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Learning Disabilities and IAPTThe Oxleas Model Dr. Kate Chatters, Clinical Psychologist Dr. Rachel Blundell, Clinical Psychologist Aysem Mehmet, Psychological Well-Being Practitioner Wendy O’Neill, Assistant Psychologist 19th November 2014 “Despite their widespread experiences of disadvantage and social exclusion, and high risk of poor physical and mental health, people with learning disabilities as a group are not well served by the NHS (Michael, 2008) and are at risk of missing out on centrally funded initiatives such as the Improving Access to Psychological Therapies (IAPT) programme.” (Chinn, Abraham, Burke and Davies, 2014) To date the evidence base regarding the effectiveness of CBT for people with learning disabilities and common mental health problems is still quite limited (Willner, 2005; Sturmey, 2006). There are a number of published case reports (Brown and Marshall, 2006; Willner, 2004), but few RCTs. (Chinn et al. 2014) Outline for today • What is IAPT • TLC Introduction • Who we see • Outcomes • Case discussion • Q & A’s IAPT Improving Access to Psychological Therapies (IAPT) • Government led programme to train people to deliver step 2 and 3 CBT interventions in accordance with NICE recommendations. • Mild to moderate presentations = try step 2 and/or step 3 psychological interventions in preference to medication • Moderate to severe = try step 3 interventions before/in conjunction with medication • Severe and complex = secondary care services Our Service - TLC • New Project – Official Launch July 2013 • Tries to replicate mainstream IAPT - stepped care model for People with Learning Disabilities • Set up with short term funding from commissioners • Recently became a permanent service • Started as IAPT-LD – now TLC • Separate service from CLDT and IAPT Greenwich Time To Talk – good links TLC Team Aim of service: • To provide evidence based psychological interventions following the principles of the National IAPT programme to people with LD and their carers. • To provide primary care level – short term – focused – relatively low intensity interventions • To raise awareness of the mental health needs of people with LD (e.g GTTT/ MIND training). • To collect data on the effectiveness of these interventions. • To develop resources to support mainstream IAPT teams work • To path find! Reasonable Adjustments • Easy to read docs • Adapting interventions • Flexibility in appointments – same time/day/ accommodate carers • Longer sessions • Engagement with CLDT- collaborative work • Removing barriers to access Eligibility – Inclusion • Mild-moderate learning disability • 18 years or older • Lives in the Borough of Greenwich • Mild to Moderate Mental Health Problems • Can use psychological approach – adapted CBT Inclusion • Anxiety disorders • GAD • Obsessive compulsive disorder (OCD) • Panic disorder • Agoraphobia • Social anxiety • Social phobia • Stress/work issues • Depression • Adjustment disorders (Coping with illness/chronic conditions) • Self image/self esteem • Sleep Management Exclusion • Acute psychotic symptoms • Bipolar disorder • Complex disorders • Eating disorders • Major drug or alcohol problems • Complex MDT interventions • Mania • Personality disorders • Sexual dysfunction • People with significant issues of risk to self or others. What we offer • Individual therapy • Group therapy • Carers Workshops • Joint work/ consultation GTTT and MIND • Training How similar to GTTT • We offer Step 2 & Step 3 Interventions • Group Interventions • Use core outcome measure GAD/PHQ every session • Time limited 8-20 sessions • Self/GP referral Differences between CLDT & IAPT-LD CLDT • Assessments for eligibility & autism • Psychometric testing • Challenging Behaviour • Complex systemic work • Step 3-4 interventions • Wide range of MH difficulties IAPT-LD • Step 2 & 3 interventions • Anxiety and depression • Short term – time limited • Clinic based model 1 year on… • 53 referrals to TLC from July 2013 to present • 50% of these referrals were from CLDT 50% other sources inc. GTTT • Small sample but reliable improvement* and reliable recovery * rates broadly comparable to mainstream IAPT KPIs • Number of people showing reliable improvement at 6 sessions stage is positive Reflections • Under Oxleas umbrella unlike other IAPT services that are not aligned • Promising preliminary outcome data evidencing that PWLD with symptoms of depression and/or anxiety can demonstrate improved psychological wellbeing through a stepped care IAPT model. • Adds to very limited current evidence base • May help challenge current beliefs about candidacy* (FPLD research) • May help challenge beliefs that only long term work could improve mood in LD • Staff all part-time but some members have a split post with CLDT – LD clinicians • Stand alone status allows for greater flexibility in terms of adaptations made – may not be achievable in current IAPT climate Where next… • GTTT – screening, joint projects, research • Resources – new interventions • FPLD • Research/Publications • Trust Quality Showcase Break slide with title area here Sub heading area or space for another presenter’s name And job title Case Presentation Social Anxiety Demographics 21 year old male Lives at home with his parents and 2 younger brothers (18 years & 15 years). Unemployed & seeking employment. No risk reported LD Diagnosis This client has a statement of SEN He attended specialist unit within a mainstream school He has a global learning disability which includes problems with reading, writing and fine motor skills He was assessed by CLDT but was found not to be eligible for services due to FACS criteria Presenting problem He was referred to our service for help with social anxiety Trigger: Incident with a security guard He now has the belief that he looks suspicious Previously assaulted: This has left him feeling hyper-vigilant History of panic attacks Impact of problem He avoids going out alone When he is out he will usually return home sooner than he would like He will only go to places he is familiar with and not too far from home For large parts of his week he is at home without activity Treatment Plan Psychoeducation on social anxiety & panic Graded exposure Relaxation techniques Activity scheduling Signposting to Remploy employment support Hierarchy Go to central London Use the train Go to local corner shop Walk the dogs Watch a football match at stadium Bromley shopping mall Go to the cinema Go to town centre Adapted Resources Visual anxiety thermometer Scrapbook for achieved goals Pictures of activities Use of computer for activity diary Stress ball for PMR techniques Other adaptations His mum attended all sessions Phased sessions : Initially weekly sessions however after session 10 we moved to fortnightly sessions. Outcomes Client is no longer avoiding previously avoided places/situations He does not leave a situation when he feels anxious and instead using relaxation, breathing techniques and positive thinking He goes out every day and his routine is more varied He is spending more time with his family doing things like going to the cinema, taking his dogs for a walk, helping with household tasks, started going to the gym This client has regularly been invited to several interviews and is due to start a work trial soon. He now feels more confident in public places PHQ9 & GAD7 Scores 30 25 20 PHQ9 15 GAD7 10 5 0 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 Thank you