Transcript Workshop on the Measurement of Child Disability

UNICEF/WG’s work and planned activities
for the production of data
on children with disabilities
Claudia Cappa,
Data and Analytics Section, UNICEF, NY
Global Network on Monitoring and Evaluation for DisabilityInclusive Development: 1st meeting 6-7 October
Component 1:
Development of survey
modules
Component 2:
Guidelines for data
collection, analysis and
dissemination
Component 3:
Capacity building and
technical assistance
UNICEF/WG Module on
Child Functioning and Disability
Objectives of the module
• Purpose
- To to identify the sub-population of children (aged 217 years) with functional difficulties. These difficulties
may place children at risk of experiencing limited
participation in a non-accommodating environment.
• Aim
- To provide cross-nationally comparable data
- To be used as part of national population surveys or in
addition to specific surveys (e.g., health, education,
etc.)
Development of the module
• WG Workgroup on Child Functioning and Disability was
established fall 2009 under the leadership of ISTAT (Italy)
• UNICEF joined the Workgroup in early 2011
• First draft module presented Nov. 2011 at 11th WG meeting in
Bermuda
• April 2012: Rome meeting, revision of the module
• June 2012: Technical Consultation on the Measurement of
Child Disability meeting hosted by UNICEF: revision of the
module
• October 2012: 12th WG meeting: presentation of the new
module
• September 2012-2015: validation process
Group members
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Mitchell Loeb (NCHS – USA)
Claudia Cappa (UNICEF)
Roberta Crialesi, Elena De Palma, Alessandra Battisti (ISTAT– Italy)
Helen Nviiri (Bureau of Statistics – Uganda)
Sawsan Dawood Mahmood (Ministry of National Economy – Oman)
Sumaya Ahmed (Sudan Central Bureau of Statistics – Sudan)
Olimpio Zvale (Instituto Nacional de Estatistica – Mozambique)
Xiaoying Zheng (Institute of Population Research – China)
M’Banan Hippolyte Kone (Institut National de la Statistique – Cote d’Ivoire)
Souradji Fankeba (General Directorate of Statistics – Togo)
Tomislav Benjak (Croatian Institute of Public Health – Croatia)
Construction of the module
• Avoided a medical approach
• Used the ICF biopsychosocial model
• Used, when appropriate, questions already tested
and adopted by the WG
• Included the reference “Compared with children
of the same age…”
• Considered age specificity
• Response options reflected disability continuum
Development of the module
• Questions ask about difficulties the child may
have in doing certain activities
• Unless noted otherwise, all response categories
are:
1.
2.
3.
4.
No difficulty
Some difficulty
A lot of difficulty
Cannot do at all
7. Refused
9. Don’t know
Selected domains
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Seeing
Hearing
Mobility
Self-care
Communication
Learning
Emotions
Behaviour
Attention
Coping with change
Relationships
Playing
Cognitive Testing
• Cognitive testing, 3 rounds of testing (2012-2015)
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September 2012, India
January 2013, Belize
April 2013, Oman
July 2013, Montenegro
2012/13/14/2015, USA
• Comparative report completed and decisions
made on final set of questions to be included in
field testing
Field Testing
• Field testing (2013-2015)
- Independent field testing completed in
Haiti, Cameroon, India, Italy, & Samoa
- Ongoing: El Salvador, Myanmar, South
Africa, Zambia, Mexico
- Final methodological work in Serbia and
Belize (tentative, MICS)
Module on inclusive education
Rationale
• The WG and UNICEF have started working on
an extended set of questions on child
disability that will focus on environmental
factors and participation
– to provide information that can inform policy
– to provide a statistical summary of environmental
influences on participation in school
– to identify areas with key bottlenecks
Basic principles
• This set of questions will:
– Be a module that can be added to another survey
– To be used in conjunction with the module on child
functioning and disability
– Take approximately 10 minutes
– Focus on formal education and environmental factors that
influence participation
– Be designed to capture the interaction between the
participant and the environment
Completed tasks and next steps
• Review of existing questions finalized (32 measures
and 668 questions related to environmental factors
reviewed)
• Preparation of a draft module
• Meetings with key stakeholders to finalize a
module for testing: December 2014
• Cognitive and field testing (May 2015 – May 2016)
• Module to be finalized in 2016
Domains
Four domains related to environment:
– Attitudes
– School Environment
– Accessibility
– Affordability
Questions for children in school and children out of
school (reasons for not attending)
Examples of questions
• Do you think children with physical disabilities should
attend a regular school, special school for children with
disabilities or not attend school at all?
• Does (name) receive special services or assistance
(speech therapist, support worker, sign language
interpretation) in school?
• How does (name) usually get to school? Using this means
of transportation, how long does it usually take (name)
to get to school?
Development of guidelines for data collection,
analysis and dissemination
Manual for the implementation of the
UNICEF/WG survey modules
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Manual for survey designers
Instructions for interviewers
Tabulation plans
Syntaxes for data analysis
Template for reporting
Guidelines for producing statistics
on children with disabilities
• Objective: Provide guidance for those considering collecting,
analysis and use data on children with disabilities
• Discusses conceptual and theoretical issues related to
measuring disability
• Includes considerations for designing, planning, and
implementing the collection of data on children with
disabilities
• Expected to be ready in early 2016
Table of contents
Chapter 1: Overview
Chapter 2: The importance of monitoring child development and disability
Chapter 3: Concepts and definitions
Chapter 4: Assessing factors of the environment and participation in child disability
Chapter 5: Key domains of child development and disability
Chapter 6: Review of methods and tools used to date to measure disability in children
Chapter 7: Key considerations in planning, designing, and implementing the collection of data on
disability in children
Chapter 8: Data analysis and dissemination
Chapter 9: Translating knowledge into action
Chapter 10: Conclusions
Capacity Building and Technical Assistance
Workshops on the measurement
of child disability
Purpose: To build/strengthen local capacity for data collection,
interpretation, and use.
Content: Concepts, models and measures of disability, survey design,
data processing, data analysis, data dissemination and data use.
Audience(s): National Statistics Offices, other Government staff, local
researchers, DPOs, etc.
Where: All 7 UNICEF regions (Latin America and the Caribbean, West
and Central Africa, East and Southern Africa, Middle East and North
Africa, CEE/CIS, East Asia and the Pacific, and South Asia)
When: The workshops are expected to take place in 2015/2016 – 2
completed to date (one pilot, one regional, for a total of 140
participants)
THANK YOU!