Transcript Workshop (PowerPoint presentation)

Bladder cancer
group: how to find
health information
online
Arlene Greenberg, librarian
Jacynthe Touchette, librarian
Patient Information Specialists
November 1 2012
Agenda
1. Why being informed is important
2. How to evaluate consumer health
information
3. Overview of selected websites
4. Resources at the JGH
Why do you look for health
information?
•
Shared-decision making
•
•
•
•
To understand information received from your health
professional
To participate in your health
To be partners with your care
To make informed decisions
Why your health professional
wants you to be informed
Patient-centred care:
• An informed patient is an empowered patient, better
able to act as partner with his or her health
professional (HP) with the goal of achieving improved
health outcomes.
• “shared or informed decision making, evidence based
patient choice, or concordance.”
1. Coulter A, Ellins J. Effectiveness of strategies for informing, educating, and
involving patients. BMJ 2007;335:24-27. Available from www.bmj.com
In a nutshell…
Why look online?
•
Accessible 24/7 from home/library
•
Free and fast
•
Relatively up-to-date
•
Easily check multiple sources
•
Interactive
•
Community: support groups and blogs
Evaluating health information
• Websites and blogs
• In the news
*or blogs
•It is easy to navigate
the website.
•All the links work.
•There is a copyright.
Woodbury, Jeff. New York City: SPAT Artist, 2003.
*or blogs
•You can tell who created
the website.
•.edu
•.gov
•.org
•You can contact the
authors.
•The authors provide their
credentials.
*or blogs
•The authors are not
selling something.
•This symbol:
on the page.
is
•You can verify the
information.
•You can see where the
information came from.
Evaluating web
pages
• Created in 1995, HON is a non-profit, nongovernmental organization, accredited to
the Economic and Social Council of the
United Nations.
*or blogs
•You can tell who the
information is meant
for.
•It is easy for you to
read and understand
the information.
Which is the most important factor
in determining health outcomes?
a) Socioeconomic status
b) Age/sex
c) Literacy/ Health literacy
d) Culture
e) Level of education
*or blogs
•The information
is current
(the date is included).
•You can see when the
page was last updated.
*or blogs
If you answered yes
to all,
or most of, these questions
then you can probably
trust
the information you are getting.
Even if you can trust this
information you should
always ask your doctor for
advice.
Evaluating the news
• Does the story include references?
• Are these references authoritative?
– Which study?
• Journal name?
• Author?
• Date?
– What kind of study?
Overview of online consumer health
resources
Cancer
• Canadian Cancer Society
www.cancer.ca
• American Cancer Society
www.cancer.org
• National Cancer Institute
www.cancer.gov
French Cancer
• CiSMeF-patients cancérologie
www.chu-rouen.fr
• Passeportsanté
www.passeportsante.net
• Info Cancer
www.arcagy.org/infocancer
• Fondation québécoise du cancer
www.fqc.qc.ca
General interest (and also cancer)
• Medline Plus
www.medlineplus.org
• Mayo Clinic
www.mayoclinic.com
• Family Doctor
www.familydoctor.org
Complementary and Alternative
• BC Cancer Agency
www.bccancer.bc.ca/PPI/UnconventionalTherapies/default.htm
• National Center for Complementary and Alternative
Medicine
http://nccam.nih.gov
• Health Canada – Licensed Natural Health Products
Database
www.hc-sc.gc.ca/dhp-mps/prodnatur/applications/licen-prod/lnhpdbdpsnh-eng.php
• Natural Standard
http://3rdparty.naturalstandard.com/frameset.asp
Free medical research sites
• PubMed
www.ncbi.nlm.nih.gov/pubmed
• Clinical Trials
www.clinicaltrials.gov
• Google Scholar
http://scholar.google.ca
NB Not all indexed articles are free- we can provide
access to the full text at the PFRC
Dictionaries/encyclopedias
• MedlinePlus
www.medlineplus.org
English
• HONselect
www.hon.ch/HONselect
Multiple
• Terminologie CISMeF
http://terminologiecismef.chu-rouen.fr
English<>French
• Canadian cancer encyclopedia
http://info.cancer.ca/cce-ecc/default.aspx?Lang=E
Bilingual
Patient and Family Resource Centre
(PFRC)
JGH.ca/PFRC
Search the PEN collection
You may be referred to us…
*
*Medical Advice not included
PFRC Disclaimer
This information should not be considered
as medical advice. It is not to be used in
place of a visit with a doctor, nurse or other
healthcare professional. If you have
questions about your individual medical
situation, please consult with your
healthcare professional.
Thank you!
Questions?