Transcript Interdisciplinary Care and Treatment Involves Us TOO

Interdisciplinary Care and
Treatment Involves Us TOO
James Kiefert, EdD
Chairman, Board of Directors
Us TOO International
Prostate Cancer Education and Support Network
Why is Prostate Cancer Important?
One in every 6 men will be diagnosed with
Prostate Cancer in his life
There are slightly more cases of Prostate
Cancer diagnosed each year than Breast
Cancer (230,000 vs. 216,000, the top two
annual cancer diagnoses)
An American man is 33% more likely to develop
Prostate Cancer than an American women is to
get Breast Cancer
38 Million Baby-Boomers are aging and at risk
Source: Prostate Cancer Foundation and American Cancer Society
The Numbers will Increase as the
Baby Boomers Age
Despite advances, 30,000 deaths due to
Prostate Cancer happen each year, that is 90
American men each day
Within the next 10 years (2015), we will see an
increase of nearly 70% to 50,000 deaths per
year
In the next 15 years, by 2020, the total number
that die from PCa will be 650,000…more than
the number of men killed in all US wars in the
last 100 years (since 1900…642,352 deaths)
Source: Prostate Cancer Foundation
Us TOO International Network
Founded in 1990 by a group of Prostate Cancer
Patients, still directed by patients and family
members
Network of Support Groups now is 320 and
reaches 44 states and 10 countries
Us TOO Mission: Communicate Timely,
Personalized and Reliable Information Enabling
Informed Choices Regarding Detection and
Treatment of Prostate Cancer
Us TOO International Network
Web based information and support at
www.ustoo.org 14 virtual communities on
Prostate Pointers and an e-newsletter
Prostate Cancer NEWS You Can Use
Hotsheet Monthly Newsletters: 22,000
distributed through Support Groups
The power of “peer support” and “patient
directed care and treatment”
Detection and Screening
The importance of “Know your PSA”
Outreach to people at higher risk
“There are no side effects to a blood test
or a DRE”
Process of Diagnosis
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Family Practitioner
Urologist, takes biopsy
Diagnosis, Recommendations and
Treatment Planning
Post-biopsy exploration and additional
testing, second opinions
The “Gold Standard” recommendation:
surgery and the pressure to act
immediately
Feelings of shock and denial
More options exist now than ever before
Information Gathering and Decision
Making
Patient and family information gathering
and informed decision-making
Need to make the “right” decision
The “added” burden of conflictrecommendations, comments and
relationships
On-going Treatment and PostTreatment Issues
Treatment decisions continue, new
decision points
Life style challenges and changes
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Stress, job issues
Diet and exercise
Medication management and changes
Side effects, Patient expectations vs.
discussed typical outcomes
Stepping up to the Growing
Challenge
Preparation and communication are essential
New treatment approaches mean patients need
involvement with educated Urologists and
Oncologists
Recognize the Baby Boom generation now
entering high incidence age
Number diagnosed per year climbing to
300,000/year in the next 10 years (+40%)
Source: Prostate Cancer Foundation
Teamwork and Communication
In my support group I hear men looking to
their physician “as the quarterback” of their
team
Communication is essential
The burden of cancer is made worse when
conflicting messages are present
Making a Difference Together
Look for Us TOO at www.ustoo.org and at
1-800-80-UsTOO (1-800-808-7866)
“Never doubt that a small group of
thoughtful, committed citizens can change
the world; indeed, it's the only thing that
ever has.” Margaret Mead