Transcript Slides
TCRN F2F Meeting 2016 Roswell Park Cancer Institute • Located in Buffalo, New York • 27 acre main campus and five affiliated sites • Independent, free standing cancer institute since 1898 • NCI designated comprehensive cancer center since 1974 • 133 hospital beds • 3,282 employees • 309 faculty members and over 100 senior scientists • 20 scientific shared resources Roswell Park Cancer Institute • 5,284 hospital admissions, 224,000 outpatient visits, 31,000 patients under active care/year • Cancer Registry Cases In 2015: • • • 4,067 ( analytic class 00-22) 480 (non-analytic class 32: 1st course treatment elsewhere, subsequent treatment at RPCI) 2,160 (non-analytic class 30-43, including consults, e.g., path) • Service/Referral Areas • Primary catchment area: 8 county regions of Western New York, 1.5 M (86%) of RPCI patients • • 48 states 13 foreign countries Current RPCI TIES Statistics • Loaded path reports • Time span: 1995 to 09/2016 • Patients: 90,203 • Reports: 195,174 • 38,372 reports, 2014-9/2016, recently loaded, being QCed • Live HL7 feed every six months beyond 9/2016 • Registered users: 26 IT Tasks Completed since last F2F • Loaded surgical pathology reports from 1/1/2014 to 9/15/2016 • Upgraded to TIES v 5.6.2 • Performed validation of 2002 to 2016 cases uploaded into TIES against Tamtron • Missing reports were re-exported to be included in TIES • IT support, development, and maintenance Next IT Tasks • Run RPCI PHI checker scripts on newly loaded reports (1/1/2014 and 9/15/2016) • QC 2014 - 9/2016 pathology reports • Review and revise errors in reports, e.g., MRNs format and missing names • Website update • Support evaluation and validation of new De-ID tool • Implement LDAP with TIES • Support upcoming development for CR data import into TIES Quality Control • User Audit – 6 months intervals • July 2016 audit – no issues to report • Query Audit – annually • Dec 2015 audit – no issues to report Progress • TIES has been live as 09/09/2015 • 26 active user accounts (14 in 2015) • 4 fellows currently use TIES for research projects • TIES/TCRN Dissemination • Presentation and Demo • Disease Site Research Groups (10) • CCSG Scientific Programs (5) • Fellows • Website, fliers, Mission Magazine article • Pilot Projects Pilot Projects • Skin ulceration in breast cancer staging (Dr. Thaer Khoury) • RPCI & UPitt • Manuscript accepted for publication Oct 2016, Breast Journal: “The Role of Skin Ulceration in Breast Carcinoma Staging and Outcome” TBJ-00372-2016.R1 • Intramammary LN, (Dr. Thaer Khoury) • Research in progress • RPCI, UPitt, UPen, AU Supported External Projects • Demographic characterization of tenosynovial giant cell tumor, AU • Gene expression in endometriosis and endometriosis associated ovarian cancer, UPitt • Margin evaluation in early carcinomas of the oral tongue, UPitt • Skin cancer in post transplant patients, UPitt RPCI Investigators/TIES User Questions/Interest • What other clinical data is accessible? • Would you have molecular results? • Could you also search radiology reports? (Clinical staging) • Can you search other centers data without IRB approval? • Could RPCI investigators search radiology reports loaded in other TIES nodes? • Awareness and level of interest is significantly growing RPCI-TIES/TCRN Team and Roles • Dr. Carmelo Gaudioso, RPCI CoI., Executive TCRN Committee member • Monica Lopez Murphy, TIES Regulatory Administrator and TCRN P & P subcommittee member • Kelly Jans, TIES Regulatory Administrator, user educator • Mayur Sakthivel, TIES IT Administrator, responsible for RPCI TIES IT development Q&A Thanks! Questions-Comments?