Transcript 4 mins - The Heart Failure Policy Network

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and will not be presented on the day.
Please see the main slides for reference
Guiding notes to accompany main slides
Launch of the Heart Failure Policy
(HFPN) Toolkit
29th September 2015, European Parliament,
11.00-13.00 (including lunch and refreshments)
Venue: P4B001
Hosts: MEP Aldo Patriciello (EPP, Italy), MEP Cristian-Silviu Busoi (EPP,
Romania) and MEP Annie Schreijer-Pierik (EPP, The Netherlands)
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Agenda
11.05
11.10
11.20
11.30
11.55
12.20
Welcome and introduction – Aldo Patriciello, MEP (Italy, EPP) (5 mins)
Why policymakers need to pay attention to HF – Nick Hartshorne-Evans,
Pumping Marvellous, UK (10 mins)
An overview of the Heart Failure Policy Toolkit – Dr Pierre Troisfontaines,
Mon Coeur Entre Parenthèses, Belgium (10 mins)
Moderated panel debate on priority actions in Europe and member
states (25 mins)
-Moderator: Ian Duncan, MEP (UK, ECR) (5 min)
-Annie Schreijer Pierik, MEP (Netherlands, EPP) (4 mins)
-Dr Mark Dancy, Cardiologist, UK (4 mins)
-Penilla Gunther, MP, Sweden (4 mins)
-Pascal Garel, HOPE (4 mins)
-Aurélien Perez, European Commission, DG SANTE (4 mins)
Questions and comments from the floor (25 mins)
Concluding remarks – Cristian-Silviu Bușoi, MEP (Romania, EPP) (10
mins)
Lunch / refreshments to be served following the event
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Introduction and welcome (5 mins)
Aldo Patriciello, MEP (Italy, EPP)
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I am delighted to co-host this event with MEPs Cristian-Silviu Busoi and Annie Schreijer-Pierik
We are very grateful to Novartis Pharma AG and St Jude Medical for providing funding for this
initiative.
In 2014, the Heart Failure Policy Network was set up to to lead significant policy changes to improve
the lives of people with heart failure across Europe
The Heart Failure Policy Network is a unique group of engaged politicians – MEPs as well as Members
of national parliaments - working with patient groups, clinicians and other stakeholders, joined
together in the firm belief that heart failure has been a neglected condition for too long.
Today, we are here to launch the Heart Failure Policy Toolkit – a first of its kind, comprehensive
resource for policymakers that outlines why heart failure should be a policy priority, including a 10
point Call to Action endorsed by the members of the Network.
Our objectives for today’s event are to: make heart failure part of World Heart Day, sign our Call to
Action, and to raise awareness of heart failure across Europe
We also hope to have an interactive discussion about what each of us in this room can do about
translating our Call to Action into concrete and sustainable change in your country
It is my honour to welcome the contributors to the Toolkit and distinguished guests who will present
their perspectives – leading into an interactive discussion.
I would also like to thank all members of the Heart Failure Policy Network who have volunteered
their time and energy over the past year - providing their valuable insights and expertise, and for
organising this event today at the European Parliament.
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Nick Hartshorne-Evans, Pumping
Marvellous, UK
Why policy makers need to pay
attention to HF (10 mins)
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Dr Pierre Troisfontaines Mon Coeur
Entre Parenthèses, Belgium
An overview of the HF Policy Toolkit
(10 mins)
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Moderated panel discussion: Priority actions in Europe and
member states (5 mins)
Moderator: Ian Duncan, MEP (UK, ECR)
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We have a unique opportunity today for policymakers, patients and clinicians to come together and
discuss what what is needed at the European, national and local levels to improve the lives of people
with heart failure.
Taking the Call to Action as a starting point, I would like to now lead us into our panel discussion, and
hear from our distinguished speakers about the key policy priorities in heart failure, and how
policymakers can work together with patients – and other stakeholders – to implement the
recommendations in the HF Policy Toolkit.
Making HF a National Priority (4 mins)
Annie Schreijer Pierik, MEP (Netherlands, EPP)
• Until now, HF has largely been considered a forgotten condition. Yet it is one of
the biggest threats to our healthcare systems, with at least 15 million adults
living with HF in Europe.
• One of the key themes in the toolkit is that we need to make HF a national
priority to improve the prevention and care of people with HF.
• Making this happen requires three main actions at the national level:
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National HF strategies with measurable goals - We need to ensure that every
country has a single overarching plan to address the growing burden of HF, either
through cardiovascular and chronic disease strategies or HF-specific initiatives
Public awareness campaigns – We need to encourage ministries of health to work
together with public health authorities, professional societies and patient
organisations to help people recognise the signs of HF and encourage people to
seek appropriate care
Data-driven resource planning – We need to ensure there is systematic collection
of reliable data to improve our understanding of the patient experience of HF and
guide improvements that will make the biggest difference to patient outcomes.
[Draw insights and examples from the Netherlands if possible]
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Timely diagnosis and the delivery of multidisciplinary care (4 mins)
Dr Mark Dancy (UK, Cardiologist)
Timely diagnosis
• Early detection is key in HF – and putting patients on appropriate treatment as early as possible is vital
to help minimise the risk of their HF symptoms getting worse.
• Unfortunately, HF is often not on many healthcare professionals’ radars. As a result, they may not
always recognise symptoms of HF, and patients only get diagnosed once severe damage to their heart
has already taken place.
• Improving healthcare professionals’ understanding of HF is therefore urgently needed.
• Priority 4 of the Heart Failure Policy Toolkit calls for specific training on heart failure for all healthcare
professionals who are in contact with people at high risk of HF.
Multidisciplinary care
• Despite notable improvements in survival rates for people with HF in Europe over the past few
decades, a number of patients still do not receive multidisciplinary care as recommended by clinical
guidelines. And significant differences in outcomes for patients with HF are observed based on where
they are treated.
• The Heart Failure Policy Toolkit calls for all patients with HF, regardless of where they are treated, to
be offered high quality care consistent with ESC guidelines (or national equivalents) delivered by
specialist-led multidisciplinary teams.
• Patients hospitalised for HF should also leave the hospital with a clear discharge plan, a dedicated
contact for follow-up and an appointment to see a HF specialist within 2 weeks of discharge.
[draw from experience in UK if possible?]
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A person-centred approach for every person with HF (4 mins)
Penilla Gunther, MP (Sweden)
• HF is a life-long condition that has a considerable impact on patient’s quality of life and their
caregivers.
• A key goal for healthcare systems across Europe is therefore to help people engage in their
care, prevent worsening of their condition and achieve good health outcomes.
• Person-centred approaches to HF, such as shared decision making, engaging with patient
narratives and personalised care planning, are critical to reduce hospital admissions, ensure
adherence to medication and improve quality of life and morbidity.
• Person-centred approaches mean so much more than just ‘being nice to the patient’. Real and
sustainable change requires a fundamental shift to how services are delivered, as well as the
relationships between healthcare professionals and patients.
• The HF Policy Toolkit calls for:
1. A written care plan that is the starting point for a person-centred approach to their
care
2. Information sharing technology to ensure information does not get lost between
different healthcare professionals
3. Targeted funding for continuous therapeutic education programmes to help engage
patients in self-care.
[draw from personal experience in Sweden if possible?]
Greater investment in tools and resources in primary care
(4 mins)
Pascal Garel, European Hospital and Healthcare
Federation
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Inadequate follow-up and long-term care in primary care for patients living with HF is one of
the key reasons why patients with HF often end up being admitted to hospital.
GPs are usually the first point of contact for patients with HF. However, they often do not have
the time or resources to provide proactive monitoring of their patients, and nurses with specific
training in HF are usually not available to fulfil this role.
If we are to improve outcomes for people living with HF, we urgently need careful workforce
planning and better use of innovative technologies in primary care.
We need governments to evaluate existing professional capacity, roles and remuneration
schemes to ensure dedicated professionals are available to provide personalised long-term care
to HF patients in primary care.
We need all nurses to receive training in HF and, where appropriate, HF specialist nurses to be
officially recognised as a profession with their roles formalised through national accreditation,
professional codes and specific remuneration appropriate to the professional structure of each
healthcare system.
Governments should also invest in implementation of innovations which have proven to enable
self-care by patients and reduce avoidable hospital admissions (e.g. telemonitoring, patient
monitoring devices, self-management technologies).
[Draw insights and examples from HOPE if possible]
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Aurélien Perez, DG Santé,
European Commission
The Commission Perspective (4 mins)
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Concluding remarks (10 mins)
Cristian Silviu Busoi, MEP (Romania, EPP)
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Today’s discussions have been about highlighting the key policy priorities in heart
failure, trying to raise awareness of heart failure, and ensure that people with HF are
given the best possible diagnosis, care and treatment.
The policy priorities contained in the HF Policy Toolkit require concerted action from
policymakers. But they cannot do this alone – and it is important policymakers work
closely with patients to understand their needs, as well as health professionals,
academics and industry – to find equitable, sustainable solutions.
The HF Policy Toolkit and Call to Action are very important starting points, but they are
just a start.
It is up to us as politicians to challenge our colleagues, help raise awareness of heart
failure, and to ensure heart failure is given a rightful place in relevant health policies.
I look forward to continuing our discussions – with you today, and in the months to
come with my colleagues in the European Parliament and in our respective countries.
I encourage MEPs and national policymakers to sign the Call to Action and use the
Toolkit with leading stakeholders in their own countries.
Thank you – please help yourself to lunch.
N.b - these notes are for internal use only, and will not be presented on the day.