Transcript Being a Proactive Patient

Being a Proactive Patient
Lynda Carlson
Wellness FIG
9/21/2011
Agenda
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Sources for gathering information
Rights as a NYS Resident
Advance Directives
Your Medical information
Personal Health Records
Gathering Information
• The type and sources of information you
gather can help in making informed decisions
about doctors and health care facilities
• It can expose you to different treatment
options available
• It can provide resources for managing chronic
diseases and preventing new diseases
Gathering Information
Quality
• Has your doctor ever been sued?
– http://www.nydoctorprofile.com/
• Has your doctor ever been disciplined?
– http://w3.health.state.ny.us/opmc/factions.nsf
Gathering Information (cont.)
• What is the Report Card of your hospital?
– http://www.healthgrades.com/
– http://www.myhealthfinder.com/
– http://www.hospitalcompare.hhs.gov/hospitalsearch.aspx?AspxAutoDetectCookieSupport=1
• Licensing Requirements
– http://www.op.nysed.gov/
Gathering Information (cont.)
• Resources
– NYS Resources
• NYSDOH: http://www.health.state.ny.us/
• NYS website: http://www.ny.gov/
• http://www.nyc.gov/html/doh/html/home/home.shtml
– Agency for Healthcare Research and Quality
(AHRQ)
• http://www.effectivehealthcare.ahrq.gov/index.cfm/gu
ides-for-patients-and-consumers/
Gathering Information (cont.)
• Joint Commission
– Accreditation for healthcare, like Middle States for
colleges
– 2011-2012 Safety Goals
– http://www.jointcommission.org/standards_information/np
sgs.aspx
– Sentinel Events
• Hospitals strive to limit these events
• http://www.jointcommission.org/sentinel_event_statistics_
quarterly/
Your Rights
• NYS Resources
– NYS Website: http://www.ny.gov/
• Click on Health then Patient Rights
• Patient Bill of Rights
– http://www.nyhealth.gov/professionals/patients/patient_righ
ts/docs/english.pdf
• Rights as a hospital patient
– http://www.nyhealth.gov/publications/1449.pdf
Advance Directives
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Living Will
Health Care Proxy Law
Do not Resuscitate (DNR)
Do not Intubate (DNI)
Living Will
• A written statement about a person’s wishes
regarding medical treatment
• http://www.nysba.org/Content/NavigationMe
nu/PublicResources/LivingWillHealthCareProx
yForms/Living_Will_and_Heal.htm
• http://www.ag.ny.gov/media_center/2005/ja
n/jan31b_05.html
Health Care Proxy Law
• This law allows you to appoint a Health Care
Agent
• This individual will make health related
decisions if you are incapable of doing so
– http://www.nyhealth.gov/professionals/patients/
health_care_proxy/index.htm
– http://www.nyhealth.gov/forms/doh-1430.pdf
Health Care Agent
• Important topics to discuss include:
– Donating organs
– Do not Resuscitate (DNR)
– Use of fluids or medication (e.g., morphine)
– Pain management
• Be sure to provide a copy of the document to
your primary care physician along with contact
information for primary and secondary agent
Health Care Agent Vs. Living Will
• A living will allows a person to make their
medical wishes known
• A health care agent makes medical decisions
for an individual when he/she is unable to
• It is recommended that people have both
documents
• http://www.nyc.gov/html/caregiver/legal_1b.
html
DNR
• Do not resuscitate (DNR) means, for the
patient in cardiac or respiratory arrest, NO
chest compressions, ventilation, defibrillation,
endotracheal intubation, or medications.
• http://www.health.state.ny.us/nysdoh/ems/p
olicy/99-10.htm
Additional Resources
• http://www.ag.ny.gov/bureaus/health_care/p
dfs/EOLGUIDE012605.pdf
Whatever you decide . . .
• Inform your doctors, family members, lawyers
• Make copies for everyone
• Be sure to include contact information
Your Information
• You own your medical information but the
facility owns the media it is contained on (e.g.,
paper, Electronic Health Record)
• You can request your information
– http://www.nyhealth.gov/publications/1443/
• Requesting sensitive information may have
additional requirements
Your Information (Cont).
• You have access to your information
• You can request copies but may be charged a
maximum of .75 in New York State
• You cannot be denied copies if you cannot pay
• You can request corrections to your
information, but it can be denied
• http://www.hhs.gov/ocr/privacy/hipaa/under
standing/consumers/medicalrecords.html
Your Information HIPAA
• Notice of Privacy Practices (NPP)
– You are asked to sign you have received the NPP
each time you visit a doctor
– Very few people read it or are given an
explanation
http://www.hhs.gov/ocr/privacy/hipaa/understandi
ng/summary/privacysummary.pdf
Notice of Privacy Practices (NPP)
The notice must describe:
• How the covered entity uses and discloses
protected health information and that the
entity will get your permission, or
authorization, before using your health
records for any other reason
• The covered entity’s duties to protect health
information privacy
NPP (Cont.)
• Your privacy rights, including the right to
complain to HHS and to the covered entity if
you believe your privacy rights have been
violated
• How to contact the entity for more
information and to make a complaint
Your Information HITECH Act
• Breach Notification Requirements
– Individual notice: contact via phone, email, or
mail; if more than 10 individuals, the entity must
post on their website, major print, or broadcast
media
– Media notice: if more than 500 individuals are
impacted, the entity must utilize media outlets
serving the state as well as contacting the
individuals
Your Information HITECH Act (Cont.)
• Notice to the Secretary
– If a breach occurs of >500 individuals, the entity
must notify the secretary to HHS; if <500, the
entity can notify the secretary on an annual basis
• Business association (BA)
– If a breach occurs the BA must notify the entity
within 60 days
http://www.hhs.gov/ocr/privacy/hipaa/administrati
ve/breachnotificationrule/index.html
Power of Your Medical Information
• When utilized appropriately, our medical
information justifies medication, treatment,
and other healthcare services
• Identity theft via the social security number
• Medical identity theft
– A person uses someone else’s insurance
information for healthcare services
Power of Your Medical Information
(Cont).
• Medical identity theft
– The fastest growing form of identity theft
– 1.4 million have been victimized by medical
identity theft
http://www.insurancefraud.org/medicalidentitythef
t.htm
Personal Health Records (PHR)
• A tool to collect, track and share past and
current information about your health or the
health of someone in your care
• You determine the information to be collected
and shared
• You determine the method for collecting the
information
Content of PHR
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Blood type and emergency contact
Dates and results of tests and screenings
Major illnesses and surgeries, with dates
A list of your medicines, dosages and how long
you've taken them
• Allergies
• Chronic diseases
• History of illnesses in your family
Types of PHRs
• Format: paper, web, or software
• Free or purchase
Benefits
The type of PHR will determine the benefits but
generally:
• Your medical information is preserved
• You can communicate with your physician via
the internet and manage chronic diseases
• Viewing of statements, test results
• Access to your information at all times
Additional Resources
• http://www.nlm.nih.gov/medlineplus/persona
lhealthrecords.html
• http://www.myphr.com/
• http://www.myphr.com/resources/choose.asp
x
• http://www.organizedrecords.com/mypromed
ical_quicktour.asp
• http://www.ahrq.gov/questionsaretheanswer
/
Thank You
Questions?