Transcript April 2013
Christine Hazelton Contents 1. Vision problems after stroke 2. Scottish Vision & Stroke Network 3. SVSN Projects Vision Problems • Visual field loss • Eye movement disorders • Visual neglect Visual Field Loss Prevalence: 20-57% Area affected: the same side of the visual field in both eyes Most common: homonymous hemianopia Visual Field Defects Mobility Visual Field Defects Functional ability Reading Driving Falls Quality of Life Participation in Rehabilitation Social isolation Depression Eye Movement Disorders Prevalence: 7 - 55% Main disorders: Difficulty in maintaining normal ocular position Difficulty with moving eyes appropriately Eye Movement Disorders Visual Neglect Prevalence: 8-90 % Definition: 'fails to report, respond, or orient to novel or meaningful stimuli presented to the side opposite a brain lesion’ Also called: spatial neglect, visuo-spatial neglect, visual inattention, hemiinattention Visual Neglect Scottish Vision & Stroke Network • formed in 2009 • arose from concerns regarding the care of those with visual problems after stroke • is a collaboration between stroke charities, vision charities, health care professionals, researchers and people affected by stroke Representation • British and Irish Orthoptic • North East Sensory Services Society • NMAHP Research Unit • Chartered Society of • RNIB Scotland Physiotherapists • Scottish Council on Visual • Chest Heart & Stroke Scotland • College of Occupational Therapists • Fife Society for the Blind • NHS Scotland Impairment • Scottish Stroke AHP Forum • Scottish Stroke Nurses Forum • The Stroke Association • Visibility Structure Network Steering Group • open membership • charity reps • eye care workers • stroke care workers • researchers • service users Aims To improve awareness, diagnosis and treatment of visual problems after stroke within Scotland To support the research needed into effective assessments and treatments 1. Awareness Visual problems after stroke have a lower profile with stroke survivors, health care professionals and at policy and political levels. 1. Awareness • gathering personal stories • engaging with the Scottish Parliament • developing an online information resource • provided NHSInform with accurate information 2. Diagnosis & Treatment Significant inequalities exist in the assessment of visual function and in the management of visual problems across Scotland. 2. Diagnosis & Treatment • Best Practice Statement • Inclusion in Scottish & UK strategies • Workshop to share and discuss current projects • placements for trainee orthoptists 3. Research There is clinical uncertainty on referral pathways and the most effective treatments to use; research in the topic is scarce 3. Research • Eye movement disorders workshop in September 2013 • Research findings shared with clinicians and educators • Opportunities to collaborate and network 4. Developing SVSN • Defining network policies and structures • Developing SVSN website Funding • Currently funded by SCOVI • Covers administration and key running costs Currently • significant areas for improvement • increasing awareness • the importance of collaboration THANK YOU Questions? Contact email - [email protected]