Transcript Cleft Palate X-Linked

Cleft Palate X-Linked
BY: EMILY KARSTEN
Alternative Names
Other names for the Cleft Palate X-Linked
are:
Van Der Woude Syndrome
 Pierre Robin Syndrome

Who is Most Likely to Get This
Disorder?

Cleft Palate X-Linked is most common in
the Asian ethnicity and some of the
American Indian race.
◦ Not as common within the African American
ethnic group.

Cleft Palate is more common amongst
males than females.
Symptoms of Cleft Palate X-Linked
Depending on the level of severity of the Cleft,
the symptoms may as follow:
Difficulties in breathing
 Severe ear infections or hearing loss
 Feeding may be more difficult for those with
a Cleft Palate
 Complications in developing speech
 Dental problems and cavities may be a sign
of a cleft palate as well.

How Common is This Disorder?

Approximately1 out of every 1,000
people are born with a Cleft Palate
Is the Disorder Deadly? Will it
Shorten Lifespan?
Cleft Palate is not a deadly disorder, nor
will it shorten ones life span. It is just an
external defect where the lip did not fuse
together as it normally does.
It may cause brutal ear infections that may
lead to hearing loss, or it can also cause
breathing problems which may worsen
over time
Can You Be Tested for the Disorder? If so,
How and When?
A physical examination of the mouth,
nose, and palate confirms a cleft lip or
cleft palate. Medical tests may be done to
rule out other possible health conditions
(https://health.google.com/health/ref/Cleft
+lip+and+palate)
 This diagnosis can take place as early as
birth of a child

Is There Treatment? Does it Cure or
Treat Symptoms?
Surgery between the ages of six and nine
months is suggested so proper speech
development will occur
 This does typically cure the symptoms.

Support Groups for Cleft Palate XLinked:

CLAPA is a support group organization
within the United Kingdom of Europe

Cleft Palate Foundation out of North
Carolina
Interesting Facts:
The Cleft Palate is the fourth most
common birth defect in the United
States.
 NFL player Peyton Manning has a minor
case of a Cleft Palate
 King Tutankhamun also suffered from a
Cleft Palate

WEBSITES

http://www.childrenshospital.org/az/Site2034/mainpageS2034P0.html

http://www.entnet.org/HealthInformation/cleftLipPalate.cfm

http://www.nydailynews.com/news/world/2010/02/16/2010-0216_king_tut_suffered_from_cleft_palate_club_foot_malaria__and_he_was
nt_murdered_new.html

https://health.google.com/health/ref/Cleft+lip+and+palate

http://www.clapa.com/

http://www.cleftline.org/