Transcript A Young Person’s experience

A Young Person’s
experience
Sophie Broere
Trustee CLICSargent
Talking cancer day
• 9th February 2008
• Many young people on- and offtreatment
• 15 topics
Friendship, Support and
Socialising
• Staying in contact with friends
- Internet
- Information
• Gaining new friendships
- Regular meetings
Entertainment
• Equipment loans – Play stations,
DVD/Videos etc
Education
• School:
* Positive experiences
- Home tutoring
- Teachers on ward liaised with school
Teachers
- Schools flexible and aware what’s going on
* Negative experiences
- Better communication
- Keep up not catch up
- Post 16: more funding
- Increasing understanding
Age appropriate
• Choice
• Listening
• Language
Independence
• Choice
• Overprotection
• Information
Family
• Overprotection
• Siblings
Medical
• Communication
• Language
• Awareness GP
Food
• Dieticians
• Quality of food
• Solution?
Financial support
• Information
Fertility
• Gender
Peer
Support/Mentor/Advocate
• Social support groups
• Buddy systems
Long-term Effects
• Information
• Follow up
• Transition
Fitness
• End of treatment
• Physiotherapist/Personal trainer
Insurance
• Getting insurance (health, life, travel,
care)
• Awareness
Employment
• Qualifications
• Awareness
Conclusion
• Many issues during and after treatment
• Many issues appear to be manageable
• Discussion with service users vital
ANY QUESTIONS??