Transcript SEER Patterns of Care - Kentucky Cancer Registry

SEER PATTERNS OF CARE
Kimberly Kimbler, MS, CCRP, CTR
Kentucky Cancer Registry
[email protected]
WHAT IS PATTERNS OF CARE (POC)?
• A population-based snapshot
designed to “assess the
incorporation of state-of-theart cancer treatments into
clinical practice and the extent
to which cancer patients
receive such treatments”
Public Law 100-607, Sec. 413 (a)(2)(C)
Mandated in 1988
14 SEER REGISTRIES PARTICIPATED IN 2014
USES OF POC DATA
 Describe adjuvant therapy use in a community setting
 Practice patterns in communities
 Surgery, radiation therapy, chemotherapy, hormonal
therapy in specific cancers
 Compare treatment modalities over time and by age,
race, and ethnicity
USES OF POC DATA
 Effects of comorbid conditions
 Describe treatment by hospital characteristics
 Describe the usage of biomarkers and diagnostic tests and
compare their use by race/ethnicity and geographic region
 Provide additional data for analyses by linking POC data to
SEER Medicare files
Address quality control issues related to routine data
abstraction
wordle
Cases
submitted to
KCR
Site-specific
cases randomly
selected from
CPDMS
Cases are
re-abstracted
per POC Manual
ALL treatment verified
by reviewing records or
by physician contact
Information is
entered into a
POC specific local
database
Data is de-identified
and uploaded to a
secure SEER website
SO…WHAT DOES POC COLLECT?
 Much of the same
information as the
abstracted case…..
just sometimes in a slightly
different way or in greater
detail
POC VISIT
Hospital records
Medical Oncology
Radiation Oncology
Legacy EMR systems/paper charts (if applicable)
Cancer is increasingly diagnosed and treated in the outpatient
setting
PHYSICIAN VERIFICATION
…and the path to all treatment
POC: WHAT’S NEXT….
Adolescents and young adults (AYA) diagnosed with
cancer in 2011
An estimated projection calculated by the Surveillance, Epidemiology and End Results (SEER) Program using SEER 18, 2007-2011.
http://www.cancer.gov/researchandfunding/snapshots/adolescent-young-adult#footnote1 (accessed 9/2014)
AYA CANCERS (AGES 15-39)
ACKNOWLEDGEMENTS
 Tom Tucker
 Frances Ross
 Celia Love
 Mary Jane Byrne
 The awesome folks at KCR
QUESTIONS?