Transcript REDCap Training - Penn State Hershey Medical Center

Research Tools
Brought to you by the
Clinical and Translational Science Institute
Presented by:
Terri Shkuda
Systems Analyst
Research Informatics
The Penn State Clinical & Translational Research Institute, Pennsylvania State University CTSA,
NIH/NCATS Grant Number UL1 TR000127
Clinical Translational Science Institute
(CTSI)
Funded by the NIH
 Goal: to develop, implement and provide,
new methods to predict, prevent and
effectively treat human disease.
 PSU’s CTSI supports researchers with a
set of tools to accomplish these goals.
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Research tool continuum
Electronic
Data Capture
i2b2 Cohort
Discovery Tool
Hypothesis
Data capture
Collaboration
Research
Networking
Publication
Analysis
Statistics
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i2b2’s Fundamental Purpose
Cohort identification - Users search a de-identified database,
to determine the existence of a set of unique patients
meeting specified criteria.
The dataset contains de-identified data for over 680,000 unique
patients, from our EMR, billing systems and other smaller
datasets including:
 Demographics
 ICD-9 diagnosis and procedures
 Lab tests
 Medications
 Visit types (inpatient, outpatient, emergency, etc.)
 Cancer staging
 Biorepository sample availability
 Dates associated with each event above
There is NO IRB approval needed for access to this dataset.
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Typical i2b2 Scenario
Query database to see if there is a relationship
between iron deficiency anemias and mood disorders.
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i2b2 Additional Tools
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Once the cohort has been established…
◦ Demographics visualization tool
◦ Timeline tool for visualizing the timing of the
events of the concepts
◦ Export tool for exporting data existing in
i2b2.
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REDCap – Electronic Data
Capture for Research
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Create forms for data entry and surveys
Surveys delivered to participants
electronically
Reuse of forms for multiple events/arms for
repeated measures such as lab results
Data export to common statistical
packages with de-identification tools
Data import from Excel; great for
retrospective chart reviews
Real time quality rule checks and post
collection data query resolution
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Reporting & Exporting Data
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Exports to most common statistical packages
• De-identification Options
o Automatic removal of pre-specified identifiers,
selected by you during data capture but not
relevant to analysis
o Date Shifting
• Develop quick reports for quality control
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Security & Integrity
Audit logs
 Role-based user rights
 Regularly scheduled network security
scans
 Data stored in the Data Center and
backed up nightly
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REDCap Demo
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Scenario
◦ Create a longitudinal project containing
surveys using a template
◦ Modify a form
◦ Enter data
◦ Send a survey invitation
◦ Record Status Dashboard
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Profiles
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Profiles is a research networking and expertise mining
software tool to search faculty information
containing:
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Name
Title
Affiliations
Contact Information
Publications
Awards
Narratives
Photo
Additionally, it contains network and connection
pages with visualization tools to view a person’s areas
of research and how they are connected to others.
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Profiles
Useful for learning about faculty research
interests and areas
 Can contact faculty if seeking a mentor
and see if an MSR project is available
 Provides opportunity to refer to another
faculty member(s)
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Training and Support
Please visit the CTSI website for more
information on these tools, training requirements
and how to obtain access.
http://ctsi.psu.edu/
For help or to schedule training:
 REDCap:
[email protected]
 i2b2:
[email protected]
 Profiles:
No training requirement
Open Office Hours every Thursday, 3:00-4:00 pm
in H4510J for REDCap and i2b2.
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Questions…
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