Transcript Fatal Care

Telling Their Stories
Sanjaya Kumar, M.D., M.Sc., MPH
Karin Janine Berntsen, RN, BSN
THE QUALITY COLLOQUIUM - August 22, 2007
Vision & Objectives:
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Move the healthcare consumer beyond the
statistics associated with medical errors.
Who are the people behind the numbers?
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What are their stories?
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How do errors impact lives of those affected and those that
are involved?
Bringing the consumers to the forefront so they
can relate to the impact of medical errors on the
personal lives of people.
Move the consumer into action.
FATAL CARE
Rationale for “Fatal Care”
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Consumer naivety
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Medical overconfidence
• Assumptions can be deadly.
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Good, non-fiction, literary work exists that is beginning
to bridge the gap between the consumer and caregiver.
• Internal Bleeding - Wachter, Shojania
• Through the Patient’s Eyes - Gerteis, Edgman-Levitan,
Daley, Delbanco
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The Patient’s Guide to Preventing Medical Errors Berntsen
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How Doctors Think - Groopman
• These works mostly emphasize the numbers and statistics.
• FATAL CARE is personal - you, your child, your spouse,
your neighbor, your friend, your mother...
• FATAL CARE - The next step to drive change in how the
consumer interacts in their healthcare to help prevent
medical errors.
FATAL CARE: “Novel” Type NonFiction Stories
The Janson
Directive
Coma
The Scorpio
Illusion
Shock
Critical
The
Bancroft
Strategy
Robin Cook
Robert Ludlum
New York Times bestsellers
On Parrish Island, off the coast of Virginia, lies a psychiatric
facility. Far from prying eyes, it is a government - run hospital
for former intelligence employees in possession of highly
classified information.
Former Consular Operations agent Hal Ambler is one of these
patients whose mind is filled with secrets of state - and is
considered such a security risk that he is kept heavily medicated
and closely watched. But there’s one critical difference between
Ambler and the other patients - Ambler isn’t crazy.
Now he must find a way to escape the facility, find out who put
him there, and uncover the truth of who he was…and why
someone is willing to risk everything to see him dead.
Each chapter tells a different story of a family impacted by a
preventable medical error.
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Three Little Angels: Indiana Babies - Heparin Overdose
Even the Tough Can Fall: Charlie Weis - Surgical Complication
Never Routine: Lewis Blackman - Failure to Rescue
Reading Between the Lines: Trisha Torrey - Misdiagnosis
Critically Wounded: Diana Brookins - Bloodstream Infection
Wrong Turn: Benjamin Houghton - Wrong Side Surgery
You Can Have My House: Johanna Daly - Surgical Site Infection
The Mission: Taylor McCormack - Delay in Treatment
Picking up the Pieces: Diane Ford - PCA Pump Failure
They Are Not Listening: Ken Simon - Wrong Diagnosis
Coming Together: Linda Kenney - Medical Trauma
One of Their Own: Liz Augusta - Near Miss
THREE LITTLE ANGELS
Heather heard muffled yelling and crying from
inside the door, but she couldn’t make out what
they were saying. She felt a gnawing, sick feeling
in the pit of her stomach, like something bad was
about to happen and her body knew it before her
head…Now Heather heard her mother yelling.
“What do you mean? What’s wrong with Thursday
Dawn? What’s wrong with the baby?” Joanna’s
voice became increasingly shrill and hysterical.
“Accident, Hep-a-rin, what did you do to her?”
11% Percentage of medication errors involving dangerous high-alert medications,
such as heparin, morphine, insulin, potassium chloride and chemotherapy agents.
NEVER ROUTINE
By Sunday afternoon, Lewis’ abdomen
hurt worse than ever. His belly grew rigid
and distended. His eyes had a sunken,
hollow look. Alarmed by his condition,
Helen knew Lewis needed to see a doctor
right away. She repeatedly pushed the call
button, but they had stopped answering the
call light in room 749…
NEVER ROUTINE
…As morning broke, the awful pain in
Lewis’ abdomen abruptly stopped. When
the nurse heard this news, she took it as a
positive sign and said, “Oh, good.” But to
Helen it seemed strange, like the eerie
calm in the eye of a hurricane, where things
are temporarily quiet before even greater
trouble lands onshore.
75%
Percentage of U.S. hospitals who still have not implemented a Rapid Response Team (RRT).
Following Each Story…
Sections that provide insight and
help for the consumer.
Fatal points describe
breakdowns in the
process that can lead
to patient harm.
Critical Safeguards
describe steps that a
patient and family can
take to help avoid a
medical error.
Safety Keys are
brief snapshots of
patient resources
and tips.
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A balance of positive and negative outcomes:
• Fatal Care had a potential to be a “downer”.
• Limited fatal outcomes, included near
misses.
• Altered positive and negative outcome
stories.
• Unfortunately, it could have been Fatal Care
Children.
• Limited children to three stories.
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Geographic locations:
• Medical errors happen in every area, city,
country and in-between.
• Contacts came from all over the world limited to U.S. for this book.
• New York City, LA, South Carolina,
Everett Washington, Chicago area,
Portland, Boston
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All size and types of hospitals:
• Medical errors happen in every size
hospital:
• Teaching/University
• Community based hospitals
• Specialty hospitals
• Outpatient centers
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Cross section of type of errors.
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Generally healthy people that received care or
treatment for an illness or injury.
For this book, we did not select chronic illness or
complex, multiple diagnosis case scenarios.
Targeting the general healthcare consumer
who could relate to, or experience a common
medical error.
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Queries for the Stories:
• Fatal Care Website http://www.fatalcare.com/
• PULSE http://www.pulseamerica.org/
• Previous contacts from:
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Public news stories
Mothers Against Medical Errors
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The Patient’s Guide to Preventing Medical Errors
[email protected]
National Patient Safety Foundation
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[email protected]
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Medication errors
Infections
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SSI
Device related infections
Misdiagnosis
Surgical complications
Delays
Wrong site surgery
Near Miss
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Methodology:
• The key method was personal
interviews.
• Written accounts
• Published stories
• Professional education
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Stories:
• Some are in litigation.
• Some had completed
litigation/settlement.
• Others did not have litigation.