Transcript AIAN State Challenges - Native American Cancer Research

CDC Southeast American Indian/Alaska Native Regional
Cancer Conference
“Building Partnerships for Cancer Control “
July 25-27, 2012
Nashville, TN
Presenters: Sonya Younger and Vonda Evans
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
From the coast to the
mountains, South Carolina
State Parks protect some of
the most important and
interesting Native American
sites in the state.

Almost all State Parks
contain remnants of the lives
and culture of Native
Americans.
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
Walk the Spanish Mount Trail at Edisto Beach State Park
that leads to the Spanish Mount Shell Midden Site. The site
dates to approximately 3,000 to 4,000 years ago and
features a 12-foot high circle of shells that may have been a
Native American ceremonial site or a midden (trash heap).
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Oconee Station State
Historic Site in the Blue
Ridge foothills explores what
life was like for the settlers
and Indians on the American
frontier.
 The park is the site of the
annual Native American Day
featuring demonstrations
such as pottery making, bow
making and flint knapping
that help visitors learn about
the culture of Native
Americans before and after
European colonization.

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5

Once had 29 distinct tribes (1763)

Currently have 7 (2012):
 Catawba
 Pee Dee
 Chicora
 Edisto
 Santee
 Chicora-Waccamaw
 Cherokee
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7
Source: SCIWay
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Whites
66.2%
Blacks
27.9%
Hispanic
5.1%
Other
2.5%
Mixed Race
1.7%
Asian
1.3%
AIAN
0.4%
Native Hawaiian
0.1%
0.0%
Source: 2010 Census Results
10.0%
20.0%
30.0%
40.0%
50.0%
60.0%
70.0%
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Population Totals by Race, S.C.
3,500,000
3,000,000
2,500,000
White
2,000,000
Black
AI/AN
1,500,000
API
1,000,000
500,000
0
96 9 97 9 98 9 99 0 00 0 01 0 02 0 03 0 04 0 05 0 06 0 07 0 08 0 09
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1
1
1
2
2
2
2
2
2
2
2
2
2
Year
Source: SCCCR
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Age-Adjusted Cancer Incidence Trends by Race, S.C.
All Cancer Sites Combined
1
600
500
All
White
Black
AI/AN
300
200
API
100
09
20
08
20
07
20
06
20
05
20
04
20
03
20
02
20
01
20
00
20
99
19
98
19
97
19
96
0
19
Rate/100,000
400
Year
1. Invasive cases only except for bladder, which includes in situ cancers
Source: SCCCR
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Age-Adjusted Cancer Mortality Trends by Race, S.C.
All Cancer Sites Combined
400
350
250
All
White
200
Black
AI/AN
150
API
100
50
20
09
20
08
20
07
20
06
20
05
20
04
20
03
20
02
20
01
20
00
19
99
19
98
19
97
0
19
96
Rate/100,000
300
Year
Source: SCCCR
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Age-Adjusted Cancer Incidence and Mortality Rates by Race, S.C.
All Cancer Sites Combined, 1996-2009 1
600
Rate/100,000
500
400
300
Incidence
Mortality
200
100
0
All
White
Black
AI/AN
API
1. Incidence data include invasive cases only, except for bladder, which includes in situ cases
Source: SCCCR
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
Identification of individual AIANs
 Collecting race for this population is directly related to two
things:
▪ 1) availability of the recorded race in the patient medical
record/pathology reports, and
▪ 2) accuracy of the recorded race.
 The SCCCR collects data from hospitals, path labs, freestanding
treatment centers and MD offices (urology, oncology, and
dermatology). Race is absent from most pathology reports as
this is not reported to the pathologist from the surgeon. So,
when the path report is the primary source document
identifying the new cancer case to the SCCCR, they follow back
to the diagnosing physicians to obtain race from physician
source records.
 Accuracy of race is more difficult to assess through data quality
control
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
Additional steps taken to identify AIANs in SC
Cancer Registry
 Indian Health Service Linkage
▪ Part of the SCCCR’s data submission preparation and
process annually to the North American Association of
Central Cancer Registries (NAACCR)
▪ SCCCR links its entire database to the Indian Health
Service (IHS).
▪ The detailed breakdown of the link results are returned
and a variable is kept in the ‘research’ data file showing
the link result for individual patients.
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



Provides eligible South Carolina women with
free breast and cervical cancer screenings
Has screened 92,568 women since its
beginning in 1991
261 (0.28%) of these women are Native
Americans
109 (42%) of the Native Americans screened
came back in subsequent years for
rescreening
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Native Americans Screened by Program Year, 20072012
70
60
60
50
40
54
45
30
20
10
25
14
0
June 30, 2007- June 30, 2008- June 30, 2009- June 30, 2010- June 30, 2011June 29, 2008 June 29, 2009 June 29, 2010 June 29, 2011 June 29, 2012
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
Seek to identify Tribal Leaders (Chiefs)

Seek to listen to leaders and determine best
ways to stress importance of cancer
screening

Seek to access available tribal information
 Best approaches needed
 Ways to keep engaged
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
Seek State Cancer Plan representation and
implementation

State Coalition (SCCA) and ACOS partnership
 Request review/revision of medical reporting
methods to more accurately capture population
identification and data
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CATAWBA INDIAN NATION
CHICORA INDIAN TRIBE OF SC
Chief: Bill Harris
Phone: 803-366-4792
Chief Timothy Creel
Phone: 843-397-6557
Email: [email protected]
PEE DEE INDIAN TRIBE OF SC
Chief: James Caulder
Email: [email protected]
Telephone: 843-862-3566
EDISTO INDIAN ORGANIZATION
Chief Anthony Davidson
Phone: 843-871-2126
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SANTEE INDIAN NATION OF SC
SANTEE INDIAN ORGANIZATION
Chief William Koon
Phone: 864-541-8759
Chief Randy Crummie
Phone: 803-308-7991
Email: [email protected]
THE WACCAMAW INDIAN
PEOPLE OF AYNOR, SC
PIEDMONT AMERICAN INDIAN
ASSOCIATION - CHEROKEE
Tribal Chief Harold D. Hatcher
Phone: 843-358-6877
Email: [email protected]
Chief Gene Norris
Phone: 864-683-1421
Email: [email protected]
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S.C. DEPT. OF HEALTH AND
ENVIRONMENTAL CONTROL (SCDHEC)
AMERICAN CANCER SOCIETY
Sonya Younger, MBA, Manager
Comprehensive Cancer Control
Phone: (803) 545-4114
Email: [email protected]
Website: www.scdhec.gov/cancer
Vonda Evans, MPH, CHES
Recruitment Senior Manager
(843) 744-1922
Email: [email protected]
Website: www.cancer.og
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SCDHEC NCCCP MANAGEMENT
Virginie Daguise, PhD, Director
Division of Cancer Prevention and Control
Phone: (803) 545-4942
Email: [email protected]
Website: www.scdhec.gov/cancer
Dianna Lydiard, PhD, Director
NBCCEDP
Phone: (803) 545-4116
Email: [email protected]
Website: www.scdhec.gov/cancer
SC CENTRAL CANCER REGISTRY
Susan Bolick, MSPH, CTR, Director
Email: [email protected]
Phone: (803) 896-2100
Website: www.scdhec.gov
SC CANCER ALLIANCE
Steve Lovelace, Executive Director
Email: [email protected]
Phone: (866) 745-5680 (Toll Free)
Website: www.sccanceralliance.org
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
South Carolina Indian Affairs Commission
www.southcarolinaindianaffairs.com

Native American in South Carolina
www.sciway.net/hist/indians

South Carolina Native American Affairs
www.state.sc.us/cma/nativeai.html

South Carolina Native American Culture
http://studysc.org/elementary/native-american-culture
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