Transcript the many faces of deaf-blindness

THE MANY FACES OF
DEAF-BLINDNESS
North Carolina
Family Leadership Training
April 21-22, 2008
Greensboro, NC
How We’ll Spend Our
Time Together
Today
–
–
–
–
–
National and State Deaf-Blind Program
Deaf-Blind Census
Etiologies Associated with Deaf-Blindness
Bringing it All Back to Your Role as a FS
Moving past the Etiology
This Evening
– Personal Goals and Supports
– Follow-up Project
Tomorrow
– Deaf-Blindness: The Big Picture
– Bringing it All Back to Your Role as a FS
– Wrap-Up and Next Steps
What We Want to Accomplish
Increase your understanding of:
• National and state resources related to deaf-blindness
• The diversity within the population
• The major etiologies of deaf-blindness
• The impact of deaf-blindness on overall development
• Communication Development and array of expressive and
receptive communication forms
• The need for an individualized communication system
The Deaf-Blind Program
Families
From
Birth
Birth to 3
Programs
School
Programs
Young Adult
Programs
North Carolina
Deaf-Blind Project
To 22
years
NFADB
AADB
NCDB – TA & Information Services
HKNC
Hilton-Perkins
Program
US Dept of Education
Office of Special Education
Programs (OSEP)
Nat’l Coalition
on DB
The National Deaf-Blind Census
• National and State Definition of DeafBlindness
• Why Collect Census Information
• Process and Forms
• North Carolina and National Results
• Practice
National Definition of
Deaf-Blindness
Deaf-blindness means concomitant hearing and
visual impairments, the combination of which
causes such severe communication and other
developmental and educational needs that they
cannot be accommodated in special education
programs solely for children with deafness or
children with blindness. 34 CFR 300.8 (c) (2)
North Carolina
Definition of Deaf-Blindness
North Carolina currently uses the national definition of deaf-blindness for defining
students in early childhood special education (ages 3-5) and school age special
education (ages 6-21) programs.
“Deaf blindness means concomitant hearing and vision
impairments, the combination of which causes such severe
communication and other developmental and educational needs
that they cannot be accommodated in special education programs
solely for children with deafness or children with blindness”.
(IDEA, 2004)
For infants and toddlers receiving Part C early intervention services, deaf-blindness
is defined as:
“Concomitant hearing and vision impairments or delays, the
combination of which causes such severe communication and
other developmental and intervention needs that specialized early
intervention services are needed.”
PICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICT
UREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREP
ICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTU
REPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPI
CTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUR
EPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPIC
TUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTURE
PICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICT
UREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREP
ICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTU
REPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPI
CTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUR
EPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPIC
TUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTURE
PICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICT
UREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREP
ICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTU
REPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPI
CTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUR
EPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPIC
TUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTURE
PICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICT
UREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREP
ICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTU
REPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPICTUREPI
A PICTURE IS WORTH A
THOUSAND WORDS
Sensory Perspectives
SPARKLE DVD
Etiologies Related to
Deaf-Blindness
eti·ol·o·gy
“the cause of a medical or disability condition”
• Tell Us About Your Child
• Top Etiologies of North Carolina and Nationally
• Finding Information about Etiologies
Points to Consider About
Etiologies
• To know an individual’s etiology is NOT to say that you know the
individual
• Absence of a diagnosis can be a nagging mystery or fear
• Possible etiologies should not be casually mentioned
• Need to gather information to establish an appropriate
educational program
• Need to gather information to be aware of delayed manifestations
• Pay attention to source and publication date of print and Internet
resources
• Connecting with another person or family who shares the
diagnosis can be invaluable
Thanks to California Deaf-Blind Services, Fact Sheet #33
So What Do I Do Now
• Your Role as a Family Specialist
• Using HomeTalk with Families
For additional copies
(http://www.designtolearn.com/pages/HomeTalk.pdf)