Transcript How did we do this? - Bone Cancer Awareness Trust

Who are we?
The Bone Cancer
Awareness Trust was
set up by the family
and friends of Luke
Bradwell, who passed
away on the 3rd
January 2012 after a
valiant fight with
Osteosarcoma.
What is our aim?
We aim to raise
awareness of bone
cancer to promote
early diagnosis, as this
is one of the most
important factors
influencing outcome.
Why is this important?
As a family we had never
heard of Osteosarcoma
until Luke was
diagnosed and through
our experience have
learnt that
unfortunately this is
also the case for many
other families and
patients affected by
primary bone cancer.
What did we do?
We spoke to BCRT and
agreed to work
together towards a
common aim. We also
consulted oncology
specialists and NICE.
Late diagnosis we
realised was not
uncommon.
How do we raise awareness?
After consultation we
decided to provide
information to GP
surgeries and schools. We
have produced an
information leaflet for
distribution to GP
surgeries. We hope
increased awareness will
encourage individuals to
seek medical attention
sooner, as we
believe early diagnosis
can save limbs and lives.
How will this help?
The intention is that
anyone with symptoms,
their families or first
contact medical
professionals will be
exposed to the
information and
consideration will be
given to an X-ray.
What have we achieved?
In our first year we have
run a pilot scheme in
co-operation with the
Cornwall County
Council Department of
Public Health. Our
information leaflets
have been distributed
to all GP surgeries and
Minor Injury Units
within the PCT.
How did we do this?
Consultation
Production
with key
and
staff within Agreement
distribution
the PCT
with PCT and
partner charities
regarding
content
What’s next?
• With the help of BCRT,
recruit volunteers to
promote the campaign
locally
• Roll out of the Cornwall
pilot into a national
programme
• Continue to seek
opportunities to
promote awareness in
schools