Transcript Living with Stroke: The Evidence - Heart and Stroke Foundation of

Outline
 The Evidence
 Program overview
 Local Initiatives
Living with Stroke: The
Evidence
 Research tells us:
• Post d/c time is difficult
• Psychosocial support improves outcomes
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↑QOL
↓Caregiver stress
↓Re-admit rates
↓Depression
 CBPR:6.2 Patient and Family Education
Living with Stroke: CBPR 6.2
 Patient and Family Education should include:
• Information sharing
• Timed Right
• Caregiver training
• Promote self efficacy
• Self management skills
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Action planning
Problem solving
Modeling behaviours
Group support and guidance
» Evidence Level B
Living with Stroke: CBPR 6.2
Self Management training should include:
• Medications
• Emotions
• Exercise
• Symptom management
• Risk factor management
• Secondary prevention
Evidence Level B
• Cognitive and memory
changes
• Communication with
health professionals
• Health related problem
solving
Living with Stroke: Development
 Revised in 2006
 9 pilots: February, March, April, 2007
 6 in Ontario, 2 in Saskatchewan, 1 in Alberta
 Urban, rural, north, marginalized population
 Evaluations conducted on content and
facilitator/participant experience
Living with Stroke: Program
 FREE community based education program for
people with stroke and their caregivers
 Six two hour sessions
 Total 12 hours – 6 weeks
 Community based
Living with Stroke: Facilitators
 Facilitators: health care providers, use of peer
facilitators supported
 Remove the “clinical hat” – not the expert
 Trained by HSFO (FREE)
 Full Day training -program and group facilitation
Living with Stroke: Facilitators
 Ability to engage participants in discussion and skills
in dealing with group dynamics
 Comfort in teaching using a discussion format rather
than didactic teaching methods
 Facilitation experience and ability to manage
participant expectations
 Knowledge of stroke across the continuum of care
 Community orientation rather than acute care focus
 Knowledge and awareness of local community
resources
 Client-focused approach to care
Living with Stroke: Facilitators
 Ongoing support for
facilitators
• Newsletter
• Training opportunities
(eg. Recruitment)
Living with Stroke: Participants
 People with stroke and their family
member/caregivers.
 Living in the community.
 Completed active rehabilitation.
 Readiness for the program.
Living with Stroke: Objectives
 To provide participants with introductory
information, tools, and support to:
• Understand their condition
• Improve quality of life
• Reduce the risk of another stroke
• Participate in recovery
• Find the help needed to adjust to life after stroke
• Practice problem solving and goal setting
Living with Stroke: Topics
 Impact of stroke on your life
 Physical changes and activity
 Importance of nutrition to your recovery
 Communication and mental function issues
 Emotions after stroke
 Maintaining activities and relationships
 Reducing your risk of stroke
 Using your knowledge to continue with your
recovery and your life.
Living with Stroke: Format
 Interactive workshop
 Discussion
 Videos -Survivor and Professional
 Activities to help participants learn about dealing
with stroke
 Weekly goal setting
 Peer support & modeling
 Facilitator and Participant manuals
Living with Stroke: Feedback
 Participants generally rated the program very
highly.
 Three main reasons for participating
• wanting to learn more about living with stroke
• learn more about managing and coping
• learn about how to prevent another stroke.
Living with Stroke: Feedback
 Realized that they were not alone
 Value in learning from others experiences and
understanding that progress would be slow but
there is hope of recovery and improved function
 Caregivers learned what the major stroke issues
were and the need for patience during recovery as
well as how to search out support.
Living with Stroke: Website
 www.heartandstroke.ca/profed
Living with Stroke: Local
Initiatives
For example – fill in news about your region
 Oshawa program beginning April 30th
 Recruiting facilitators May 2012 training session in
Newmarket
Living with Stroke: Local
Initiatives
Discussion
In your current role, how can you support the Living
with Stroke™ program in your Community
THANK YOU
QUESTIONS?