Transcript BME Cancer Communities by Rose Thompson

Inspiring the Development of
Cancer Support Groups in the Community
Rose Thompson
Director of BME Cancer Communities
www.bmecancer.com
0115 9348482
[email protected]
BME
We prefer to say
Be Me
(Put Yourself in My Place)
=
Black and Minority Ethnic
Less visible ethnic groups often excluded
BME Cancer Communities
A small developing social enterprise with a community focus on BME and low income
household communities affected by cancer. (CIC registered as Cancer Communities).
Based in Nottingham, we think nationally and act locally.
What do we do ?
•
Raise BME and low income household cancer awareness in the community and
amongst health professionals via events and outreach and training.
•
Empower cancer service users to make accurate , up to date informed choices
•
Assist the development of community based effective support services.
•
Develop BME cancer information resources and supportive community based
networks
Family Cancer Experience
Lost mother and twin sister to breast cancer. (Both under 50)
Younger sister survives, 10 years after mastectomy and treatment
Aunt (mother’s sister). Breast cancer and dementia 2012
First report on Ethnicity and Cancer
Published in 2009
Cancer Incidence and Survival
By Major Ethnic Group,
England, 2002-2006
The National Cancer Intelligence Network
(NCIN)
in collaboration with:
Cancer Research UK Cancer Survival Group.
London School of Hygiene & Tropical Medicine
Supporting The Shamrock Club
The Irish Centre Nottingham
Chinese Cancer Awareness Day
Nottingham
http://www.nottinghamchinese.org.uk/
http://www.cnhlc.org.uk/
Gaps in appropriate Support services
Support is important and valued, especially
if the support comes from someone who has
a similar experience and cultural heritage.
Support via BME
organisations and BME
Cancer Survivors Important
Some of the most
effective initiatives to
support BME cancer
patients/carers are based
in the community
BME voluntary sector
organisations are
generally under funded,
and increasingly being
forced to end community
services.
BME Cancer Communities Survey
PROSTATE CANCER
AND BLACK MEN
• Black African Caribbean men 2.5 more likely to be diagnosed
with prostate cancer (5 yrs earlier than expected)
• Some Black African men (not all), are also at increased risk,
PROCESS = Prostate Cancer in Ethnic Sub Groups initial study
(Limited to Bristol and London)
Friends and Bredrins
Elijah Israel
Prostate Cancer Ambassador
FRIENDS AND BREDRINS
FIRST FUNDRAISER – BARBEQUE
JUNE 2013
Prostate Cancer. A Widows Story
(The Hugh Dwyer Inspirational Foundation)
Hugh
Back A Yard
Making wicker furniture
Hugh and Cynthia
Negative men’s stories and death rates led to a
new type of BME report
Hear Me Now
The Uncomfortable Reality of Prostate
Cancer in black African Caribbean men
www.bmecancer.com
David Lammy MP (Tottenham)
Speaking at the Hear Me Now launch
‘Hear Me Now’ Report Launch
House of Commons 2013
Report driven by higher death rates
Black men 30% more likely to die from
prostate cancer than White British men
Dr Steve Knights - GP support
Windmill Practice Nottingham
Hear Me Now One Year On
http://bmecancer.com/index.php/hmnreports/download-hear-me-nowreports
Hear Me Now Round Table Westminster
Sept 2014
Support groups start with one passionate person
supported by others with a shared passion.
Lloyd Ferron
BMECC Shiatsu
massage expert
Wayne Marston - FAB
Thank You
Rose Thompson
BME cancer.communities
Tel. 0115 9348482
Email.
[email protected]
Website.
www.bmecancer.com