Transcript General OTIS presentation 1

ORGANIZATION OF
TERATOLOGY INFORMATION
SPECIALISTS
Sharon Voyer Lavigne, MS
Coordinator, CT Pregnancy Exposure
Information Service
President, OTIS
North American Network of
Telephone Services
– Based in universities, hospitals and health
departments
– 18 sites throughout U.S. and Canada
– Provide services to approximately 100,000
women or health care providers each year
– Pregnancy and breastfeeding exposures
Teratology Information Services
(TIS)
Comprehensive multidisciplinary resources
Access to numerous specialists in:
- teratology, dysmorphology,
- toxicology, pharmacology,
- epidemiology, infectious diseases,
- clinical genetics, obstetric / maternal fetal medicine,
- radiation biology, occupational and environmental
health
No cost services available to health-care providers and
patients
Organization of Teratology
Information Specialists
Health care providers including:
– Genetic counselors
– Physicians
– Nurses
– Public health educators
– Pharmacists
– Social workers
– Other specialties
TIS’s Provide
Service – Toll-free phone consultation to
patients or health care providers about
exposures during pregnancy
Education – to public and academic groups,
including medical, nursing, genetic counseling,
pharmacy and others
Research – collaborative projects looking at
outcomes of exposures to specific agents
SERVICE
Telephone or in-person consultations that
are free-of-charge and confidential
Current data and risk assessment
Information to help women make informed
reproductive choices
Who calls a TIS:
CALLER PROFILE:
1%
2% 4%
Patients
Health Care Providers
Relatives
General Public
Breastfeeding Mothers
47%
46%
4%
2%
1%
47%
46%
Common Exposures:
Medications
Occupational Agents
Environmental Agents
Drugs of Abuse
Maternal Illness
Herbal Products
Radiation
58%
17%
8%
6%
4%
4%
3%
3% 4%
4%
6%
8%
58%
17%
Reproductive Status:
Pregnancy
Preconception
Breastfeeding
Not specified
Paternal question
74%
9%
8%
6%
3%
3% 6%
8%
9%
74%
Developing a Risk Assessment
Essential information:
– Timing
– Dose
– Family, medical and pregnancy history
– Other exposures
Literature Review
Databases – REPROTOX, TERIS,
Reprotext, Shepard’s Catalog
Books – Briggs, Gleicher, Shardein, Hale
Drug Compendiums, PDR, PDR for Herbals
Journal articles
Providing a Risk Assessment
Collection of data on specific agent
Interpretation of data based on intake
information
Elicit callers’ knowledge and source
Discuss 3-5% background risk
Review risk vs. benefit
EDUCATION
Public and health care provider workshops,
seminars or lectures
Student lectures (high school, college, etc)
Fact Sheets (http://www.otispregnancy.org/)
Professional education
– Annual Education Conference
– OTIS/Teratology Society/NBTS Joint
Workshops
RESEARCH
Autoimmune Diseases in Pregnancy
Discontinuation of Antidepressant Medication
During Pregnancy
West Nile Virus and Pregnancy
Vaccinations in Pregnancy
CDC Pilot Project
Isotretinoin Pregnancy Prevention Survey
OTIS and CDC
– Grant funding for annual OTIS
educational conference
– Hurricane Katrina Project
– Pilot Project for a Pregnancy and
Lactation Monitoring System
www.otispregnancy.org
National Phone Number:
(866) 626-OTIS
(866) 626-6847