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Pediatric Specialty Care
Orthopaedics, Cleft Lip and
Palate, Spinal Cord Injury
Back to School
after
a Spinal Cord Injury
Patricia Mucia, BSN, RN, CRRN
West Virginia School Nurses
November 4, 2016
Objectives
At the conclusion of this program the participant should be able to:
1. Have a basic understanding of Spinal Cord Injuries
2. Describe how a Spinal Cord Injury (SCI) changes normal bodily
functions and activities of daily living
3. Name three important things that challenge a student with a SCI
4. Develop an understanding of Spinal Cord Injury and the role of the
nurse in the school setting.
Central Nervous System & Spine
Brain
Spinal cord
Made of a jello-like substance
Comprised of nerve fibers which
carry messages between the brain and the body
Spine
33 bony structures
Cervical
7
Thoracic
12
Lumbar
5
Sacral
5
Coccygeal
4
C1-C7
T1-T12
L1-L5
S1-S5
fused
Spinal Nerves
Spinal nerves exit from the spinal cord through the vertebrae.
They branch out to supply and receive impulses to each area of
the body.
They are:
Cervical
8
Thoracic
12
T1-T12
Lumbar
5
L1-L5
Sacral
5
S1-S5
Coccygeal
1
C1-C8
Levels of Impairment
Causes of Spinal Cord Injuries
Damage to the spinal cord may be caused by pressure or actual severing
of the cord.
Traumatic injury in children
Motor vehicle crash
Birth injuries
Sports injuries
Diving accidents
Trampoline accidents
Violence ( gun shot/stab wounds)
Falls
Non Traumatic Injuries
Transverse Myelitis
Guillien Barre Syndrome
AVM (Arterio-Venous Malformation)
Surgical Complication
S.C.I.W.O.R.A.
SCI in the USA
276,000 Americans are spinal cord injured.
12,500 new cases each year
Annual incidence-approximately 40 cases per million
in children- 1,455 per year
11.6% of total Spinal Cord Injuries per year
In Children:
60-75% occur in the neck area
20% in the chest or upper back
5-20% in the low back
Acute Care
A traumatic event that results in Spinal Cord Injury is
devastating to the child and the family.
Trauma surgery and Stabilization
Spine Surgery
Halo traction/vest
Associated injuries
Recovery from infectious illness
Intensive care
Respiratory Support
Length of stay: 1970’s = 24 days
since 2010= 11 days
Acute Care
Pediatric Transfer of Care
Contact with Shriners Hospital for Children-Chicago
Philadelphia
Nurse or Social Worker
Sacramento
Discharge planner
Case Manger
Care Coordinator
Medical history
Diagnostic tests
Current condition
Air Medical transport
Cincinnati Shriners Transport
Rehabilitation
Length of stay: 1970’s = 98 days
since 2010 = 36 days
Medical management
Physical Therapy
Occupational Therapy
Nursing
Psychology
Social Work
Discharge planning
Transition to home and community setting
Skin
Skin Care
Prevention of Pressure Ulcers
Occur in all age groups
Occur in hospital, long term care facility and in the home
Serious complication
Medical complications
Malnutrition
Sepsis
Osteomyelitis
Cost
Hospitalization
Surgery
Loss of time in school and/or work
Loss of Skin integrity
Skin
Pressure Ulcer Prevention
Pressure reliefs
Seating evaluation, cushions, pressure mapping
Skin inspection
Education
developmentally appropriate
Repetitive
Safety measures
Skin
Skin Safety
Burns
Food
Cooking
Laptop computers
Radiator or heat vents
Hot pads, electric blankets
Weather : sunburn or frostbite
Positioning of extremities
Clothing and shoes
BLADDER MANAGEMENT
Diseases of the urinary system account for 3.5% of
deaths among individuals with SCI.
Diseases of the urinary system are contributing
factors in another 5.2% of deaths of individuals with
SCI.
Individuals with SCI are 10.9% more likely to die of
diseases of the urinary tract.
Management of Neurogenic Bladder
Management of neurogenic bladder
GOALS
1. Preservation of renal function
2. Prevention of complications
3. Social continence
BLADDER MANAGEMENT
The bladder is interlaced with
smooth muscle, called detrusor.
Two sphincters control the
bladder outlet.
Internal sphincter-smooth
muscle, like the detrusor.
External sphincter-striated
muscle, like skeletal muscle.
BLADDER MANAGEMENT
The ureters propel urine into the
bladder. The bladder is a holding
or storage tank.
500ml=approximate adult
bladder capacity.
150ml=awareness of the need to
void.
400ml=we are seeking an
appropriate toilet.
BLADDER MANAGEMENT
Normal Micturation (voiding)
Bladder filling and emptying requires coordination
between the bladder and the nervous system.
Filling: (sympathetic)- increases tone at the base
decreases tone at neck of the bladder
decreases tone of detrusor muscle.
Emptying: parasympathetic nerves release
acetylcholine near bladder smooth muscle causing
contraction of the detrusor.
tone decreases at the base, relaxing the sphincter to
release urine.
BLADDER MANAGEMENT
Detrusor Sphincter Dysnergia
Bladder filling stimulates the detrusor to contract.
At the same time the sphincter is contracted and
closed causing increased pressure and preventing
the urine from leaving the bladder.
Resulting in:
intermittent voiding, leaking,
incontinence
urinary retention
bladder distention
reflux
BLADDER MANAGEMENT
Neurogenic Bladder
Voluntary control of urination requires
communication between the brain and the lower
urinary tract (bladder).
Without input from the brain, we have “neurogenic”
or “neuropathic” bladder.
Spinal Cord Injury
Any lesion above the sacrum-detrusor areflexia:
inability to contract causing urinary retention.
Spinal Shock-lasts a few months-up to two years.
When reflex returns-bladder is able to contract.
BLADDER MANAGEMENT
Vesicoureteral reflux
occurs when the bladder is
stiff, high pressure, low
compliance
the increased pressure
creates a path for urine to
flow back up to the kidneys
(reflux)
results in hydronephrosis
Management of Neurogenic Bladder
Medical Management
Routine scheduled evaluations with a urologist
Baseline studies:
VCUG
Urodynamics
renal ultrasound
Bladder Emptying
Intermittent Catheterization
Timed Voiding (based on urodynamics results)
Surgical Procedures
Bladder Augmentation
Appendicovesicostomy
Monti
Urethral sling
Medications
Anticholinergics
Antibiotics ( for treatment of UTI or prophylaxis)
BLADDER MANAGEMENT
Urodynamic Studies include:
Uroflowmetry
Cystometry
Urethral pressure studies
Voiding studies
Sphincter EMG
Video urodynamics
Pharmacologic testing
BLADDER MANAGEMENT
Renal Ultrasound
Sound waves create real time images of kidneys &
bladder.
Primary use is to show hydronephrosis.
Also shows kidney/bladder stones, tumors or cysts.
Non-invasive & painless.
VCUG
A real time study of bladder filling and emptying.
A radio opaque solution is used to fill the bladder.
A radiologist is present to assess the flow of the
contrast solution.
If possible, patient voids to empty their bladder at the
end of the study.
BLADDER MANAGEMENT
BLADDER MANAGEMENT
VCUG
voiding cystourethragram
showing reflux and
hydronephrosis
Mitrofanoff Surgical Intervention
Cutaneous Anastamosis
Appendix
Mitrofanoff Principle
• Continence mechanism based on flap valve
• Reservoir pressure is transmitted against wall of conduit
Bladder Management
BLADDER MANAGEMENT
Bladder Emptying
Intermittent Catheterization
Timed Voiding (based on urodynamics
results)
Indwelling catheter
Suprapubic catheter
BLADDER MANAGEMENT
Catheterization:
• Intermittent
achieved by the insertion of a
small diameter tube (catheter)
into the bladder through the
urethra or catheterizeable stoma
and removed after emptying
• Indwelling (foley)
remains in place to drain urine
BLADDER MANAGEMENT
Clean Intermittent Catheterization
prevents bladder overdistention
prevents urethral irritation
allows the bladder to fill and empty naturally
exercises the muscles to prevent shrinkage and
increased pressures.
BLADDER MANAGEMENT
Suggested guidelines
Clean intermittent catheterization- every 4 hours around
the clock until no volumes exceed 500ml in the
previous 48 hours. Then every 4-6 hours while awake.
Overdistended bladder-remove no more than 1000ml at
one time. Rapid changes in fluid balance can release
pressure on the pelvic blood vessels, causing blood
pressure and circulatory changes.
BLADDER MANAGEMENT
Helpful Tips
Size and type of catheter usually
prescribed by a urologist.
Infants- 4-5 french
Older toddlers/preschoolers- 6-10 french
School age- 8-12 french
Adolescents-12-14 french
Adult-14 -16 french
Management of Neurogenic Bowel
Management of neurogenic bowel
GOALS
1. Complete and regular bowel movements
2. Prevention of constipation or diarrhea
3. Continence
4. Independence
Neurologic Impairment
UPPER MOTOR NEURON(REFLEXIC)
(Cervical and thoracic level injuries above T12)
Spinal cord and colon innervations remain intact.
Reflex pathways continue to function.
Loss of conscious sphincter control.
Anal sphincter remains tight.
Reflex peristalsis.
Responds to digital stimulation and stimulant
medications.
Susceptible to Autonomic Dysreflexia.
Neurologic Impairment
LOWER MOTOR NEURON (AREFLEXIC)
(Lumbar and sacral injuries)
Reduced reflex control of anal sphincter
Flaccid bowel
Require more frequent evacuation to remain
continent.
Decreased peristalsis
Increase in transit time
LMN bowel may not respond usual bowel intervention
s: digital stimulation.
Keep the stool well-formed and rectal vault clear to
prevent embarrassing accidents.
BOWEL MANAGEMENT
What is our poop telling us?
Which type do you have?
Which type is ideal?
Bowel Management
CONSISTENCY
Bulky, soft, and formed stool is the goal.
Easiest to evacuate
More likely to be retained
Affected by:
Diet
Fluid intake
Medications
Activity
Supplements
Stimulant laxatives
BOWEL MANAGEMENT
REGULARITY
Maintain child’s previous schedule
Plan 30-60 minutes after a meal (gastrocolic reflex)
Same time every day or every other day
Be loyal to the routine
BOWEL MANAGEMENT
POSITIONING
Sitting upright with trunk supported:
Provides stability
Pelvic floor relaxes
Allows for more complete and timely emptying
Assistance from gravity (physics)
Adequate seat padding to prevent pressure
Management of Neurogenic Bowel
Bowel program provides regular, predictable emptying of the
bowel
Initiated at approximately 2-4 years of age
Necessities for success
PATIENCE-takes time to establish
Regularity frequency and time of day
Privacy
Position; sitting on toilet or commode
Use of medications
Laxatives
Stool softeners
Rapidly acting suppositories
Magic Bullet (bisacodyl in water-soluble medium)
Enemeez (docusate sodium) mini enema
BOWEL MANAGEMENT
RECTAL STIMULATION
Digital stimulation:
stimulates the reflex relaxation of internal anal sphincter and
contraction of the smooth muscle of the rectal vault.
Use water-soluble lubricant on gloved finger(s)
Use a circular motion following the contour of the rectal vault.
Can be repeated every 5-10 minutes until evacuation is complete
Complete evacuation is indicated if two consecutive digital
stimulations yield no more stool.
CAUTION: may cause autonomic dysreflexia
BOWEL MANAGEMENT
BOWEL MANAGEMENT
MEDICATIONS:
ORAL
Osmotic agents: attract fluid into the bowel and cause colonic
distention and peristalsis.
Polyethylene glycol-electrolyte solutions:
MiraLax
Lactulose products
Milk of Magnesia
Stimulant laxatives: alter the transport of electrolytes within
intestinal mucosa, causing water retention and stimulates
peristalsis.
Senekot
Dulcolax
Lubricant laxative: lubricates stool for easy passage.
Mineral oil
BOWEL MANAGEMENT
MEDICATIONS:
RECTAL
Chemical agent to move stool into the rectum for
evacuation
Stimulate peristalsis.
Provide more predictability
Must be retained long enough to melt
Inexpensive
Glycerin
Dulcolax
Magic bullet
Mini enemas
Babylax, pedilax
Enemeez
BOWEL MANAGEMENT
vs
Autonomic Dysreflexia
What Is It?
Life threatening complication
Over reaction of the nervous system in response to a
noxious stimulus below the level of injury
Most commonly occurs in patients with SCI level at T6
or above
Hyper reflex causes vasoconstriction and hypertension
Uncontrolled high blood pressure may cause STROKE,
SEIZURES, and DEATH
Autonomic Dysreflexia
Causes
Bladder
Infection, Foley catheter, plugged, kinked or overfilled
Bowel
Constipation, Impaction
Skin
Pressure ulcers, Burns, Open wounds, Tight or wrinkled
clothing,
Painful stimulation (cuts, bruises, pressure on body)
Temperature changes
Other
Sexual activity, Menstruation, Ingrown toenail
Autonomic Dysreflexia
Clinical Manifestations
Hypertension
Bradycardia
Sweating
Anxiety
Nausea
Goose bumps
Pounding headache
Flushing above the level of injury
Vasoconstriction below the level of injury
Irritability, sleepiness in a young child
Autonomic Dysreflexia
Management of Autonomic Dysreflexia
Remove the cause (empty the bladder, remove
painful stimulus)
Prevention (consistent bowel and bladder
program)
Education (family, community, teachers and aides)
Carry medical alert information (card, bracelet)
Latex Allergy
At risk population
SCI
Myelmeningocele
Health care workers
Prevention
Education
Avoidance of all latex containing devices/materials
School Age (6-12 years)
Industry vs. Inferiority
Characteristics
increasing independence
thinking in more logical terms
Peer approval becoming more
important
Experience lapses in their ability
to perform self-care
Concerned about privacy
Development of self-concept
School Age (6-12 years)
Industry vs. Inferiority
Challenges:
May want to do bladder care
independently, but may need help
Needs reminders to perform care and
chores
May become very embarrassed by
incontinence
Wants to please parents
Peer pressure beginning
Interventions:
Social continence is very important for self
esteem.
Independence should be encouraged.
Proficiency (or direction) with selfcatheterization should be encouraged and
achieved.
Instructions should be written and visual.
Care givers must provide reminders and
encouragement.
Privacy should be provided.
Positive reinforcement and praise for
adherence to schedule and proper technique.
Learn about genitourinary system and dangers
of reflux and UTI’s.
Assist family in providing school with
catheterization technique, schedule and
patient’s level of independence.
Parent should be taught to provide supplies
for managing accidents at school.
Reinforce education about Autonomic
Dysreflexia.
Clean change of clothes should be kept at
school for accidents.
Adolescents (12-19 years)
Identity vs. Role Confusion
Characteristics
Struggling with independence
Concerned with body image and appearances
Think “in the moment,” feel invincible, and may not consider future
effects of current behavior
May experiment with drugs, alcohol, and sex
Acceptance from peers is
a priority and may take
precedence over self-care
Privacy is extremely
important
Adolescents (12-19 years)
Identity vs. Role Confusion
Challenges:
Rebellion
Body image very important
Strong peer pressure.
Does not want to be “different” from peers
May not adhere to bowel & bladder
management schedule
Interventions:
Social continence is essential
Independence with bowel & bladder
management (or direction) achieved
Parents must gradually allow the
adolescent to assume responsibility for
bowel & bladder management
Parents should monitor compliance
Encourage a schedule for self care
rather than “when I feel I need to…”
Continue to reinforce education about
Autonomic Dysreflexia.
Reinforce teaching about Anatomy and
Physiology of the genitourinary system,
especially reflux and prevention of UTI’s.
Discourage intentional constipation
used to prevent accidents
Adolescents (12-19 years)
Identity vs. Role Confusion
Confidence and selfesteem are strongly
impacted by the
challenge of being
incontinent in a
continent world.
Coordination of Care
Comunication
Parents
Hospital personnel (care manager)
IEP/504
Medications at school
Transportation
Preparation and Prevention
Team Work
Enhance Knowledge of the
Transition Process
What happens while in the apartment
Families prepare child for therapy
Therapy and nursing assist families in working out
kinks of home life
Questions arise
A routine begins
Cooking group
The Gap Between Hospital
and Home
Enhance Knowledge of the Transition
Process
What helps families related to discharge planning and transition
Space restrictions
Home schedule development
Confidence in independence of care
Smooth transition to the “real world”
Community reintegration
Questions???????
Thank you
West Virginia
School Nurses
References
Merenda, L.A. & Hickey, K.J. (2005). Key elements of bladder
and bowel management for children with spinal cord injuries.
SCI Nursing, (22)1, 8-14.
Specialty of Rehabilitation: A Core Curriculum.
Bristol stool chart via:
http://www.continence.org.au/pages/bristol-stool-chart.html