Transcript Movement Ambassador - National Multiple Sclerosis Society

Movement
Ambassadors
Orientation and Training
Movement Ambassadors
Movement Ambassadors are:
• Talk MS Speakers
• Representatives of the Chapter at
– Health Fairs or Awareness events
– Do It Yourself Fundraisers or other fundraising events
– Meetings or Programs
• Advocates
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Training Overview
 What is Multiple Sclerosis
 The National MS Society
 The Greater Carolinas Chapter
 Presentation Guidelines
 Next Steps
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Training:
What Is Multiple Sclerosis?
What Is MS?
• Multiple sclerosis is an unpredictable,
often disabling disease of the central
nervous system, that interrupts the flow of
information within the brain, and between
the brain and body.
• Symptoms range from numbness and
tingling to blindness and paralysis.
• The progress, severity and specific
symptoms of MS in any one person
cannot yet be predicted, but advances in
research and treatment are moving us
closer to a world free of MS.
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What Is MS?
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Most people with MS are diagnosed between
the ages of 20 and 50, with at least two to
three times more women than men being
diagnosed with the disease.
MS affects more than 2.3 million worldwide.
The disease is thought to be triggered in a
genetically susceptible individual by a
combination of one or more environmental
factors.
It’s the most common neurological disease
leading to disability in young adults.
Additional information, including videos and
publications, is available at
nationalMSsociety.org/what-is-MS
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Training:
The National MS Society
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The National MS Society
In 1946, frustrated by her inability
to find solutions to her brother’s
visual and balance problems,
Sylvia Lawry placed an ad in the
New York Times. It read:
“Multiple Sclerosis. Will anyone
recovered from it please
communicate with patient.”
She got 50 replies sharing similar
frustrations, and then singlehandedly launched an international
war on MS.
Tiffany
Diagnosed in 2004
Tiffany
Diagnosed in 2004
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The National MS Society
From this humble beginning,
Sylvia devoted the rest of her
life to the pursuit of a world free
of MS.
On March 11, 1946, Sylvia
gathered 20 of the nation's most
prominent research scientists
and founded what would
become the National MS
Society (and subsequently the
MS International Federation
abroad).
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The National MS Society: Mission
Our vision is A World Free of MS
Our mission: We mobilize people and resources to
drive research for a cure and to address the challenges
of everyone affected by MS.
Tiffany
Diagnosed in 2004
Tiffany
Diagnosed in 2004
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The National MS Society: Leadership
• The Society’s Board of Directors is an elected group
of volunteers with legal and fiduciary responsibilities
for overseeing Society goals, business operations,
and focus in implementing the Society’s strategic
response to MS.
• The Senior Leadership Team (SLT) is composed of
– Department Executive Vice Presidents;
– Regional Executive Vice Presidents and
– the Executive Leadership Team.
Tiffany
Diagnosed in 2004
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The National MS Society: Core Values
As an organization whose vision is to
create a world free of multiple
sclerosis, the Society strives to live by
a set of core values which guide our
work and our actions on a daily basis.
Tiffany
Diagnosed in 2004
Tiffany
Diagnosed in 2004
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The National MS Society
MS does not discriminate and neither do we. The Society embraces
and celebrates diversity and inclusion as the core of our organization.
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We value differences
Diverse perspectives will help us achieve our mission
We attract and retain a diverse group of talented individuals
We aim to understand what people everywhere need to move
their lives forward
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The National MS Society
• In 2010, the National MS Society embarked on a
five-year strategic roadmap, titled the Strategic
Response: 2011-2015.
• Rather than just a traditional organizational strategic
plan, it strives to be a response to the brutal facts of
living with MS and identifies what must be done, not
only at the Society, but globally to achieve a world
free of MS.
• Each of the five strategic goals is supported by the
objectives and expected outcomes that impact the
lives of everyone affected by MS.
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The National MS Society
The five strategic goals for 2011-2015 are:
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We are a driving force of MS research and
treatment to stop disease progression, restore
function, and end MS forever.
We develop, deliver and leverage resources to
enhance care for people with MS and quality of life
for those affected by the disease.
We are leaders in the worldwide MS movement,
mobilizing millions of people to do something about
MS now.
We are activists.
We develop and align human, business and
financial resources to achieve breakthrough
results.
Additional information is available at
nationalMSsociety.org/about-the-society
Tiffany
Diagnosed in 2004
The National MS Society
How we spend donations
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The National MS Society
Through our 50-state network of chapters, the Society identifies
solutions so that people affected by MS live their best lives.
Advocates for Change: MS activists are on the
frontline, moving and speaking with one clear
voice to advance policies that benefit people with
MS and their families.
• Become an MS activist
• Share your story
• Join the MS Activist Network
Tiffany
Diagnosed in 2004
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The National MS Society
Through our 50-state network of chapters, the Society identifies
solutions so that people affected by MS live their best lives.
Provides Resources &Support: The Society offers
a variety of programs, services, resources and
connection opportunities for people living with
and affected by MS, including family members,
caregivers and other members of their support
systems.
• Visit nationalMSsociety.org/resources-support
• Contact an MS Navigator at 1-800-344-4867
• Connect with others at MSconnection.org
• Contact your local chapter
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The National MS Society
Through our 50-state network of chapters, the Society identifies
solutions so that people affected by MS live their best lives.
Support for people living MS also includes the following:
• Family and Relationships
• Financial Assistance
• Employment, Insurance and Financial planning
• Health and Wellness
• Social and Emotional Support
• Mobility and Accessibility
• MS Education
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The National MS Society
Through our 50-state network of chapters, the Society identifies
solutions so that people affected by MS live their best lives.
Fundraises:
• Walk MS
• Bike MS
• Challenge Walk MS
• Muck Fest MS
• Do-It-Yourself Fundraising
From fundraising events to
influencing policy, to giving
financially, everyone can make
a difference.
Tiffany
Diagnosed in 2004
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The National MS Society
Through our 50-state network of chapters, the Society identifies
solutions so that people affected by MS live their best lives.
Supports Research: We are a driving
force of MS research and treatment to
stop disease progression, restore
function, and end MS forever.
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$820 million in research funding to date
13 therapies approved by the FDA
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Become a NOW Research Champion.
Sign up for email updates.
Visit nationalmssociety.org/research
Tiffany
Diagnosed in 2004
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The National MS Society
Through our 50-state network of chapters, the Society identifies
solutions so that people affected by MS live their best lives.
Mobilizes people who are
passionate about our mission:
“There is no cure for MS, so I’ve
joined with thousands of others to
do something about MS now!”
Tiffany
Diagnosed in 2004
Tiffany
Diagnosed in 2004
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Training:
Greater Carolinas Chapter
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Greater Carolinas Chapter
• Chapter Offices in Charlotte, Greensboro and
Raleigh
• Chapter area includes 97 counties in NC and all of
SC
• Serve over 17,400 people living with MS in NC and
SC
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Greater Carolinas Chapter
• Major Mass Market Events
– Walk MS – 18 events in NC and SC
• Triangle Walk is largest in the Southeast Region
– Bike MS – 4 events
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Historic New Bern Ride – largest in the Southeast Region
Breakaway to the Beach
Tour to Tanglewood
Gears and Cheers
– Challenge Walk – Savannah, GA
• Programs and Services
• Advocacy
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Training:
Talk MS Speaker’s Bureau
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Talk MS Speaker’s Bureau
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Talk MS Speaker’s Bureau
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Talk MS Speaker’s Bureau
Goals of the Speaker’s Bureau
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Raise awareness of MS
Raise the profile of the National MS Society
Encourage volunteerism
Promote participation in fundraising events
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Talk MS Speaker’s Bureau
Speakers make presentations to such groups as:
• Civic and community groups
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Rotary
Kiwanis
Sertoma
Civitan
• Schools
• Churches
• Businesses
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Talk MS Speaker’s Bureau
Speakers also:
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Man information tables at Health Fairs
Participate in MS Awareness Week activities
Seek out opportunities to speak
Make the chapter aware of connections in the community
Write letters to the editor
Seek to tell your story to the media
Report back to Chapter about your presentations
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Talk MS Speaker’s Bureau
The Chapter provides:
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Training
Materials
Mentoring
Emails and letters sent annually to community, civic
organizations in the Chapter area
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Training:
Guidelines for Representing the Society
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Guidelines for representing the
Society
When acting as a representative of the Chapter:
• Abide by the Chapter’s Confidentiality policy
– Complete volunteer consent/code of conduct form annually
– Return to the chapter representative
• Use accurate and considerate language
• Be an objective listener
• Refer requests for advice or questions about
medication/symptoms to the National MS Society
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Guidelines for representing the
Society
Remember you are perceived to be the spokesperson
for the MS Society:
• Use discretion in sharing your personal experiences
• Don’t just “wing it” when answering a question
• Direct questioner to 1-800-FIGHT MS and the National website:
www.nationalMSsociety.org
Remember: You can not represent another entity while
acting as a Talk MS Speaker
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Tips for Effective Public Speaking
Checklist – Be sure you know:
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where you are going
what time you are supposed to be there
the name of the contact and have a contact phone number
the make up of the group you are speaking to
how long you have to speak
your material
what kind of technology capabilities the meeting location has
available
• your facts
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Presentation Components
Presentations should contain:
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Introduction of yourself as a representative of the Society
A description of Multiple Sclerosis
Its symptoms, diagnosis
Its unpredictable nature
It is the most common neurological disease leading to disability
in young adults
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Presentation Components
Presentations MUST contain:
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An overview of the National MS Society
An overview of the Chapter area
A description of Programs and Services and Advocacy
An overview of the Chapter’s signature fundraisers
A description of how the listener can donate
An overview of volunteer opportunities
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Presentation Components
Always:
• Distribute chapter brochures during presentation
• Suggest that the audience keep the brochures because it is
likely they will meet someone who has MS
• Try to connect personally with audience
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Presentation Components
Presentations should NOT contain:
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Advice on medications, symptoms
Referrals to particular physicians
Partisan political comments
Statements about controversial issues
Agreement to send information to someone who did not
personally request it
• Any off-color or inappropriate jokes or comments or any
suggestive comments
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Tips for Effective Public Speaking
Making an effective presentation:
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Be yourself
Connect with the audience
Use discretion in sharing personal stories and information
Respect time limits
Remember the goal is to raise awareness about MS and the Society!
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Tips for Effective Public Speaking
Making an effective presentation:
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Be engaging
Make eye contact
Show your personality
Use body language effectively
Avoid distracting mannerisms or verbal tics
Remember: You are the visual aid.
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Tips for Effective Public Speaking
Create the right impression:
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Consciously manage your voice
Lower your pitch
Take a breath and relax before beginning
Watch your inflection
Slow down your pace
Articulate
Use pauses for emphasis
Remember: Being nerves can cause you to speak with a higher pitch.
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Tips for Effective Public Speaking
Making a great presentation:
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Know the material
Have notes (but don’t be tied to them)
Give yourself written clues
Use note cards or large fonts
Ignore mistakes
Articulate
Practice before a mirror
Time yourself
Remember: Don’t read every word!
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Tips for Effective Public Speaking
Making a great presentation:
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Relax
Remember – the audience wants you to succeed
Watch your posture – don’t slump or clutch the podium
Tailor the presentation to the audience
Don’t get distracted
Don’t try to give too much information
Leave time for Q & A
Handle problems with grace
Thank the group for the opportunity
Remember: Send a thank you note!
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Training: Story Telling
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Story Telling: As Best Practice by Andy
Goodman, www.agoodmanonline.com
Numbers numb, jargon jars, and nobody ever marched
on Washington because of a pie chart. If you want to
connect to your audience, tell them a story.
• Stories influence giving and bring the invisible and abstract to
life.
• People are hardwired to respond to stories.
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Story Telling: How to tell stories
• Narrative Story Telling
Start
with
a few facts
Deepen the story
Payoff/emotion at end
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Story Telling: How to tell stories
Basic Elements of a story:
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Protagonist – person following through the story
– Give the context or background
– Must be an individual
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Inciting Incident – the barrier or obstacle and the goal
– Use scenes with details and dialogue
– Not just telling
– Make audience feel that they are in the moment
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Result – what happened
– How did you overcome? What was the success or lesson learned?
– Use summary to move story along (explanation, collapsed time, etc.)
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Training: Next Steps
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Next Steps
Write your story or stories and send to the Chapter
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Use as anecdotes in your presentation
May be used on the website and in marketing materials
Use to share with donors
Complete your biographical sketch
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Return to Paula Lipford, [email protected]
Use by groups where you are speaking
Added to the website
Provide a headshot if possible
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Next Steps
• Updated materials will be provided when available
• You will be notified when there is speaking
opportunity in your area
• You are welcome to solicit engagements (sample
letter in handouts)
• Speakers should notify the Chapter when asked to
speak
• Speakers should report the number of audience
members or health fair participants to the Chapter
after an engagement
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Questions
• Once you complete this training, send an email to
Paula Lipford, [email protected]
• A chapter staff member will follow up with you and
answer any questions
• If you need additional materials please contact Paula
or your staff contact
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