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National Council on Patient
Information and Education (NCPIE)
Deborah Davidson
Membership Director
May 29, 2013
About NCPIE
Multi-stakeholder membership organization -- formed 1982 -healthcare professionals, consumer & patient groups, industry,
government agencies. One of the original patient safety coalitions.
(30th Anniversary year)
Mission: Stimulate / improve communication of information on
safe/appropriate medicine use to consumers & healthcare
professionals
Convener, Catalyst, Collaborator and Clearinghouse of ideas &
information to advance members’ shared mission.
“Medicine Education Team” – Patient is the key player
October is the 28th national “ Talk About Prescriptions " Month"
Initiated by the NCPIE coalition in 1986 as a mechanism for positioning our
shared mission into the nation's public health agenda on an annual basis.
NCPIE Public-Facing Websites
talkaboutrx.org bemedwise.org mustforseniors.org recoveryopensdoors.org
NCPIE Membership
&
Board of Directors
USP – NCPIE Board Member Organization
NCPIE Board of Directors - 27 members – 3 meetings/year
Includes FDA and AHRQ - Non Voting Federal Liaisons
N. Lee Rucker, M.S.P.H., AARP Public Policy Institute, Washington, DC is the current
Chairperson
NCPIE membership has four organizational categories:
Consumer
Business
Healthcare Professional
Government Agencies and non-Government Standard Setting Organizations
NCPIE Membership Dues Tiers
$ 165.00
For public sector, consumer/patient advocacy
groups, universities, state or regional
managed care companies
$ 825.00
For non-profit health professional organizations
and trade organizations; and local/regional forprofit companies
$ 8,250.00
For national and international for-profit
companies
The Membership Year is January 1 – December 31
Adherence Improvement Activities
NCPIE published report in 1995:
“Prescription Medicine Compliance: A Review of the Baseline
of Knowledge.”
Included a series of recommendations to improve adherence
for:
• Physicians and Medical Schools
•Pharmacists, Pharmacy-Providers and Educators
• Pharmaceutical Manufacturers
•All Health Professionals
•Patients
•Managed Care Organizations and Hospitals
•Nurses and Educators
“Enhancing Prescription Medicine
Adherence: A National Action Plan”
NCPIE milestone report published August 2007
A renewed nationwide call to action for improving medication
adherence (“America’s other drug problem”) through patient
information and education, health professional intervention,
expanded research, and supportive government policies.
This National Plan of Action to Advance Medication Adherence
included a suggested 10-step plan of action for diverse stakeholders’
consideration.
Source: “Enhancing Prescription Medicine Adherence: A National Action Plan” (NCPIE, August
2007; www.talkaboutrx.org)
NCPIE Adherence Action Agenda
(A3 Project)
Multi-stakeholder (20 organizations) convened twice during the fall, 2012.
Spotlight on:
Patient – & provider-related adherence factors
Chronic & co-morbid conditions
Interplay of macro-factors
Adherence research – in development, planned; pilots, demos, best
practices
Advocacy – what is not happening? how can we make it happen?
Real-time A3 Website Portal
The A3 Project is intended to :
 Synergize and maximize the impact and effectiveness of the many adherence
improvement efforts underway in medical and pharmacy practice, policy arenas,
provider and healthcare student education, public awareness and research
areas;
 Identify unmet needs and opportunities for progress; and
 Stimulate efforts to address the gaps.
NCPIE Adherence Action Agenda
(A3 Project) cont.
Next Steps:
• NCPIE has begun working on an Adherence Action A3 project report;
• Development of a stand-alone comprehensive real-time A3
web-platform;
• Framing an October “Talk About Prescriptions" Month A3Project
launch event for project stakeholders and NCPIE members in
Washington DC.
NCPIE Risk Communications Project
NCPIE has been awarded a collaborative agreement grant from the FDA to
develop and implement a medication risk and drug safety communications
research agenda and educational initiative.
 NCPIE will conduct a national survey of consumers’ and healthcare providers’
knowledge, attitudes and practices regarding medication risk communications.
 NCPIE will extrapolate key finding from the survey research to develop and
conduct and assess a national risk communications campaign through traditional and
social media channels addressing medication risk reduction to promote safe and
appropriate medicine use.
 The research initiative is being conducted with input from the Johns Hopkins
Center for Drug Safety and Effectiveness, (CDSE), a new center jointly supported by
the Bloomberg School of Public Health and Johns Hopkins Medicine.
Risk Communications Project cont.
Ipsos, a national survey company will soon conduct consumer and healthcare
professional surveys reaching out to:
2,000 consumers of age 18 years and older; and
800 healthcare providers, representing pharmacists in community-based retail
settings, and prescribers, including primary care physicians, nurse practitioners, and
physician assistants.
The respective surveys will probe issues related to medication risk and safety.
NCPIE will convene a multi-stakeholder project advisory to provide expert guidance
and input on the formulation, implementation planning and assessment of optimal
communications strategies, pathways/channels and educational programs for
communicating essential medication safety and risk information to key target
audiences – including consumers and healthcare professionals.
Addressing Prescription Drug Abuse:
Resources available from NCPIE
• Not Worth the Risk- Even If It’s Legal - Multi-media materials,
including TV & radio spots, print articles in English and Spanish; brochures
for parents & teens; SAMSHA collaboration
• Maximizing Your Role as a Teen Influencer: What You Can Do
to Help Prevent Teen Prescription Drug Abuse (turn-key outreach
/ educational workshop, web-based; SAMHSA collaboration)
• Taking Action to Prevent & Address Prescription Drug Abuse:
A Resource Kit or College Campuses (web-based; SAMHSA
collaboration)
Addressing Prescription Drug Abuse:
Resources available from NCPIE cont.
• Recovery Opens Doors: An Online Resource for Young People
in Recovery (web-based; SAMHSA collaboration) – August 2012
• Pass It Forward Video Challenge – Now Under Way!
• Offering young adults age 18 -25 a chance for national recognition of
their 2- minute Rx abuse prevention video entries.
• Deadline for entries is June 7, 2013.
• Details – visit www.passitforward.info
Acetaminophen Safe Use Program for Teen
Influencers
Acetaminophen Safe Use College Resource
Guide
Acetaminophen Safe Use Program for Seniors
NCPIE External Collaborations
• National Recovery Month Planning Partners
• Prescriptions for a Healthy America: A Partnership for Advancing Medication Adherence
by the Council for Affordable Health Coverage (CAHC)
• Script Your Future National Medication Adherence Awareness Campaign
• The Acetaminophen Awareness Coalition - Know Your Dose Campaign
• The Alliance for the Rational Use of NSAIDS
• The Medicine Abuse Project by the Partnership at DrugFree.org
• The National Coordinating Council on Medication Error Reporting and Prevention,
(NCC MERP)
• The CDC PROTECT & PROTECT-Rx Initiatives: Advancing Children’s Medication Safety
• United States Access Board: Working Group on Accessible Prescription Drug Labels
Contact Information
Deborah Davidson
Membership Director
National Council on Patient
Information and Education (NCPIE)
200-A Monroe Street, Suite 212
Rockville, MD 20850
(301) 340-3940 - phone
[email protected] – email
www.talkaboutrx.org
www.mustforseniors.org
www.bemedwise.org
www.recoveryopensdoors.org