Transcript IGA National Patient Support Group Meeting

Scottish Vision Strategy
John Hughes
IGA Development Manager - Scotland
Stirling Management Centre 26th March 2014
© INTERNATIONAL GLAUCOMA
ASSOCIATION (274681) 2009
Charity Registered in England & Wales N°274681, in Scotland N°SC041550
Mission Statement
The International Glaucoma Association is
the charity for people with glaucoma, with
the mission to raise awareness of
glaucoma, promote research related to
early diagnosis and treatment and to
provide support to patients and all those
who care for them.
Charity Registered in England & Wales N°274681, in Scotland N°SC041550
Background
• Glaucoma affects 2.00% of the population
• 80,000 people live with glaucoma in Scotland
• 15% of all ophthalmology NHS new referrals
• 23% of all outpatients f/up appointments are
glaucoma related
Patients on first referral
• 33% of glaucoma referrals are confirmed as having
the disease
• 33% are glaucoma suspects
• 33 % are negative
• This shows that the false positive percentage of
glaucoma referrals is as high as 66%
• These patients could be effectively managed in the
community
Optic disc evidence of Glaucoma
The Treatment Decision
Treatment effect on ganglion cell loss
GCs
remaining
Normal individual
Optic disc
cupping
Glaucoma
patient
Treated
Untreated
Blindness
Lifespan of patient
Time
© INTERNATIONAL GLAUCOMA
ASSOCIATION (274681) 2009
Integrated Visual Field
Awareness
• Glaucoma awareness very low among public
• Knowledge & understanding of their condition
procedures and treatments is also low among
patients themselves
• Patients are not able to fully engage both with their
condition and it’s treatment
• In order for the benefits of treatment to be fully
achieved, it is important that patients understand
the issues and are fully involved in the decision
making process in order to successfully manage
their condition through a lifetime of care
COMPLIANCE/CONCORDANCE
PEOPLE ARE MORE LIKELY TO FOLLOW
TREATMENT REGIMES THAT THEY
UNDERSTAND AND THAT HAVE BEEN CHOSEN
WITH AN APPRECIATION OF THEIR
INDIVIDUAL NEEDS AND LIFE
CIRCUMSTANCES.
THE ASSOCIATION OF THE BRITISH PHARMACEUTICAL INDUSTRY (ABPI 2004)
G. Reardon et al
American Journal Ophth; 2004; 137: S3 – S12.
....... 65% of patients stop taking their eye drops
within 12 months and one major reason is the
difficulty in instilling the drops.
“Patient persistency with topical ocular hypotensive therapy in a managed care population.”
IGA Eye drop concordance Kit :
Creating a Virtuous Cycle
Awareness
Independence
Confidence
Knowledge
Understanding
IGA publish and distribute in print and via their website a wide
range of booklets and leaflets aimed at patients, carers and
professionals. All information is regularly updated, approved by
specialists and free on request
Charity Registered in England & Wales
N°274681, in Scotland N°SC041550
• Help stimulate and organise patient support
groups and organise meetings for patients
where members can hear from experts in
glaucoma and share their experiences
Charity Registered in England & Wales
N°274681, in Scotland N°SC041550
Glaucoma Patient Passport
Summary
• Glaucoma awareness is Very Low.
• Prevalence >2% in population Numerous Risk Factors
• Once Glaucoma is Detected Treatment is Usually very
effective at slowing down rate of sight Loss
• Surgey, Laser, medication 75% treatment consists of
Drops
• Patient education essential for optimum effect.
• Driving and Glaucoma major issue
• IGA Support (Sightline, Literature, Website & PSG’s)
• New SIGN Guideline Coming. Draft on SIGN website