Transcript Prostate Cancer The Holistic Approach 26th Congress SIU

EUROPA UOMO
The European Prostate Cancer
Patients Coalition
L. Denis
Monaco, October 6,2006
Europa Uomo: Who?
Coalition of 18 National/Regional Prostate
Cancer Patient Organisations.
Legal, non government (NGO).
Membership:
Legal registration
Patient support activities
Agree manifesto
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Manifesto (I)
1. To find ways and means to promote
quality of life for prostate cancer
patients and their families.
2. To promote the dissemination and
exchange of evidence-based
information on prostate cancer.
3. To promote prostate awareness and
appropriate diagnosis and prognosis.
Keywords: QoL, Evidence-based, Awareness
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Manifesto (II)
4. To emphasise the need for appropriate
early detection.
5. To campaign for provision of and
access to optimum treatment.
6. To ensure quality supportive care
throughout and after treatment.
7. To promote multiprofessional quality
care and appropriate medical
infrastructure.
Keywords: Early detection, optimal treatment,
quality & multiprofessional care
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Manifesto (III)
8. To acknowledge good clinical practice and
promote its development.
9. To ensure that all men fully understand any
proposed treatment options, including entry
into clinical trials and their right to a second
opinion.
10. To promote the advancement of prostate
cancer research.
Keywords: Good clinical practice, clinical trials,
prostate cancer research
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HOLISTIC MEANS:
Optimal Medical Treatment
We need information, education.
Multiprofessional expertise and patience
required.
+
Patient Centered Care
We need psychological, emotional, social
support / contact required.
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The Lost Patient
Contradictory information
(doctor, media, friends)
Statistics
Outcomes
not comparable
Loss of personality in the
process
A lot of experts
?
Unflexible guidelines
Evidence Based Oncology
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Doctor/Patient Partnership
Expectations:
Results:
One shop info stop
Clear choice and control
Time to decide
Outcomes and QoL
Access to clinical trials
Contact multiprofessional team
Informed, involved patient
Prostate passport
Patient satisfaction
Patient defined QoL
Discipline and political support
Overall progress medical care
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Europa Uomo Partnerships
European School of Oncology
International Consultation Urological Diseases
European Coalition Cancer Patients
European Association of Urology
International Prostate Health Council
European Society Medical Oncologists
International Union Against Cancer
Global Prostate Health Coalition
2004
2004
2004
2005
2005
2006
2006
2006
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Our immediate request
Support/create patient organisations
Early diagnosis vs. overtreatment
Carefull choice of primary treatment based on
available prognostic factors
Prevention metastatic disease
Sustained hope of HRPC treatment
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The survival of the Hippocratic
oath and patient respect in the
complexity of medical technology
and multiprofessional care remain
an integral part of our civilization
and medical progress.
OCA, 2006
Europa Uomo
Secretariat OCA
Lange Gasthuisstraat 35-37
2000 Antwerp – BELGIUM
Tel.: +32.3.223.53.54
Fax.: +32.3.223.53.52
E-mail: [email protected]
Web:
www.cancerworld.org/europauomo