Transcript How we did it - Project HealthDesign

Project HealthDesign
Overview
Patricia Flatley Brennan, RN, PhD, FAAN
University of Wisconsin-Madison
Funded by the Robert Wood Johnson Foundation
with additional support from California Healthcare Foundation
Design the ‘next generation’ of PHRs
Move perceptions of PHRs from static
repositories of information to dynamic,
interactive applications that are a seamless
and integral part of daily life
We needed to move from this…
To this!
Colorado Tablet Video
How we did it:
Project HealthDesign
• $10 million national program
• Funded by the Robert Wood Johnson Foundation, with
additional support from the California HealthCare Foundation
•Administered by a national program office at the University of
Wisconsin-Madison School of Nursing
How we did it:
Project HealthDesign
Nine interdisciplinary teams working collaboratively
over 18 months
Design user-centered PHR applications
Operate on a common technology platform
Explore ethical, legal and social issues
What we learned:
Collecting ‘observations of daily living’
may be the most important feature of PHRs
•ODLs are information that is collected and reported by the patient
 sleep, diet, exercise, mood, adherence to medications
 important to health, but not collected in a clinical setting
•Grantee teams received important feedback
on what kind of ODLs people want to share
and how it affects how they feel
What we learned:
People don’t live from clinical episode
to clinical episode ~ they manage their
health every day
Frequent recording of ODLs empower patients to:
create a more meaningful portrait of their health
Understand and shape daily health decisions
facilitate more productive conversations
with clinicians
What we learned:
A common technology platform for PHR
applications accelerates development,
interoperability and improves security
•Consultants from Sujansky & Associates identified technical requirements
common to all projects and implemented them in a web environment
•The Common Platform demonstrates:
a common technical platform can support a variety of personal health
application tools
“centralizing” common functions reduces implementation time and
increases interoperability among personal health applications
Common Platform
The common platform components (CPCs) are implemented as web
services and exist for storing observations and medications, as well as for
providing authentication, registry, and access-control functions
What we learned:
Users’ ethical, legal, and social concerns
about sharing PHR information
are real, but surmountable
•A team from University of Miami Bioethics Program looked at the ethical,
legal and social issues (ELSI) associated with the grantee projects
•Top three overarching ELSI concerns
Control over access to information
managing privacy rights
shifting shared decision-making to the user
What the teams demonstrated:
Effective PHRs are not about the record, they’re about the
action they achieve:
TRUE Research Foundation and the Diabetes Institute at Walter
Reed Army Medical Center
A diabetes self-management application that captures and analyzes
data and communicates key information cell phones
University of Colorado at Denver and Health Sciences Center
A portable touch-screen computer for older patients or their
caregivers to better manage their medications at home
University of California, San Francisco
An integrated calendar with details of breast cancer patients’
treatment and personal schedules to better understand
their treatment and proactively coordinate their care
University of Massachusetts Medical School
Video
What the teams demonstrated:
Dynamic PHRs operate well beyond the PC
The University of Rochester
A computerized “conversational assistant” that provides patients with
heart disease a “daily check-up”
University of Washington
A system that allows people with diabetes to record their blood glucose
levels, blood pressure, food intake and exercise levels and quickly
upload these readings wirelessly over a cell phone to their clinicians
track
Vanderbilt University
An application for children with cystic fibrosis and their caretakers to
medications, alert parents when doses have been taken, manage
refills, and more. The prototype uses a cell phone which can be
embedded in age-appropriate skins, such as teddy bears or purses
What the teams demonstrated:
Recording observations from everyday life
yields better health
Stanford University
A Personal Health Application (PHA) to help adolescents with chronic
illnesses transition from pediatric to the adult care system assume
greater responsibility for their health and health information
on
Research Triangle Institute International and the Cooper Institute
A Web tool to help sedentary adults become more physically activity based
personalized information about their physical activity level and lifestyle,
generating a customized plan that increases activity
University of Massachusetts Medical School
An electronic diary that supports collection of self-reported pain and
activity data on PDA which will provide patients and their providers with
options for analyzing and displaying the data
Where you can find more information:
www.projecthealthdesign.org