Transcript The caregiver - HUBU-Parkinson Virtual Medical Learning Center

THE IMPORTANCE OF THE
CAREGIVER ROLE
ANTONIA CAMPOLONGO
HOSPITAL DE LA SANTA CREU I SANT PAU
BARCELONA, SPAIN
PARKINSON’S DISEASE
AND CAREGIVERS
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PD is a chronic , progressive
neurological
disease,
characterized by tremor,
rigidity, bradykinesia and
postural instability.
Lilienfeld estimates that by
2040 a 1,3 million will be
affected by PD
Only about 7% of PD persons
are admitted to long-term
care facilities; most are cared
by families at home.
DEFINITION CAREGIVER
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A caregiver is a person who:
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Take care of someone who has a
chronic illness or disease.
Manage medications or talk to
doctors and nurses on someone’s
behalf.
Help bath or dress someone who is
frail or disabled.
Take care of household chores,
meals, or bills for someone who
cannot do these things alone.
Caregiver. Who does it?
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Formal caregivers:
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Informal Caregivers: These
These are
individuals paid to provide basic daily
living support to persons in need.
are individuals that are not paid.
In many cases , these are family
members.
DEFINITION OF THE CAREGIVER BURDEN
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Caregiver burden refers to a high
level of stress that may be
experienced by people who are
caring for another person (usually
a family member) with some kind
of illness.
For example, a person caring for
someone with a chronic illness
may experience such stressors as
financial strain, managing the
person's symptoms, dealing with
crises, the loss of friends, or the
loss of intimacy.
THE STRESS IS INDIVIDUAL
CAUSES OF CAREGIVER BURNOUT
Changing roles/ role confusion
 Unrealistic expectations
 Loss of control
 Isolation
 Financial demands
 Panic
 Denial
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SIGNS OF STRESS
SIGNS OF CAREGIVER STRESS (I)
PHYSICAL SIGNS OF STRESS
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Tension or migraine headaches.
Muscle tension, aching shoulders
and back.
Gritting or griding the teeth.
Palpitations with no story of heart
disease.
Changes in health status.
Not feeling well with different
symptoms every day.
SIGNS OF CAREGIVER STRESS (II)
EATING AND SLEEPING BEHAVIOR
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Difficulty falling asleep, restless
sleep, fatigue
Loss of appetite or over eating
Weight loss or gain
Digestive problems, upset
stomach.
Use of alcohol or pills to sleep,
stay awake, or relax.
SIGNS OF CAREGIVER STRESS (III)
THOUGHTS AND FEELINGS
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No pleasure or interest in
activities.
Feeling guilty
Socially isolated
Irritable or short tempered
Feeling emotional
overwhelmed.
Increased number of small
accidents.
Difficulty in focusing and
concentrating
Forgetfulness
THE CONSEQUENCE
WAYS TO PREVENT BURNOUT
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Exercise regularly
Rest
Relax
Eat healthy food
Identify negative emotions and practice coping skills
Seek support from family, friends, a support group
Learn to be assertive.
Ask for help
Accept help when offered
Do good things for your spirit.
HEALING STRATEGIES
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Daily exercise
Meditation
Listening to music
Taking a hot bath
Getting a massage
Practice stress management techniques.
What can the caregiver do if their needs
a break?
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In-home respite. In this type of service,
someone comes to your home to provide care. The
type of care can range from simple companionship
to nursing services.
What can the caregiver do if he/she needs a
break?
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Adult day-care centers. Many adult daycare centers are located in churches or community
centers. Some day-care centers provide care for
both elderly adults and young children. During the
day, the two groups meet for several hours to
share in activities such as reading stories. This type
of contact seems to benefit both young and old.
What can the caregiver do if he/she
needs a break?
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Short-term nursing
homes. If the patient
needs occasional nursing
care and the caregiver
must leave town for a
couple weeks, some
nursing homes will care
while the caregiver is
gone.
MY ADVICES TO CAREGIVERS ARE…..
BATHING
1.
2.
3.
4.
Keep this time as pleasant and relaxed as possible.
Use less soap- too much soap increase the skin dryness
Keep the room confortably warm
Respect their privacy. Keep the patient covered when is possible.
SHAVING
1.
2.
3.
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Use an electric shaver.
If the patient wears dentures, put them in
his mouth before shaving him.
Have him in a sitting position, if possible.
Do not press down hard or move the shaver
too fast over his face.
Shave the most tender areas of the face (
the neck area) first and then move up to the
tougher ears of the face between the eras,
nose and mouth.
DRESSING
1.
2.
3.
4.
Let them choose what they want to wear.
Be flexible.
Consider easy-to-wear clothes with large front fasteners
If the patient has a weak side, put the painful or weak arm into de
shirt before the strong arm.
HAIR CARE
1.
2.
3.
Keep hair short and in a easy care style.
Wash hair in a confortable place.
Consider using one of the dry shampoo products found in drug stores
if hair washing is impossible
THE CONSTIPATION
1.Get plenty of fluids.
2.Cut down on alcohol and beverages containing caffeine.
3.Make healthy food choices.
4.Relax. Don’t strain to empty the bladder or bowel or sit on the toilet too
long.
CAREGIVER'S
BASIC SURVIVAL
TIPS
TIP 1
Keep them one involved as much
as possible in...
TIP 2
Do not assume more
responsibility or
control than
necessary.
TIP 3
Eat properly, …..
TIP 4
Caregiver needs……
TIP 5
The caregiver needs to take time
off with friends or family who
nurture them or make them
laugh.
TIP 6
It’s important for the caregiver to
find someone to trust
TIP 8
Learn all about Parkinson’s
Disease…….
TIP 9
Remember daily to reward
yourself for the positive
difference you make in your
loved one's life and the specific
little things you did that day…..
AND AFTER THE WORK….
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