Transcript Nutritional And Behavioral Support For People With Down Syndrome

Nutritional & Behavioral Support for
People With Down Syndrome…
Ideas for Improving:
Immune System
Cognitive Ability
Muscle Tone and Slow Metabolism & More
Linda Orso, Former Executive Director
Down Syndrome Association
Angie Thomas, has sister with Down syndrome
Barbara Lagoni , Nutritionist, Cornell University
The Goal for Parents of Children with
Developmental Disabilities
To provide life skills and whatever support we can so that our
children can :’
• Fit into society
• Be happy
• And accepted as a valued member of the community
The purpose of this presentation is :
• To share ideas on guiding and teaching people with DS.
• To understand the role diet and vitamins can play in supporting
their health, their behavior and their cognitive development
linda/barb
Incidence of Down Syndrome
• From 1 in 800 children (2000 ) to 1 in 750 ( 2009) ….
Today --1 in 691
• 400,000 people in US with Down syndrome
• 5000 to 6000 born each year
Incidence is increasing DESPITE the fact that 90% of women end
the pregnancy if pre-natal testing indicates Down syndrome.
• If moms know they will be giving birth to a child with Down
syndrome, they may want to do everything they can to give
their child as much nutritional support as possible .. To help
their bodies be as strong & as healthy as possible. linda
Lydia’s Story
• 35 years old
• Graduated from a community college
• Employed full time at the county
government
• Enjoys writing, cooking, reading, music,
movies, playing basketball, playing the piano
and swimming and dancing
• Made several presentations about her
life and about having Down syndrome
to local schools and parent support
groups.
• Married in April 2013
linda
Health Challenges
With Down Syndrome
• Weakened immune system
Respiratory and allergy issues are common
Slower recovery
• Cognitive impairment
Early dementia
• Slowed metabolism – creates issues with weight and obesity
• Poor muscle tone (hypotonic)
• Joint /arthritis
• Constipation.. Digestive issues (gluten intolerance, food
sensitivities )
• Sleep (apnea, poor sleep habits, difficulty sleeping, tired)
• Dry skin/ eczema
linda
Dietary Recommendations
• Just like everybody else, sugar and refined carbohydrates tend
to deposit fat, especially around the waist.
• Ideal diet includes 6 to 9 vegetables a day.
--the primary source of essential vitamins and minerals
(very little in bread, cookies, meat, dairy …and refined
--carbs and sweets will deplete nutrients at an
astonishing rate diminishing brain function and
weakening the immune system)
barb
Basic Supplement Program for
Children/Adults with Down Syndrome
Start with the Basics -• Vita Lea Multi Vitamin/Mineral
Cognitive Support
• B Complex – for the brain and nervous system & for healthy skin
• Omega Guard (fish oil)– essential for brain & natural anti-inflammatory &
healthy skin
Immune Support
• Optiflora (probiotic) – for intestinal health & immune system
• Vita C – sustained release
Muscle Strength & Weight Management
• Protein shakes with muscle building amino acid leucine
Shaklee 180 Smoothees and Bars, barb
B Complex
• Essential for the brain and nervous system
• Depleted by sugar, refined carbohydrates, caffeine,
alcohol, medications, stress
• Water soluble so must be continually replaced
• Deficiency can cause mood swings, irritability,
nervousness, fatigue, depression, mental
confusion, headaches, anxiety attacks, cracks
at corner of the mouth, hair loss, joint pain.
• Helps reduce sugar cravings
• Found in dark green vegetables, organ meats and
whole grains
barb
Omega Guard/ Mighty Smarts
• Essential for the brain , eyes and joint health
• Helps with ADD/ADHD
• Helps prevent memory loss and depression
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Helps reduce inflammation
Helps reduce triglycerides and cholesterol
Helps raise HDL ( good cholesterol) )
Helps lower blood pressure
Helps reduce plaque and risk of blood clots
Helps improve eczema, colitis, arthritis, multiple sclerosis,
psoriasis, migraines and macular degeneration
barb
DHA-Powered Mighty Smarts™
Dagim
• DHA is an essential omega-3 fatty acid that
affects early brain and eye development
• Studies show that many kids do not get enough
of this important nutrient
• Foods high in DHA—such as sardines, tuna, and
organ meats such as liver—are not kids’
favorites
• Eating large amounts of fish can lead to
unhealthy exposure to mercury and other
environmental toxins, which can be especially
harmful to children
barb
MIGHTY SMART™
Dagim
Supersmart:
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High in DHA Omega-3s for BrainPOWer
DHA helps support concentration, memory,
and vision
100 mg per serving—A level clinically
proven to increase blood levels of DHA in
children ages 4–12
Supersafe:
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Certified organic by Quality Assurance
International†
100% natural, ultra-pure DHA
No artificial colors, sweeteners, or
preservatives
Gluten free
† 75% organic
Great Tasting, Kid Tested, and Kid Approved!
Yummy Orange Chew
barb
Omega 3 Research Study
Improvements in:
attention
behavior
less impulsive
dyslexia
vocabulary
concentration
calmer
depression
60% of the brain is fat
Univ of S Australia
barb
145 children 2005
Omega 3 Fatty Acids…
Shaklee Omega Guard
• Ultra pure, pharmaceutical grade,
full
spectrum of 7 Omega 3 fatty acids
• Reduces risk of heart disease and stroke
But that’s not all…
• Also improves eczema, colitis, arthritis, MS, psoriasis, migraines,
reduces C-reactive protein,
• Important for brain, eyes, joints, helps ADD & ADHD, memory loss
and depression
barb
Omega 3 Fish Oil
ALWAYS SAFE
Industrial Pollutants –PCB’s
“Lawsuit: Disclose PCB
Levels in Fish Oil. Group
Finds Amount of Contaminant
Varies Greatly Among
Popular Supplement Brands”
- CBS May 2, 2010
Optiflora Probiotic System
• Restores beneficial micro-organisms to lower intestines
– lost from antibiotics, diarrhea, chemotherapy,
steroids, and other medications
• Keeps undesirable bacteria and yeasts in check
• Strengthens the immune system
• Triple encapsulation
 protects acidophilus, bifidus, and other probiotics from
stomach acids
angie
Unique, Patented “Triple Encapsulation”
Technology Protects “Live” Microflora
“Live” microflora
Water and oxygen barrier
Stomach acid protection
Only Shaklee has it!
OPTIFLORA™ completely survives stomach acid.
Microflora are then released in the intestine. barb
Who Benefits from Optiflora
flatulence
abdominal cramps
bloating
diarrhea
constipation
digestive disorders
candida yeast issues
colitis
allergies/sinus
acid reflux
antibiotics
steroid medications
bottle-fed babies
low fiber/poor diets
irritable bowel syndrome ear infections
Nutrition and You
Vita Books
Sustained Release Vita C 500 mg
• Sustains whole Vitamin C Complex in the blood stream over 5
hours ( water soluble )
• Depleted by stress, alcohol, smoking, birth control pills,
infections, illness, pollution
• Natural anti-histamine, frequently used in prevention and
treatment of colds & viruses
• Cataracts, ligaments and connective tissue , varicose veins,
wound healing, nosebleeds and bruising
barb
Protein –Builds Healthy Cells &
Stabilizes Blood Sugar
Energizing Soy or Shaklee 180 Smoothees
Or Mealshake Creamy Whey Shakes
• Good protein sources, low in fat & cholesterol,
balanced nutrition
• 1/3 of all essential nutrients
• Soy or whey
• Clinically proven to stabilize blood sugar levels
• Great tasting
barb
Peanut Butter Fudge ( 1 cup peanut butter,
1 cup Energizing Soy Protein, 1/3 cup honey )
Additional Supplements
• Vita D -3 – for bone, immune , heart & brain health.
• Herb Lax – 9 herbs to improve elimination, naturally and gently
• Joint Health Complex – glucosamine and Boswellia helps repair
cartilage and reduce inflammation
• Joint and Muscle Pain Cream-- for immediate pain relief in
sore muscles or achy joints.
• Nutriferon – helps body produce interferon naturally , a key
component of the immune system … natural herbal
formulation … popular with people with allergies and weak
immune systems.
barb
Age-Appropriate Behavior is the Goal.
• What is cute at 6 is not cute at 16
• People with DS often don’t pick up on social cues, so they
must be told directly, kindly and respectfully what behavior is
expected and appropriate
• Explain the behavior you DO want … and not just tell them “
NO or don’t do that” ( this is true of all children ) … regarding
eating with good table manners, using acceptable language,
teach modesty, manners, inappropriate hugging, picking their
nose, etc
• People with DS have feelings and self esteem just like
everybody else … ( Lydia’s presentation to school age kids)
( People with developmental disabilities are more likely to lose
their job due to inappropriate social behavior on the job and
not lack of skill .)
angie
Parenting Tips
• Partner with the teachers, therapists, family so messages and corrections
are consistent and the same language is used.
-- a child who interrupts excessively ex -“
Johnny, give me just one minute so I can finish talking to Mary . Please
wait patiently.”
-- “ escape artists” – very common with DS . Ex child who runs out of
classroom .. After school when no friends to be embarrassed in front of ..
No distractions …. And role play what you want .. With teacher, parent,
therapist present .
• Be the model….in everything you do. They are imitators so be sure they
are imitating behavior you want . ( if you want them to wipe their mouth
when eating or walk around the table while eating or remove their shoes
in the house … then you better also )
• Behavior may reflect a medical condition. ( celiac, stomach aches, ear
aches, etc.. And they may not be able to communicate it to you )
linda
Seek First To Understand Undesirable Behavior …
If they throw things, or hit you or others or refuse to put their shoes on ….
Won’t hold your hand when crossing the street …Or act out in any way ..
Refusing to comply…
Parents first reaction often is to say …” Just do what I say, behave yourself or
time out or punishment, etc “
But --- if we want the behavior to change, we need to understand what is
causing it.
Behavior happens because they have limited options for communicating and
they are expressing an emotion ..
frustration
fear
confusion
sadness
( have difficulty understanding the passing of time )
linda
Behavior
is a form of communication about….
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Health issues
Sensory issues
Fears (“stubborn”)
“The Groove”
Transitioning
Lack of problem solving skills
Low muscle tone (oral-motor
issues)
linda
– Lack of self-care skills
– Environmental changes
– Lack of appropriate
social skills
– Difficulty with auditory
processing
– Lack of ability to
communicate the
problem / wants / needs
Why I Trust My Family To Shaklee
• Loved concept of “ Living in Harmony With Nature “
• Felt products were safer because of the commitment to
science
• Later learned how different Shaklee is because of the quality
testing they do for potency, purity and safety .. Way beyond
what typically occurs in the marketplace.
Angie
People with DS Often Called Stubborn
•
Alert Them Ahead of Time -Because it sometimes takes a little longer to process information,
people with DS function better when they are notified long before a
transition to the next activity occurs… or before any major change.
• Processing information takes longer …so decisions come
slowly especially if it is a new thought … Be patient and give
them time … 10 second rule …
If no response, repeat the question or ask
“ Do you need some help”?
This creates trust and helps eliminates anxiety
and frustration for them.
• Resistance occurs from fear of the unknown
linda
VITALIZER --
S.M.A.R.T DELIVERY
RIGHT NUTRIENTS
RIGHT PLACE
RIGHT TIME
A Good Starting Place
HAKLEE
Vitamins + Minerals
DIFFERENCE
7 Omega 3 Fatty Acids
Full Spectrum
Anti-Oxidants
Anti-Aging Nutrients
Super Active Probiotics
barb
POWERFUL
EXCLUSIVE
12
PATENTS
EFFECTIVE
4
DELIVERY SYSTEMS
12
80
STUDIES
BIO-OPTIMIZED
NUTRIENTS
Lydia’s Current Supplement Program
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Vita-Lea with Iron
Nutriferon
Metabolic Boost
Joint Health Complex
B-Complex
Optiflora
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Vivix
Mental Acuity
GLA Complex
Vitamin D
Osteo-Matrix
OmegaGuard
linda
Build Healthy Bodies for
Happy & Productive Lives
• Clean, healthy diet - Food choices that are
habit-forming, energy building & immunity building
• Adequate, quality sleep – sleep apnea, restless
• Exercise daily – limit TV & sedentary activities
• Avoid toxins – natural cleaners
• Empower with knowledge - to make healthy choices
independently
• Supplement – with quality to provide the additional
nutritional support needed.
barb