Transcript Document

MyICU: An Electronic Patient Engagement Portal for
ICU Patients and Families
Sigall Bell, MD; Tricia Bourie, RN, MS; Samuel Brown, MD*; Sylvain Bruni**; Christina Cain, MPH; Peter Clardy, MD; Michael Cocchi, MD; Juliann Corey, RN, MSN; Erica Dente; Veronica Kelly, RN, BSN; Tae-Eun Kim; Lynn Mackinson, RN, MSN, CCRN;
Kristin O’Reilly, RN, MPH; Stephanie Roche, MPH; Barbara Sarnoff Lee, LICSW; Kate Zieja, BS; BIDMC Moore Executive Committee (*Intermountain Medical Center; **Aptima, Inc.)
The Problem
The ICU environment can be overwhelming to
patients and their families, leaving them vulnerable
to physical and psychological harm. Up to 35% of
ICU patients may have symptoms of post-traumatic
stress disorder (PTSD) after their ICU experience
(Bienvenu OJ, Gellar J, Althouse BM, et al. 2013).
Psychological trauma and the potential for physical
harm can be mitigated by communication-focused,
patient-centered care that promotes patient and
family engagement and honors individuals’ values
and priorities.
Aim/Goal
To implement an electronic patient
portal accessible on an electronic
tablet in ICU patient rooms
Humanize patients by enabling
them to share what is important
to them with their care team
Clarify patients’ and families’
values and preferences for care
Empower patients in decision-making by providing them
with timely knowledge and context about their ICU illness
Communicate a unified plan of care to patients, families,
and providers
Invite family participation in daily care activities
Reduce preventable harms by facilitating patient-sourced
reporting of concerns
Provide tools that help patients reconstruct true
memories of their ICU experience, thereby lessening the
burden of psychological harm
Interventions
 Over 2600 surveys and 3 focus groups conducted with
patients, families, and providers to understand stakeholder
interest in an electronic communication portal
 Consultation with Patient Family Advisory Committee
(PFAC) for input/feedback
 Content development by multidisciplinary team from
BIDMC, Intermountain Health, and Aptima, Inc.
 Subgroup meetings to establish appropriate privacy and
security safeguards
 Ongoing software development/testing to achieve accurate
interface and data feeds between MyICU and other
hospital IT systems
 Tool development to measure impact of MyICU on
patient/family satisfaction, communication and
psychological harm
Results / Progress to Date
Survey participants expressed interest in using an
electronic portal to review and share personal
medical information, access educational resources, get
to know the medical team, and share information
about themselves with their care team.
Focus group participants (ICU providers) endorsed
the use of a bi-directional electronic portal to enhance
patient and family communication with the care team
Lessons Learned
 Patients/families and providers are supportive of
a tool to enhance communication and their feedback
is essential for prioritizing design elements.
 Granting access to MyICU has been challenging
due to privacy and security concerns related to
content and consent issues.
 Consenting and educating patients and families is
time-consuming and will require dedicated staff.
Next Steps
Finalize and execute an implementation strategy
Begin baseline data collection for impact
assessment
Develop instructional MyICU videos for patients
and families
Pilot MyICU in one surgical ICU and one medical
ICU in spring of 2015
This project is funded by the Gordon and Betty Moore Foundation
For more information, contact: Veronica Kelly, RN, BSN;
[email protected]
Communicates a
unified plan of
care to patients,
families, and
providers
This section provides an
invitation for families to
participate in their loved
ones daily activities
The Family Journal is locked and only available
for viewing and editing to the patient and family
This view shows the family journal entries as seen by the patient and family
This section
provides
resources to
patients and
families to better
understand their
treatment and
their
surroundings
while in our ICU’s