medicine, along with right dose,
will work to relieve their symptoms.
• With medications comes side effects. Side effects
could include: nausea, vomiting, dry mouth,
dyskinesia, confusion, hallucinations, psychosis or
behavioral changes are often called “impulse control
disorders.”
Treatment - Surgery
• Brain surgery is an option when drugs fail to
control the symptoms or cause severe or
disabling side effects.
• Surgery is not a cure for Parkinson’s disease
and drugs are usually still needed after surgery.
• Risk involved with this type of surgery includes
infections, stroke or brain hemorrhage.
Alternative Therapies
• Research has shown that regular exercise benefits people with
Parkinson’s disease.
• Exercises and body movements that require a full range of motion have
been known to reduce stiffness and improves posture, balance, and
gait.
• Exercise helps to decrease stress levels and depression.
• Stress and depression management can improve an individual’s quality
of life.
• Good nutrition and herbal supplements can boost a general well-being.
• Acupuncture, massages, music and pet therapy are also used to reduce
pain and stress in Parkinson’s patients
Interesting facts about Parkinson’s Disease
• Almost 7 million people worldwide have the Parkinson’s disease - studies have found a
higher incidence in developed countries.
• 1 to 1.5 million Americans have been diagnose with Parkinson’s disease.
• 1 in 10 people will be diagnosed with Parkinson’s disease before the age of 50.
• Parkinson's is not prejudiced: it can affect all races, nationality, age, social class and
gender. Although, men are 50% more likely to get Parkinson’s disease then women.
• Parkinson’s disease has affected several famous people, includes but not limited to:
Michael J. Fox, Muhammad Ali, Jim Backus, Vincent Price, and Adolf Hitler.
• In very rare cases, Parkinson’s symptoms may appear in people before the age of 20.
• The exact cause of Parkinson's disease is unknown, but scientists have identified genetics,
the environment, mitochondria as contributing factors.
• Close to 85% of all clinical trials are delayed due to a recruitment of volunteers.
• Currently, there is no blood or laboratory test to predict or diagnose Parkinson's disease.
• Oftentimes, a person will have the Parkinson’s disease for years before symptoms show or
they maybe misdiagnosed.
How does Parkinson’s disease affect our community
Meet Dale and Cindy George
How it Started
• Capt. (Retired) Dale George of Kaysville, Utah served 22 in the Air Force Reserves and
worked 20 (plus) years as a Civil Service employee.
• Dale was diagnosed with Parkinson’s disease shortly after retiring from the Air Force
Reserves. It was fall of 2012 and he was 51 at that time.
• At first, Dale started to experience a slight tremors in his right hand soon after having
surgery to repair his right rotator cuff (right shoulder).
• When Dale asked his Dr. about the tremors, his Dr. dismissed the tremors because he
considered Dale to be a very healthy man for his age.
• One day, Dale was visiting with an Air Force buddy (who happened to be a Sports
Medicine Physician) and he notice the tremors in Dale’s hand and suggested that Dale
get seen by a Neurologist.
Diagnosis and the Impact of Parkinson’s
• As you can imagine, the news of Dale’s diagnosis came as quite a shock and the hard
reality left Dale truly horrified.
• Dale walked around for days in total disbelief, questioning very thing he knew about life.
• For the first time in his life, he was scared of his future and how this would affect his
marriage.
• For Cindy, Dale’s diagnosis of Parkinson’s disease was not a “game changer.”
• She knew that Dale would need a lot of love and support, so she focused on making their
relationship stronger than ever.
• When Dale’s symptoms become a challenge, Cindy has found that patience,
communication, and teamwork all contribute to easing his discomfort.
Dale’s Life Now
Parkinson’s disease has transformed every aspect of Dale’s life.
Physical:
• Dale was always physically active,
now he has to deal with being
slow and rigid.
• The simplest things have become
a chore, like removing his wallet
out of his back pocket.
• His penmanship has become
unreadable and his typing
abilities have slowed drastically.
• His golf game (he jokes) is very
embarrassing.
Mental and Emotional:
• Dale was once a very fluent speaker; now, he
has trouble finding his words.
• Sometimes, when his body doesn’t work,
Dale feels like his mind has been trapped
inside a tomb.
• He now makes a lot of mistakes and has
errors in his judgment.
• His emotions can sometimes take a toll on
him. He can go from happy, to sad, to
depressed, to angry, and back to being happy
again in just a few hours.
Dale- Work Life
Being retired, Dale needed to find things to keep him busy. He wasn’t going to let
Parkinson’s disease get the best of him!
• He found a part-time job working as a test proctor at a local university.
• Inspired by his new journey in life, Dale stared writing a fictional story about Parkinson’s
disease and he’s hoping to make it into a book.
• He started a hobby of repairing antique machines. He’s currently working on rewiring a
Kiss Pinball Machine.
• He formed a Parkinson’s Support for his local community. On average, 60+ people attend
and benefit from this group.
A Simple Message
Dale, like many others who suffer from the
Parkinson’s disease do not want to be pitied
or patronized by others… they simply ask for
patience.
Group Reflection
What we learned about the lives of individuals with Parkinson’s Disease:
• There are 7 million people with Parkinson’s worldwide.
• People with Parkinson’s live with many difficult symptom’s that include: tremors,
stiffness or weakness in muscles, difficulty walking.
• Although there is no known way to stop or reverse Parkinson’s, there are many ways
to attempt to treat the disease:
• 6 types of medicines to reduce the symptoms
• Brain surgery
• Alternative therapies, such as exercise, stress and depression management,
good nutrition and acupuncture
Group Reflection
What we learned about the lives of individuals with disabilities:
• As we learned with Dale George, Parkinson’s can start with tremors in the hand. It
can take multiple doctor visits to properly recognize and diagnose.
• While individuals with disabilities may be restricted in the things they are physically
able to do, they are by no means restricted emotionally. It is important to treat those
with disabilities the same way you treat an individual without a disability!
Group Reflection
What we learned about working as a team:
•Productive and continuous communication is essential to success!
•We used multiple ways of communication, including: texting, Canvas announcements,
and Canvas discussions
•We found that we worked best by making decisions as a group and we made sure that
everyone agreed with the direction we were going.
•Assigning tasks to each person helped make us individually accountable for the project.
•The above helped to prevent unnecessary tension and conflict between us as group
members.
Works Cited
• History of Parkinson's disease. (n.d.). Retrieved Feb 13, 2015. Retrieved from
http://en.wikipedia.org/wiki/History_of_Parkinson's_disease
• Hernandez, Brian. 2011. Online image. Retrieved Feb 15, 2015. Retrieved from
http://blogs.brandeis.edu/flyonthewall/translational-findings-how-fruit-flies-are-helping-us-understand-parkinsonsdisease/
• What is Parkinson’s? (n.d.) Parkinson’s Disease Foundation. Retrieved Feb 15, 2015. Retrieved from
http://www.pdf.org/about_pd
• Unknown Artist. (n.d.) Online image. Retrieved Feb 15, 2015. Retrieved from http://www.doctortipster.com/10064parkinson-disease-symptoms-and-diagnosis.html
• Staff, B. M. (2014, May 28). Complications. Retrieved from Diseases and Conditions Parkinson's disease:
• http://www.mayoclinic.org/diseases-conditions/parkinsons-disease/basics/complications/con-20028488
• Parkinson's Disease - Treatment Overview. (2014, March 12). Retrieved from WebMD:
http://www.webmd.com/parkinsons-disease/tc/parkinsons-disease-treatment-overview
• Copyright © 2014, T. R. (2014). Parkinson’s Disease Medications: Patient Edition. Retrieved from Parkinson's Disease Clinic
and Research Center : http://pdcenter.neurology.ucsf.edu/patients-guide/parkinson%E2%80%99s-disease-medications
• Copyright © 2012, T. R. (2012). Exercise and Physical Therapy. Retrieved from Parkinson's Disease Clinic and Research
Center : http://pdcenter.neurology.ucsf.edu/patients-guide/exercise-and-physical-therapy
Works Cited
• Staff, M. C. (2014, May 28). Alternative medicine. Retrieved from Mayo Clinic Diseases and Conditions Parkinson's disease:
http://www.mayoclinic.org/diseases-conditions/parkinsons-disease/basics/alternative-medicine/con-20028488
•
2008-01-19, B. D. (2008, Jan. 19). Famous People with Parkinson's Disease. Retrieved from Disabled World:
http://www.disabled-world.com/artman/publish/parkinsons-famous.shtml
• Capetonian's, T. (2013, April 09). Patience. Retrieved from Traveling with JC:
http://travelingwithjc.blogspot.com/2013/04/patience.html
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http://menshealth.about.com/od/diseases/f/parkinson_three.htm
• George, D. a. (2015, February 22). Parkinson's Disease. (R. Ivory, Interviewer)
Works Cited
• Parkinson’s Disease Causes. (2015, Feb 20). Retrieved from The Michael J. Fox Foundation For Parkinson's Research:
https://www.michaeljfox.org/understanding-parkinsons/living-with-pd/topic.php?causes
• PhD, R. N. (2008, December 19). Depression Medication for Parkinson’s. Retrieved from Psych Central:
http://psychcentral.com/news/2008/12/19/depression-medication-for-parkinsons/3533.html
• Reviewed By: Harvey Simon, M. E.-i.-C., & Physician, M. G. (2013, June 13). Exercise . Retrieved from Penn State Hershey
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• Staff, B. M. (2014, May 28). Diseases and Conditions-Parkinson's disease Symptoms. Retrieved from Mayo Clinic:
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