CAREGIVER EDUCATION - neosho.edu
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WELCOME
Caregiver you are a gift
Presented by Neosho County Community College
Karla Jamison RN, BSN
This project is funded in part (79%) by a grant under the President’s High Growth Job Training Initiative, as implemented by the
U.S. Department of Labor’s Employment and Training Administration.
CAREGIVER
THE
GIFT OF
CARING FOR OTHERS
CARING FOR YOURSELF
Gift of being a caregiver
This class will assist you to become better at your job as
a caregiver. You will be able to understand how to
assist others without burnout.
You are a gift.
CAREGIVER EDUCATION
This program’s goal is to educate the caregivers.
Enabling caregivers to care for their loved ones, and
themselves.
They will learn techniques to empower themselves to
accomplish this goal with their resources and the
resources of the community.
Goals of Program
1. What types of caregivers are out in the community?
2 . What a caregiver does and what is your worth.
3 . Why more people are choosing home or assisted housing for
their place of care.
4. The impact of care giving on the family and care provider.
5. Direct and indirect costs to the family unit with an ill
member.
6. The impact of loss to all members of the family unit.
7. How to make the daily tasks of care giving easier.
8. How to make the daily tasks of care giving more organized.
9. How modern conveniences can help with care giving tasks.
10. Caring for yourself.
11. The goal of a successful caregiver!
1. What types of caregivers are out
in the community?
Relatives- by blood or marriage
Significant others
1. Friends
2. Lovers
3. Ex-spouse
4. Neighborhood families
5. Church families
Paid Caregivers
Paid caregiver
Someone you pay to care/live with your
loved one
In home interim care
In home based state care for the frail
elderly or developmentally disabled
In your home or assisted living
You can have paid caregivers in your
home or assisted living
Insurance or Medicare/Medicaid paid
caregiver
Short term
Must meet criteria
1. unable to leave home
2. must need a skilled service
1. Therapy –physical, occupational, or speech
2. Nursing-education, injections, wound care,
etc…
3. Need someone to help provide care when
caregiver not there
4. May be co-pay with insurance
6.
7.
8.
Long Term Care Insurance
Is any in home care included?
Is assisted living and nursing home both in
policy?
What is the criteria?
Read the policy !!!
Ask your vendor about services ???
Ask if this is regular insurance coverage or
is it same as medicare services?
Medicaid HCBS services
Criteria
Less than $2000 in assets
Spouses can split assets
Assets can be seized by the state recovery fund if not in
home long enough after use of the funds
Includes all assets: car, house, personal property of value
Who to talk to
Social and rehab services
Area Agency on Aging
Care needs based on need (amount of time given to the
client)
First come first served
Usually a waiting period until funds available
Vendors in this area
Get book from Area Agency on Aging
http://www.agingkansas.org or 800-432-3535
Resource Guide for Seniors
Explore Your Options
Misc. other resources
Lists Nursing Homes , Assisted living, Home Plus
Lists Home Health agencies
Lists Organizations for local area to assist with needs and
where to go
Lists equipment suppliers
Lists your rights, consumer information, financial assistance,
housing, legal assistance, ect…
2. What a caregiver does and
what is your worth?
A. Companion
B. Assist with ADLs
C. Manage needs of
household
D. Liaison
E. Finance assistant
A. Companion
Shoulder to cry on
Hands to hold and person that touches them
Hugs
Physical touch—pat ,contact to skin, backrub, ect…
Visiting daily about everything from personal needs
to illness
daily needs and desires
normal conversation
fears and hopes
B. Assist with ADLs (Activities of Daily Living)
Toileting and incontinent care if needed
Hair care
Bathing
Walking
Transferring- if unable
Using wheelchair for mobility
Dressing
Assisting at meal time as needed
AM and PM care
wash face
brush teeth and floss – denture care
cleanse as needed to prevent body odor
apply toiletries such as deodorant and colognes
reposition as needed—Every 2 hrs
feeding-cooking
Cont.
B. Assist with ADLs
Chauffer
for physician visits or for any
activities or secures rides
Delivery driver for groceries, meds, and ect…
Handles finances
Prepares meals and clean up
Cleans house
Laundry
Medication administration and setup
Organization of care schedule
Decision making for the ill loved one
C. Manage needs of the household
upkeep
on house
upkeep on yard
upkeep on the automobile or securing
other means of travel-(w/c van ect…)
Ensure that bills and utilities continue to
be paid
D. Liaison for the ill patient
Working with Doctors and other healthcare workers
Understanding the disease
Understanding the treatment
Understanding medication regime
Understanding the signs and symptoms of disorders
Understanding death and dying
Communicating with the family members
explaining about disease process
explaining about the treatment
explaining limitations and needs of ill loved one
explaining about medications and usage
explaining to family members about finances and needs
E. Finance Assistant
Checkbook
• deposits
• check account management
Paying
bills
• consumer accounts
• rent or mortgages
• utilities
• taxes
• medical care- physician bills &
medication costs
AVENUES OF ASSISTANCE
Groceries—Special diets can be costly
• Food Pantries
• Angel food program
Toiletries/Laundry Products/etc
• Food pantries at Salvation Army, Churches, and community groups
• These are harder to obtain due to some places are limited on supplies
Medicines
• Medicare D
• Medicine programs
•
•
•
•
Companies-- 90 days supply for lower prices
Drug companies medications - will send with the help of physicians
Physicians offices- samples from med representatives. Especially for short term items like
antibiotics
Community help agencies
SRS has a list
Counties often have programs through misc organizations
Programs to assist with med costs even if minimal costs are difficult
Utilities
• Programs to assist with med costs even if minimal costs are difficult
• Fixed payment plans
• Limited services on phones
• Using LEAP to assist
•
Government program to assist with utilities each year –refunded costs for low income
Budgeting for fixed or limited income when
costs are more expensive than ever before
physician
bills
medication costs
grocery costs
less income than ever before
staying at home instead of working
disability insurances and other
coverage's end
The worth of a care giver !!!
Unable to calculate your worth!!
Too many jobs to imagine the worth!!!
Money could not pay for what you do!!!
Your only payment will be Love and the only way you
would do this is for the sake of Love and Concern for
others above yourself!!!!!
3. Why more people are choosing home or
assisted housing for their place of care
More independence
Want to stay home as long as possible
Personal setting- own room and house things they are comfortable
with
Pets can be close
Family with them or them with family
Can keep personal possessions with them-more space
More choices about what they want to be carried out daily
Can carry out their routine not that of the facility– meal times, bath
times, ect…
Cheaper than Long Term Care
Average Cost of LTC- $ 130 -190 a day
This is for Private Pay --Includes:
Room and Food
No Medication
No Supplies- briefs, dressing supplies, Oxygen, ect…
COMPARE THE COST
Average Cost of LTC- $ 130 -190 a day
This is for Private Pay --Includes:
Room and Food
No Medication
No Supplies- briefs, dressing supplies, Oxygen, ect…
Cost of Assisted Living
High—Specialty Care-$150 a day
Low ---$85 a day
Does not count the special needs that are contracted for the person-these residents
are to be able to be independent
Baths
Medicine setup
Laundry services
Cost of private paid caregivers (often only use as needed or a few hours a day)
Low-$10 hr
High-$15 hr
Cost of a caregiver from agency(often only use as needed or a few hours a day)
Low-$15-20
High-$20-25
4. The impact of care giving on the family
and care provider.
May need to leave job-especially toward end of life
FMLA-Family Leave Medical Act
must work one year at your job
papers must be filled out
no guarantee the job you left will be the one you come back to
Set number of weeks leave- then it is completed
To be paid--may have to use vacation before or during FMLA
To be paid--may have to use sick leave for FMLA
criteria for FMLA
small companies —ask human resources
large companies —ask human resources
The impact of care giving
Loss of income
Loss of work related relationship
Loss of freedom
Exhaustion from 24 hr a day care
Expectations that feel overwhelming
Family members often criticize instead of assist with
cares
5. Direct and indirect costs to the family unit
with an ill member.
Direct Costs
Financial
Time
Freedom
Stress
Sleep
Loss of peace of mind
Increases Stress- uncertain future
Strained relationships– with ill loved one and with other family members
Unexpected expenses
Loss of privacy
More travel- Dr appointment, ect…
Unexpected problems– things that you do not think may occur– family
events even holidays are not the same. –Need a caregiver to stay if you
leave.
6. The impact of loss to all members of the
family unit
Dr Elisabeth Kubler-Ross "On Learning from Death
& Dying“ studied death and dying and found that all
individuals suffer losses in the same way.
Denial
Anger
Bargaining
Depression
Acceptance
The ultimate lesson all of us have to learn is
unconditional love, which includes not only others but
ourselves as well.
7. How to make the daily tasks of
care giving easier.
Bed making
Incontinent Care
Catheter Care
Repositioning
Ambulating Safely
Bathing
Transfers
Infection Control
Medication
Vital signs
8. How to make the daily tasks of
care giving organized.
Get a calendar or a date book
Appointments
When you need to perform procedures
Use as a diary for doctor visits
Record Vital signs
Add to date book- Blood Glucose readings
Weights
Visitors like nurse visits, ect…
Dates others can come to give respite care for
shopping ,ect…
Being Organized
Make a daily routine.
When people are ill it helps them remember what is
going to happen and what to expect. (If they have
memory)
Repeat the same words and schedule--- it keeps
everyone on the same page
Make sure everyone understands it is easier when
everyone that helps does the same routine.
Being Organized
Am Cares:
Wash face and hands
Clean mouth and teeth or dentures
Toilet and refresh perineal area
Clean clothing and bedding as needed
Breakfast
Clothing Protector
Help set up food and feed as needed
Cleanse hands and face
Offer plenty of fluids except if on fluid restriction
Mid Morning
Offer fluids and snacks
Cleanse face and hands after snacks
Offer toileting and cleanse
Noon Meal
Clothing Protector
Help set up food and feed as needed
Cleanse hands and face
Offer plenty of fluids except if on fluid restriction
Being Organized
Mid Afternoon
Offer fluids and snacks
Cleanse face and hands
Offer toileting –cleanse and freshen perineal area
Evening Meal
Clothing Protector
Help set up food and feed as needed
Cleanse hands and face
Offer plenty of fluids except if on fluid restriction
PM Cares– Bedtime Cares
Offer fluids and snacks
Cleanse face and hands after snacks
Offer toileting and cleanse
Back rub
Calm atmosphere
Calming or enjoyable music or sounds like nature sounds-waterfall-rainocean-ect…
9. How modern conveniences can help
with care giving tasks
Lifts
Gait belt
Lift sheets
Lift/Incontinent pads
Briefs
Electric beds
Bedside toilets
Bedside bathing and hair washing
Bedpan/ Urinals/ Catheters
Wet Wipes /warmers
Creams and emollients
Skin Protection area
10. Caring for Yourself
Your needs
Physical
1.
1.
2.
2.
3.
4.
5.
Rest & sleep
Naps
Bedtime
Energy
Nutrition and fluids
Elimination
Oxygen
Emotional
1.
Someone to talk to
2.
Time to yourself
3.
Respite care—time off
4.
Possible needs for medication
1.
2.
3.
4.
Anxiety
Depression
Pain
Your disease processes
Caring for Yourself
Spiritual
1.
Church to become involved
2.
Talk to spiritual friends on the phone
3.
Continue to attend church –get sitters from family and friends
4.
Pray and follow your faith, whatever it is
Gives you strength to carry on
Provides you with comfort and peace in times of trouble
Respite Care
1.
Family and others involved
2.
Schedule changes ahead of time for days off
3.
Schedule weekend caregivers
Paid caregiver
Family caregiver
This will help you be a better care giver
4.
Refreshed
Renewed
Fresh view of situation
11. Goals of Successful Caregiving
Personal Goals
1. What do you want to occur in this situation
2. What will you do after
3. Focus on these goals
What does the family expect of you
1. Your responsibility
2. Family responsibility
3. What if outcome is not as desired
Family meeting and agreement on possible outcomes
Goals of Successful Caregiving
What does the ill loved one want done
1. Living wills
2. Advance directives
3. What they told family and you
4. What will happen if death would occur
1.
Who will handle this
What will happen before occurrence
Hospice –symptom and cost control
Support for all- family and the patient
DOES NOT MEAN YOU HAVE TO DIE!!!
Goals of Successful Caregiving
Live life as you and your loved one would want
Do not live up to anyone else expectations
Enjoy life with illness like you enjoyed life before----
Thing and situations have changed
No Matter What!!
YOU ARE
STILL YOU!!!!!!!!!
Life is Fragile as the petals of these flowers.
Remember to count the blessings.
Remember to savor the wonderful fragrance of
living each day.
Do Not Let Illness
stop you from
Laughing
Crying
Sharing
Loving Others
And Living-Really
Living!!
Thank You