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Global Toolkit on Treatment Demand Data State of Progress Michael Donmall (Co-ordinator Joint Project) National Drug Evidence Centre Background • TDI – EMCDDA-Pompidou Group Protocol – European harmonisation – Potential for wider application • GAP – improve global information on drug consumption – Governments committed to measurable results demand reduction by 2008 – Need reliable & systematic data at global level – Assist governments in compiling comparable data – Collect, summarise, analyse & report data to Commission Narcotic Drugs – INRA • UNODC/ EMCDDA 2003 – joint initiative established – Define workable & practical toolkit – Harmonisation - comparative international work National Drug Evidence Centre Common issues that need structured guidance over wide area • Definitional issues – Treatment, cases, episodes, core data set • Technical matters – Quality control, double counting, data capture • Development – Need and purpose • Implementation – in context of local, national & international needs • Analysis & dissemination • Clarity • Importance of being a collaborative exercise National Drug Evidence Centre Global Workshop on Treatment Demand Indicators, Vienna 2003 • Opportunity to discuss & share experiences of practicalities of implementing Treatment Information Systems • Explore basic rationale behind collection of such information • Role and utility • Strengths and limitations – As epidemiological tool – In performance management • Define in broad terms the requirements of a global toolkit National Drug Evidence Centre • • • • Project Team: Michael Donmall Linda Montanari Stefano Berterame National Drug Evidence Centre, Manchester, UK EMCDDA, Portugal UNODC. Austria • • • • • • • • • • • • • • • • • • • • Meeting Participants: Stefano Berterame Luis Caris Michael Donmall Leigh Henderson Douglas Ken-Garfield Peter Lawrinson Riku Lehtovuori Jean Long Linda Montanari Visweswaran Navaratnam Kamran Niaz Isidore S. Obot Charles Parry Luis Royuela Morales Brian Rush Bela Studnikova Fayzel Sulliman Juana Tomas-Rossello Matthew Warner-Smith UNODC, Austria CICAD, Chile National Drug Evidence Centre, UK SAMHSA, USA CAREC, Republic of Trinidad and Tobago National Drug and Alcohol Research Centre, Australia UNODC, Austria Pompidou Group. Ireland EMCDDA, Portugal National Centre for Drug Research, Malaysia UNODC, Turkey WHO, Switzerland SENDU, South Africa Plan Nacional sobre Drogas, Spain Centre for Addiction and Mental Health, Canada Drug Epidemiology Headquarters, Czech Republic Dr Idrice Goomany Centre Mauritius UNODC, Austria UNODC, Egypt National Drug Evidence Centre National Drug Evidence Centre EMCDDA Project CT.03.ENL.209 FINAL REPORT & PROPOSED OUTLINE GLOBAL TOOLKIT FOR THE MEASUREMENT OF DRUG TREATMENT DEMAND BACKGROUND MATERIAL FOR THE DEVELOPMENT OF A TOOLKIT ON DATA COLLECTION REGARDING DRUG TREATMENT DEMAND IN THE EUROPEAN MEMBER STATES AND IN THE ACCEDING AND CANDIDATE COUNTRIES INCLUDING MEETING REPORT OF THE GLOBAL WORKSHOP ON TREATMENT DEMAND INDICATORS VIENNA INTERNATIONAL CENTRE, DECEMBER 2003 University of Manchester Proposed Toolkit Structure 1 Introduction 1.1 Aims 1.2 Readership 1.3 Main Features & Roadmap 2 Overview: reasons for collecting drug treatment data 2.1 Why a system of treatment data collection is useful • For epidemiological and/or performance management • As an indirect indicator of trends in problem drug use • For identifying patterns of drug use • As a basis for other methodologies (eg incidence) • For policy and advocacy • To identify patterns of use of services • For plans and service evaluation • Other purposes 2.2 Limitations National Drug Evidence Centre Proposed Toolkit Structure 3 Building your foundation 3.1 Scoping – comparison between systems 3.2 Information, Needs and Resources Assessment (INRA) 3.3 Organisational Issues • Gaining political support • Identifying stakeholders • Location • Funding 3.4 Inventory of services & describe treatment system 4 Data to be collected 4.1 Guiding principles 4.2 The core item list 4.3 Core Definitions • Case definition • Treatment, treatment demand, type, episode • Item definitions and valid codes 4.4 Core information requirement at a global level 4.5 Case Studies National Drug Evidence Centre Proposed Toolkit Structure 5 Implementing a Treatment Demand Indicator System 5.1 Planning and development • People/ network issues • Procedures • Technical Issues • Ethical Issues • Planning use of data 5.2 Data collection • Establishing process • Data checking, validation & ongoing audit 5.3 Data quality & Coverage 5.5 Case Studies 6 Analysing and Reporting on the Results 6.1 Data Analysis & Interpretation 6.2 Reporting 6.3 Case Studies National Drug Evidence Centre Proposed Toolkit Structure 7 Maintenance & Evaluation 7.1 Maintenance 7.2 Evaluation Glossary Bibliography Appendix A Sample Materials • Data collection sheets • Reports • Validation rules B Frequently Asked Questions (FAQs) C Links to relevant Web Addresses D Key Toolkit Markers (PowerPoint) National Drug Evidence Centre